- We're raising awareness of fibromyalgia
- Employment Booklets
We're raising awareness of fibromyalgia
Click here for some ways to get involved with the charity
Employment Booklets
Fibromyalgia can have an impact on employment. Click here to access our publications page where you can access our employm...
Corona Virus: We are still available but physical orders may be delayed as our staff are remote working. Click here to read more information on the Coronavirus and Fibromyalgia. Our helpline continues to be available between 10 and 4 weekdays on 0300 999 3333
Contact Form Issues - We are having some issues with our contact forms. If they do not work please email head.office@fmauk.org
Fundraising Events
This year has been unlike no other. With a lack of clarity on so many things, and lockdown restrictions throughout the country, this has led to many fundraising events for the charity being postponed or deffered. It has been difficult for all of us, and we've seen a reduction in our income this year due to the pandemic.
We have still had some fundraisers raise money for us, from a golf day to a virtual hadrians wall cross training exercise, we've still had some events take place and we are grateful to the effort of everyone invovled in what are very challenging times.
We also had some challenges due to be completed this year, such as Nicolle Ward (Photographed) who was due to be climbing Mount Kilimanjaro. We also had Hollie Jervis and Jamie Lawson due to complete the Chiltern challenge and the Isle of Wight challenges respectively. They have all opted to defer their fundraising efforts and will instead be due to complete them next year. We appreciate the fact that they are willing to help us again, after the difficulties of this year and would like to thank them for doing so.
Times are tough for everyone at the moment, and we are so appreciative and thankful for any financial or voluntary help which has been offered to the charity during this pandemic. If you are interested in fundraising for us in any way, please do let us know and we will be happy to assist you in getting started. Please email This email address is being protected from spambots. You need JavaScript enabled to view it. with any thoughts or comments on what you would like to do.
RC Vacancy: North West
We are currently recruiting a volunteer to cover our Regional Coordinator role in the North West area.
Our Regional Coordinators are our point of contact for new enquiries via email and telephone, provide support to the local Support Groups in the area, and represent FMA UK at events among other tasks.
General duties of the Regional Coordinator include
- Keep up to date with FMA UK news from the FMA UK Trustees, office, website & social media
- Cascade this news and any other information to groups within the region by e-mail or snail mail.
- Keep in touch with groups in the region by e-mail, telephone, meetings or newsletter.
- Help to resolve local group difficulties, asking the advice of a Trustee if necessary.
- Represent the views of groups and helplines at meetings with the Trustees and report back information gained.
- Try to organise a regional meeting annually if feasible.
- Direct new enquirers to their local group or helpline.
- Answer regional e-mails generated from FMA UK website www.fmauk.org
- Represent the region when invited to specific meetings or exhibitions.
- Provide support for people who wish to set up a new local helpline or support group.
- When invited visit local support groups.
- Uphold the FMA UK confidentiality policy at all times, if in doubt make contact with the RC’s Liaison who will seek clarification from the Trustees if necessary.
- Attend meetings with trustees and other regional coordinators online via MS Teams and in person at annual Trustees/Regional Coordinator meeting
- Provide a monthly report for MS Teams meetings
- Comply with the Regional Coordinators expectations document.
Please submit Application form by email to This email address is being protected from spambots. You need JavaScript enabled to view it. by 26/10/2020
For further information - please email This email address is being protected from spambots. You need JavaScript enabled to view it.
Help us by shopping with Amazon
Do you do a lot of shopping online at Amazon? Did you know we can benefit from every purchase you make? By signing up to Amazon Smile and selecting us as your charity, 0.5% of your spend will go to FMA UK at no charge to yourself. Since signing up, over 500 people have signed up chosen us as their charity, with over £1,000 being donated to us by Amazon.
You can get involved today in just a minute! Click on the link smile.amazon.co.uk/ch/1042582-0 to get started and selected us as your chosesn charity. It doesn't cost you anything extra. Just simply make a purchase and Amazon will donate a percentage of it to ourselves.
Matthew Dobson: My fundraising for FMA UK and why I am doing it
I was diagnosed at 22 with chronic fatigue syndrome. It had taken 2 years of back and forth testing and different Drs and more testing, before the diagnosis. From the diagnosis I wasn’t offered much. “Rest” and “exercise” was about it. RC Vacancy: Wales
We are currently recruiting a volunteer to cover our Regional Coordinator role in the Wales area.
Our Regional Coordinators are our point of contact for new enquiries via email and telephone, provide support to the local Support Groups in the area, and represent FMA UK at events among other tasks.
General duties of the Regional Coordinator include
- Keep up to date with FMA UK news from the FMA UK Trustees, office, website & social media
- Cascade this news and any other information to groups within the region by e-mail or snail mail.
- Keep in touch with groups in the region by e-mail, telephone, meetings or newsletter.
- Help to resolve local group difficulties, asking the advice of a Trustee if necessary.
- Represent the views of groups and helplines at meetings with the Trustees and report back information gained.
- Try to organise a regional meeting annually if feasible.
- Direct new enquirers to their local group or helpline.
- Answer regional e-mails generated from FMA UK website www.fmauk.org
- Represent the region when invited to specific meetings or exhibitions.
- Provide support for people who wish to set up a new local helpline or support group.
- When invited visit local support groups.
- Uphold the FMA UK confidentiality policy at all times, if in doubt make contact with the RC’s Liaison who will seek clarification from the Trustees if necessary.
- Attend meetings with trustees and other regional coordinators online via MS Teams and in person at annual Trustees/Regional Coordinator meeting
- Provide a monthly report for MS Teams meetings
- Comply with the Regional Coordinators expectations document.
Please submit Application form by email to This email address is being protected from spambots. You need JavaScript enabled to view it. by 12/10/2020
For further information - please email This email address is being protected from spambots. You need JavaScript enabled to view it.
Maryanne Hood: My challenge for FMA UK
“My name is Maryanne Hood and I am 33 years of age, a single mum to three wonderful children. I work part time, and suffer from Fibromyalgia and M.E. I am raising awareness for Fibromyalgia as this is an invisible condition which can impact people in different ways. It can seriously impact the quality of life whilst leaving people in pain each day.
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Highlights
- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
Trustee meetings are held monthly via Skype and last about 2 hours. There is an annual meeting that coincides with our group leaders’ meeting over a weekend.
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
We are delighted to announce that our recent assessment for The Information Standard has been successful and we continue to fulfil the criteria for using the TIS logo on our publications.
The rigorous process that has to be in place ensures that up to date evidence is used and presented to people in an appropriate way. The process is ongoing and requires much diligence by everyone involved.
We would like to thank everyone who has worked on our publications or sent in their comments and suggestions for improvement
Important Notice‼️ | At the end of March, our JustGiving Text service which allows you to donate using your phone will be ending. Instead, you can now take advantage of our new Text service with Donr. To make a donation, text 'FIBRO' to 70085 to donate a default £10. This costs £10 plus a std rate msg.
Alternatively, you can opt to give any whole amount up to £20, by texting Fibro + the amount you wish to donate, e.g. FIBRO 5 to donate £5.
Please share to make our followers aware of our new text donation arrangement.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
