Request for Male Case Studies

The hcarity has been asking for Male case studies on facebook recently. This is part of Mens Health month and our efforts to raise awareness that it is not just women that are affected by this condition. If you feel you can contribute a case study that could help others or be used to raise awareness hten please fill in the form below:

https://sh.fmauk.org/MaleCaseStudy

Sam Pierce's Great South Run in aid of FMA UK

Sam Pierce has run the Simply Health Great South Run to support Fibromyalgia Action UK. A big thank you from our Team for raising £175 via JustGiving. 

Sam told us her story: ''I last ran the Great South in 2009. I was fit, healthy, and enjoying my life as a Gym Instructor and Pilates Teacher.  9 years, no longer working, several scary symptoms and finally a Fibromyalgia diagnosis later,  I’m attempting to run it again.

 I have no idea if I’ll get round - it’s unpredictable this nasty Fibro creature, and my body doesn’t always do what I want it to do. On bad days, it gives me pain (and lots of it!) tingling, burning, numbness, hyper-sensitivity, affects my fine motor skills, makes me woozy, crazily tired and slow to process things. 

But...on good days, I can still run. I’m very aware that lots of people I’ve since come across who are suffering with this strange and not very well-understood condition aren’t able to. I’ve spoken to lovely people who are really struggling and who’s lives have been hugely impacted. So, I want to try and use my running do something for them, something to help fund support and research. 

If you would like to donate visit Sam's JustGiving page: 

https://www.justgiving.com/fundraising/sam-pierce1

2019 Great Run Race Interest Form

Are you interested in running in one of the Great Runs that we posted about last week? If you want to run the Great North Run or one of the others, and want to raise money for FMA UK, please fill out the interest form which is attached.

We only have a limited number of places available, and will let successful applicants know when they are successful. We will be posting regular updates on our fundraisers progress. If we obtain any further places then we will let those that have filled in the form know.

Great Runs Interest form

Social Media Survey

We are currently doing a survey for people to give their feedback on our social media sites, so please fill it out if you can. This will help shape our future activities on social media. 

https://www.surveymonkey.co.uk/r/SL5GLL9

Kay Breden's amazing challenge

Here is a little update from Kay on her Ashford 10k run: ''I'm feeling the wrath of Fibro now but it was all worth it raising so much awareness and money.

It was emotional and hard and at one point just at half way I felt I wouldn't make it but Adam didn't give up on me and he encouraged me all the way and I made it finishing with tears. 

Kay Breden is running Ashford 10k Run to inspire others

Kay told us why she has chosen to run despite living with fibromyalgia: "I have had Fibro for 6 yrs now. Before Fibro I was extremely active, very for and a very active mother to my daughter to. 

Then I was hit with Fibro after a mental breakdown. 

At the start I was bed bound 3 days a week, somedays paralysed from waist down with chronic pain, unable to use my legs. I then progressed over the first 3 years onto crutches then onto a walking stick to aid me walking. The last 2 yrs I have concentrated on learning the new body I have, soaking up all information and learning my new boundaries. I slowly trained my body to gradually get used to my chronic pain. 

I spent my time writing whilst doing so and finally released a book called My Fibro Rant to raise awareness for Fibromyalgia and help others feel less alone. But I made sure my book was honest, truthful but with a humouress twist to make light of a bad situation. I learnt how people around me reacted and dealt with my illness, partners, family and my daughter included. I wanted my book to help all that was effected not just us sufferers. 

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