- Welcome to FMA UK
- Donate Clothes for FMA UK
- FMA UK offers many awareness resources
Welcome to FMA UK
Site for the national charity for fibromyalgia. Working to raise awareness of the condition..png "Donate Clothes for FMA UK")
Donate Clothes for FMA UK
A new, secure and simple way to support us with your clothes donationsA new, secure and simple way to support us with your...
FMA UK offers many awareness resources
These are distributed from our office and through support groups throughout the UKPain in the Brain Study - Volunteers needed (London Area)
Volunteers are required for the Brain in Pain study which is being carried out by The Centre for Psychiatry, Barts and The London School of Medicine and Dentistry, Queen Mary University of London.
"The Brain in Pain study seeks to better understand changes in brain chemistry that might explain the pain in fibromyalgia and chronic fatigue syndrome. To do this, we are using a method of brain scanning that enables us to look at which parts of the brain and which chemicals are active during pain. The study is based in London and is actively recruiting patients with fibromyalgia or chronic fatigue syndrome who are NOT currently on ‘centrally acting’ medications (including gabapentin, pregabalin and antidepressants such as duloxetine and amitriptyline) or chronic opiate treatment. The study will reimburse participants for their time. If you are interested in taking part, further information can be obtained from Dr Bourke: This email address is being protected from spambots. You need JavaScript enabled to view it..”
Please contact Dr Bourke directly if you are interested in participating.
Behind Perception - Photographic Exhibition, Bristol
If you are in the Bristol area, why not pop along to Hamilton House to view the Behind Perception photographic exhibition. Sufferers with ME/CFS have participated in turning their ME/CFS by focusing on two contrasting portraits of a person with ME/CFS we hope to show the difference in how someone can look as opposed to how they feel.
15th-28th Jan, 9am-9pm, Stokes Croft, Bristol, BS1 3QY FREE ADMISSION
FMA UK registers as a company limited by guarantee
FMA UK is proud to announce that it has registered as a company limited by guarantee (SC492045). This move is to help the charity with its future plans and charitable activities. While this is an administrative change and does not affect how we operate in any way you will see our company number appear on documentation and our website going forward. This is just a part of a number of changes that will help the charity.
For more information on why charities become companies you can look here: http://www.volresource.org.uk/briefing/register.htm but the extract below is the main point as to why it is beneficial for charities..
“There are a variety of reasons for getting limited liability via registering as a company. It limits the liability of company directors, which usually equates to those on the management committee (who will also be the charity trustees if it is a charity). Employing staff, taking up a lease or owning property are common prompts to get limited liability.”
Guiness World Record Attempt - Skydive for FMA UK
Raise money and be a record breaker!
8 spaces are being held exclusively for FMA UK. if you want to Sky Dive and take part you must book the skydive directly with Skydive UK Ltd by the 1st February 2015. Booking is easy, do it online at http://www.skydiveukltd.com/home/ or give them a call 7 days a week on 01404 890 222/244. £50 deposit is taken on the booking.
After the 1st February 2015 the event will be released to the general public. Bookings will be taken on first come first serve basis.
333 fundraisers will jump from 15000 feet to break the Guinness World Record in June 2015. Skydive UK Ltd is one of the biggest skydiving schools in the UK. They have started a search for over 300 brave fundraisers who will skydive for charity and attempt to break the existing record.
The current Guinness World Record for the most tandem skydives within 24 hours is 281 and is also held by Skydive UK. “We know we can do more. We will prove this by breaking our own record, aiming for 333” said Jason Farrant, managing director of Skydive UK. Many other skydiving centres across the whole world have tried to beat Skydive UK, but they must find it difficult as the bar has been set very high. “15000 feet is the highest skydive you can do without the oxygen supply. Many other places settle for much less height, which we don’t think is the ultimate experience.”
Request for Media case Study
Dexeter charity single - all proceeds to FMA UK
Released on iTunes, Amazon and other digital retailers on 14/11/14. get it from here: dexeter.bandcamp.com and more money goes to @fmauk
Single can be purchased for £1:00 with .95p going to charity from https://dexeter.bandcamp.com/
Boxing Match for FMA UK
Janan (aka Pocket Rocket) was brave to take part in a charity boxing match to raise funds for FMA UK. It took place on Saturday 1/11/14 at Saturday at Preston North End Stadium,
Janan said after the match:
Just to update you in my charity boxing match, I raised £375 for FMAUK, the bonus was I won my charity boxing match. It will rank as one of the toughest things I have done, it was one heck of a fight, very close on points with us both exchanging punches. Opponent and I both rocked in the ring,both of us raising money for different charities, we both won on the night. It was an experience that still hasn't quite sunk in.
Our thanks goto Janan for the fundraising effort, the awareness that has been raised and the dedication to take part in this sort of event on behalf of FMA UK.
More Articles...
Highlights
FMA on Facebook
Fibromyalgia Association UK calls for greater awareness
and education to help thousands of diagnosed patients in the UK
London, May 12th – Fibromyalgia Association UK (FMA UK) today calls upon MPs at a closed session at the House of Commons to request for greater research into the level of fibromyalgia suffering in the UK. Campaigners for the charity, predominately run by volunteers, demand a clearer assessment on the extent of the condition ahead of an official review by NICE in 2016.
Trustee meetings are held monthly via Skype and last about 2 hours. There is an annual meeting that coincides with our group leaders’ meeting over a weekend.
If your Medical Professional needs some education in fibromyalgia you can request that an FMA UK Medical Professionals Pack is sent out to them. All we need is the name of the Medical Professional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack below.
{BreezingForms : Medical_Pack_Request_Form}
We are delighted to announce that our recent assessment for The Information Standard has been successful and we continue to fulfil the criteria for using the TIS logo on our publications.
The rigorous process that has to be in place ensures that up to date evidence is used and presented to people in an appropriate way. The process is ongoing and requires much diligence by everyone involved.
We would like to thank everyone who has worked on our publications or sent in their comments and suggestions for improvement
FMA UK is now able to receive text donations from your mobile. With our partners you are now able to send a text from your mobile to 70070 with the code of FMUK01 and your amount that you would like to donate to us. For example if you would like to donate £5 to FMA UK* you would text FMUK01 £5 to 70070. You would then be given the opportunity to add Gift Aid - meaning FMA UK benefits from an extra 25% on top of your original donation.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
