- Fibro Action and FMA UK are now Fibromyalgia Action UK
- Welcome to FMA UK
Tim Daniel from Highbridge is going to face his demons of heights to do a 15,000 ft skydive on Saturday 20th August to raise awareness for the invisible illness FIBROMYALGIA & Myalgic Encepholomyelitis (M .E).
Tim’s Mum, Sally has fibromyalgia and helps run a local support group based in Burnham-On-Sea. Fibromyalgia HEART of Somerset Support Group who meet every Monday at the Somerset Skills and Learning Centre, (the mobile unit at the back), Princess Street, Burnham On Sea from 1.30 – 3.30pm. The group is affiliated with Fibromyalgia Action UK (FMA UK), a national Fibromyalgia charity.
The jump will help raise funds for Fibromyalgia HEART of Somerset and FMA UK. FMA UK not only provide support to sufferers and their families, offer medical information to professionals but they also aim to encourage funding for new research projects, due to little research being carried out in the UK.
If you would like to sponsor Tim then you can do so by visiting http://www.skydiveukltd.com/skydive/charity/sponsor-a-friend/profile/?id=43
HealthUnlocked Online Community Volunteer Admin role description
FMA UK is a small national charity committed to supporting people affected by fibromyalgia. Fibromyalgia is a widespread chronic pain condition for which there is no cure and no designated treatment in the UK. Fibromyalgia is a common condition: there are up to 2.7 million, or one in 24 people, fibromyalgia sufferers in the UK.
FMA UK’s work can be divided into three key areas:
- Providing evidence - based, up to date and accurate information about fibromyalgia, diagnosis, treatment, care and other support under the Department’s of Health Information Standard quality mark.
- Peer to peer support: we provide an online community forum which offers peer to peer support, information, advice and signposting where people affected by fibromyalgia share their experience and provide informal support. Over 9,000 members use this tool to help them cope with the condition
- Providing two Helplines, information, signposting and support by telephone and email by our dedicated volunteers.
About Our Health Unlocked online community
Health Unlocked is FMA UK online Community Forum, where people can get support and information 24 hours a day, 7 days a week. Volunteer Admins support provides a welcoming environment for people affected by fibromyalgia. Volunteer Admins enable us to provide a better, more responsive service.
This role can be based anywhere in the UK, from home, and undertaken when it is convenient to the volunteer. No fixed time commitment is needed, however we will ask you to login and respond to tasks regularly.
You are invited to a gig in Glasgow kinlly organised by Martin Marshall and his friends, with proceedings going to support FMA UK work.
Zoe Anderson, a college student, shares with us her struggle with fibromyalgia and why she will run the Scottish 10K for her mum and for FMA UK. Zoe: ‘’I was diagnosed earlier this year after experiencing the symptoms for 4 years. Fibromyalgia is a horrible illness I have watched my mum suffer from for many years. There is no cure for fibro, just some treatments, which do not always help.
I’m running the 10K not just for me, but for my mum and to raise funds for a good cause. This is a big challenge for me but one I’m excited about.’’
To support Zoe visit her JustGiving page:
Katie Love will run the South Coast Challenge 100K as her auntie lives with fibromyalgia. This is a second part of Katie’s blog, where she tells us about the preparation to the run: ‘’The 2 month countdown to the South Coast Challenge 60 miler and slight panic !
With only 2 months and a couple of days to go till the big day, I had a slight panic that I may need to start training. Due to a lot of worries of being in too much pain, over training and loosing confidence , I mentally closed the door on doing any mileage over 10 miles as I wanted to "preserve" myself for the big day, so instead I stuck to the gym and cycling. Unfortunately although this may help with fitness it will not put mileage in the old pins ( my face was a picture at that moment and not a happy one) so I had to start and so I did with doing 15 miles across the downs last weekend with my running club RunWednesdays. During the run I felt ok, not strong, but ok. It was to be expected as it was the furthest I have been in a very long time.
Anna Baines and her partner James Sanderson have completed the Great Manchester 10K Run for FMA UK in memory of Anna’s aunt Dawn. They have also organised a fund day, packed with family activities, FMA UK and butterflies branded cupcakes, stalls and surprises, which raised £420. Anna and James are also raising funds to support FMA UK work on JustGiving, you can donate by visiting
- Family sought for new BBC1 health series
- Fibromyalgia Exercise DVD Reviews
- ‘It’s a Pain’ Public Engagement Lecture Series (Durham)
- Thriving with Fibromyalgia: Dance for Health Seminar (London)
- Kay Sharpington raises nearly £200 in fibromyalgia awareness day cake sale
- Wakefield fibromyalgia support group 6th Birthday Party and Awareness Event