- Welcome to FMA UK
- Donate Clothes for FMA UK
- Rheumatology 2014
- FMA UK offers many awareness resources
Welcome to FMA UK
Site for the national charity for fibromyalgia. Working to raise awareness of the condition..png "Donate Clothes for FMA UK")
Donate Clothes for FMA UK
A new, secure and simple way to support us with your clothes donationsA new, secure and simple way to support us with your....png "Rheumatology 2014")
Rheumatology 2014
A world-class conference for all health professionals with an interest in musculoskeletal conditions.
FMA UK offers many awareness resources
These are distributed from our office and through support groups throughout the UKFMA UK - UK's National charity for fibromyalgia
Prescription charges to go up by 20p
David Barker, Leader of the Prescription Charges Coalition of organisations and Chief Executive of Crohn’s and Colitis UK said today:
“Millions of people with long-term conditions will be bitterly disappointed by the Government’s short-sighted decision to put up the cost of their essential medicines by 40p over the next two years.
“Already, over one third of people in work with a long-term condition find it hard to pay for their prescriptions and are rationing or stopping taking their medicines, compromising their health. These unfair, outdated and inequitable charges are forcing more people with long term heath conditions into medicine poverty and we continue to call for the government to follow the strong example set by the other UK countries and abolish prescription charges for people with long term chronic health conditions”.
Prescription charges to rise 20p. Sign our petition bit.ly/1kgbHyF
Carers UK - State of Caring Survey
Each year Carers UK carry out our State of Caring survey to show just what it is like to be carer. You can help us expose how hard it can be to care and what needs to change to make carers’ lives better.
You can fill the survey in here. We’ve shortened it compared to previous years and focused on how caring affects finances, health and the ability to live your own life.
Fibromyalgia & Pregnancy Study - more volunteers needed
“This study has not yet attracted enough participants from its original advertisement so the criteria has been changed in the hope that more eligible people can be recruited. Please support this study if you can as each step forward in understanding how fibromyalgia affects people helps.”
- are approaching your third trimester of pregnancy, are new mums or mums with young children,
- have been diagnosed with fibromyalgia prior to the onset of your pregnancy,
- speak English fluently,
Petition to end prescription charges in England for people with Long Term Conditions
We’re expecting the Government to announce a further increase in the price of prescriptions in England any day now. That’s why FMA UK, as a member of the Prescription Charges Coalition, is launching an online petition, calling on the Government to end unfair, outdated and arbitrary prescription charges for everyone with a long-term condition. The petition, hosted by the British Heart Foundation is easy to fill in. Just click here to add your support and please forward to family, friends and colleagues too – www.bhf.org.uk/prescriptions.
Fibromyalgia Awareness Dates 2014
Dates for your diaries
- Monday 12th May 2014 - International Fibromyalgia Awareness Day
- Saturday 6th - Sunday 14th September 2014 - UK National Fibromyalgia Awareness Week
Are you doing anything for Awareness Day or Week ??? Let us know and you may be featured on our website or facebook page.
Mendip Fibromyalgia Support donate books to local Library service
This wonderful idea by the Mendip Fibromyalgia Support Group will raise awareness and enable more people to read in more depth about fibromyalgia. Perhaps this is something other groups might consider. It might even be used instead of the group library especially if books have to be carted to and from each meeting. Members will be able to borrow the books in the same way without the group having the hassle.
Another suggestion is to recommend that the library stock particular books themselves that members have found most useful.
Group leader Tanya Climo tells us how it all came about.
"With the help of a donation from a group member in memory of her mother, Ruth 'Sis' Cook, and a grant from the Swans of Wells project, on Monday 2nd December 2013 Mendip Fibromyalgia Support Group donated 31 specialised books to the Somerset Library Service. A grant from UK Fibromyalgia will enable the group to publicise the availability of the donated books to all the support groups, hospitals and doctors surgeries in the area as well as to services such as books on prescription.
Effects of Music Therapy on Fibromyalgia
Effects of Music Therapy on Fibromyalgia - research of evidence by Shivani Lalloo
What is Music Therapy?
Music therapy is defined by Munro and Mount (1978) as the controlled use of music and its influence on humans to aid the integration of physiology, emotions, and psychology, during treatment. The combination of using music as a therapy for treating illnesses has been common throughout centuries, especially during the Renaissance era. A music therapist will use music to facilitate behavioral changes, by allowing patients to use a variety of musical instruments. Then, the therapist will engage in discussions about the patient’s musical interaction, allowing the patient to express his or her feelings with the aid of musical interaction. This form of therapy falls under the concept of music psychology, which is the psychology behind pitch perception and performance. Vink (2001) states that, according to music psychology, patients with little knowledge of music theory respond with the same emotional intensity to music as knowledgeable music performers. Therefore, the main aim of music therapy is to determine how patients respond emotionally to music, and improve cognitive functioning and quality of life.
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Highlights
Trustee meetings are held monthly via Skype and last about 2 hours. There is an annual meeting that coincides with our group leaders’ meeting over a weekend.
If your Medical Professional needs some education in fibromyalgia you can request that an FMA UK Medical Professionals Pack is sent out to them. All we need is the name of the Medical Professional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can make Request Medical Pack.
FMA UK is now able to receive text donations from your mobile. With our partners you are now able to send a text from your mobile to 70070 with the code of FMUK01 and your amount that you would like to donate to us. For example if you would like to donate £5 to FMA UK* you would text FMUK01 £5 to 70070. You would then be given the opportunity to add Gift Aid - meaning FMA UK benefits from an extra 25% on top of your original donation.