- Welcome to FMA UK
- Donate Clothes for FMA UK
- FMA UK offers many awareness resources
Welcome to FMA UK
Site for the national charity for fibromyalgia. Working to raise awareness of the condition..png "Donate Clothes for FMA UK")
Donate Clothes for FMA UK
A new, secure and simple way to support us with your clothes donationsA new, secure and simple way to support us with your...
FMA UK offers many awareness resources
These are distributed from our office and through support groups throughout the UK2014 Grand Raffle - Prize Winners
Congratulations to M Stevenson, number 02114 who won our first prize of a week's accommodation in Malta.
The winning tickets were drawn by Glen McGregor, Treasurer, FMA UK at the Fibro PaIN meeting on Monday 21st July 2014.
All other winning numbers are detailed below, together with who they were donated by where applicable. All prizes will be despatched from the office within the next two weeks.
Disability Benefits Consortium survey on PIP assessments
In the light of the Work and Benefit Select Committee’s publication of their views on benefit assessments, it is even more vital that we provide data to support changes. The response generally to the surveys have been poor so far. This is not something we as an organisation can do, we need as many people as possible to tell them what their experience has been like. Without this we cannot expect change.
The Disability Benefits Consortium (DBC) have produced a surveyon the PIP assessments. This survey has had minimal responses from people with MSK conditions. The DBC are also producing a wider survey, ‘The Big Benefits Survey’, to understand more on disabled people’s experience of the benefits system. This survey does not cover PIP assessments. Closes midnight on 3rd August.
Luke's 24 hour Xbox Live Stream
When 14 year old Luke Tandy had to raise awareness for a charity for a school project over the Easter holiday he decided to do a 24hr live stream on Xbox to raise funds for Fibromyalgia . Luke's mum Maria was diagnosed with fibromyalgia last year. He raised a total of £65 & his target was £40. His mum Maria says the family are so proud of him - well done Luke from all at FMA UK.
Charlotte's Tandems -tandem hire for disabled people
Charlotte's Tandems are a charity who lend tandems and tag-alongs to people with disabilities or special needs for free, who are unable to ride a bike safely on their own, so that they can enjoy the wonders of cycling. The charity operates throughout the UK. Visit their website for full details. www.charlottestandems.co.uk
Put Patients First: Back General Practice Petition
The Put Patients First Campaign is asking for our help to reach their goal of 1 million signatures by 15th August.
Put patients first: Back general practice petition!
The petition, which has been sent to every practice in the UK and can also be signed online, is generating great support for the campaign by giving patients and GPs the opportunity to stand together to fight for general practice.
We still, however, have a long way to go before we reach one million signatures by 15 August. Please click on this link to see more about the campaign and sign the petition.
Alison runs Essex 10k Cross Country Series for FMA UK
Alison Collins is running the Essex 10k Cross Country Series which are five 10k runs, one a month, from May toSeptember. She is also going to be taking part in the Westminster Mile in May, the Chelmsford Race for Business in June (5k) and the Anniversary Run in the Olympic Park (5 mile) in July. Alison's daughter Emma has Fibromyalgia since she was 18, and because of this Alison chose to run and raise funds for FMA UK.
Wakefield - Night of Stars
if you live in the Wakefield area how about supporting the local support group and having a great night out? Check the attached poster for the event.
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Highlights
FMA on Facebook
Fibromyalgia Association UK calls for greater awareness
and education to help thousands of diagnosed patients in the UK
London, May 12th – Fibromyalgia Association UK (FMA UK) today calls upon MPs at a closed session at the House of Commons to request for greater research into the level of fibromyalgia suffering in the UK. Campaigners for the charity, predominately run by volunteers, demand a clearer assessment on the extent of the condition ahead of an official review by NICE in 2016.
Trustee meetings are held monthly via Skype and last about 2 hours. There is an annual meeting that coincides with our group leaders’ meeting over a weekend.
If your Medical Professional needs some education in fibromyalgia you can request that an FMA UK Medical Professionals Pack is sent out to them. All we need is the name of the Medical Professional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack below.
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We are delighted to announce that our recent assessment for The Information Standard has been successful and we continue to fulfil the criteria for using the TIS logo on our publications.
The rigorous process that has to be in place ensures that up to date evidence is used and presented to people in an appropriate way. The process is ongoing and requires much diligence by everyone involved.
We would like to thank everyone who has worked on our publications or sent in their comments and suggestions for improvement
FMA UK is now able to receive text donations from your mobile. With our partners you are now able to send a text from your mobile to 70070 with the code of FMUK01 and your amount that you would like to donate to us. For example if you would like to donate £5 to FMA UK* you would text FMUK01 £5 to 70070. You would then be given the opportunity to add Gift Aid - meaning FMA UK benefits from an extra 25% on top of your original donation.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
