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Leigh-Ann: Supporting a friend with Fibromyalgia

I didn’t know what Fibromyalgia was until a very close family friend was diagnosed with the condition, the kind of family friend that is family. After that, I started hearing the word everywhere, and I realised that there were actually a number of people close to me whose lives were affected by Fibro.

I was familiar with the idea of living with chronic pain, not through personal experience, but a few of my closest friends lived with chronic illness and pain: from ME to severe IBS, complicated skin conditions and Fibromyalgia.

Knowing how to support my loved ones with chronic pain is something I’m still learning how to do. Some of the things I know now seem so obvious, but when I was younger and knew so much less about Fibromyalgia, it didn’t seem so much so. I still get things wrong. I say or do the wrong things. I misunderstand. And I don’t at all pretend to come from a place of knowing all there is to know. But I think every day I learn a little bit more and try a little bit harder, and I hope that above all else, my friends know that I will always listen, and I will always be there.

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Emily Canwood: Raising awareness of fibromyalgia

Hi, I’m Em. I’m 26, and from East Anglia and I have been living with chronic pain for more than ⅔ of my life.

I became disabled in the eyes of the government in 2018/2019 due to being diagnosed with fibromyalgia. In 2018 this was not when my journey with chronic pain began.

I remember being as young as 9 always complaining that my muscles and my knees hurt which was ruled down as growing pains. I was never the “healthiest” and I dealt with a great list of symptoms like being constantly nauseated, had poor balance/very clumsy, muscle cramping, lacking energy, just to name a few.

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Research - Attitudes of healthcare professionals towards those with Fibromyalgia

Lay study title: Attitudes of healthcare professionals towards those with Fibromyalgia

Institution: Staffordshire University

About the study: This study aims to explore the attitudes of health care professionals toward those who are diagnosed with Fibromyalgia and the impact these attitudes have on patient care.

Type of opportunity: To help in the development and design in a potential research project

When will this study be recruiting?  August 2021

What will participants be asked to do? Participants will be asked to share their experiences of Clinician attitudes towards them and how these attitudes impacted them and their care. After participants have shared their experiences, their experiences will help to develop statements will be used within the research. Participants will be asked to confirm the accuracy of these statements so that they may be used within the research.

Who can take part?Participants must have a diagnosis of Fibromyalgia,18+ years and English must be their first language

Who is conducting the research?Laura Scott, Trainee Clinical Psychologist

Who has reviewed the study?Yvonne Melia, Clinical Psychologist

How will the study benefit people with fibromyalgia?We are hopeful that the results of the study will help to develop improvement of patient care and start the development of training for clinicians.

Expenses: Unfortunately we are unable to pay for any expenses at this time.

What next / who to contact: If you are interested please feel free to contact Laura Scott for more information on This email address is being protected from spambots. You need JavaScript enabled to view it.

Fathers Day: The fibromyalgia impact on me as a father

A Father's Day Blog

Becoming a father has been the single most challenging, motivating, empowering and rewarding role I have ever and probably ever will have. I mention this because I am going to take you through a short timeline on my explaining of this. Around 6 years ago my life changed, I was faced with a traumatic event that had eventually led to my diagnoses of Fibromyalgia. 

This diagnosis changed my life, forcing me to give up my degree, give up my sporting activities and competing, along with loosing huge bulks of my friendship groups. Throughout all of this I was lucky to have such a supportive and understanding family/ partner who has helped me through so much.

I can remember still the thoughts I had when we found out we was going to be having a baby, I could not see myself in the picture, I had so many worries about being a parent that I would not be able to do much at all.

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Volunteers Week 2021: Jenny Timms

My name is Jenny Timms and I am a one of the many volunteers for FMA UK and have been for approximately two years as the regional coordinator for the Midlands.

The process of becoming a volunteer for FMA UK was the same as applying for a paid position, so I filled out an application form then went through two phone interviews with head office via phone including a chat with Des Quinn the chief executive, and though I was incredibly nervous, everyone I spoke to put me at ease as they were all exceedingly kind and friendly.

The reason I went for this volunteer position was I wanted to make a difference to others who have fibromyalgia just like myself. I had been considering it for a short while as I was feeling like I was not worth much and not contributing to the world around me and since I was unable to work a full-time job, I knew volunteering was the answer as it meant I could still use my lifetime skills the best way I thought how whilst being able to adapt the hours around my condition, and I have not regretted it once!

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