- Fibro Myths
- Awareness is year long
- FMA UK offers many awareness resources
Fibro Myths
check out www.fmauk.org/campaigns for more info
Awareness is year long
International Awareness Week was the 2nd September to the 9th , so please let us know what you did for it. Let us feature...
FMA UK offers many awareness resources
These are distributed from our office and through support groups throughout the UK. www.fmauk.org/resources ...TV news on fibromyalgia: BBC Cambridgeshire regional news Tuesday 9 October at 6.30 pm
FMA UK Chair, Des Quinn, will be giving a charity perspective on fibromyalgia to add to a local case study of someone who lives with fibromyalgia. The programme website could be found here:
Kay Breden's amazing challenge
Here is a little update from Kay on her Ashford 10k run: ''I'm feeling the wrath of Fibro now but it was all worth it raising so much awareness and money.
It was emotional and hard and at one point just at half way I felt I wouldn't make it but Adam didn't give up on me and he encouraged me all the way and I made it finishing with tears.
Thankyou for my top I wore it with pride and personalised it to lol''.
From FMA UK: Thank you Kay and Adam for this amazing challenge and we like yopur top :-)
To donate visit Kay’s JustGiving page:
https://www.justgiving.com/fundraising/kay-bre?fb_event=b7d87f8&prompt_event=d0678f7#
Kay Breden is running Ashford 10k Run to inspire others
Kay told us why she has chosen to run despite living with fibromyalgia: "I have had Fibro for 6 yrs now. Before Fibro I was extremely active, very for and a very active mother to my daughter to.
Then I was hit with Fibro after a mental breakdown.
At the start I was bed bound 3 days a week, somedays paralysed from waist down with chronic pain, unable to use my legs. I then progressed over the first 3 years onto crutches then onto a walking stick to aid me walking. The last 2 yrs I have concentrated on learning the new body I have, soaking up all information and learning my new boundaries. I slowly trained my body to gradually get used to my chronic pain.
I spent my time writing whilst doing so and finally released a book called My Fibro Rant to raise awareness for Fibromyalgia and help others feel less alone. But I made sure my book was honest, truthful but with a humouress twist to make light of a bad situation. I learnt how people around me reacted and dealt with my illness, partners, family and my daughter included. I wanted my book to help all that was effected not just us sufferers.
Amanda's Keddie fibromyalgia 5k run challenge
Amanda Keddie will defy her fibromyalgia and will run 5k in the Simplyhealth Great North Run to raise awareness and funds for FMA UK. She shares her story with us: ‘’My name is Amanda, I'm 20 years old and I was diagnosed with Fibromyalgia 2 years ago. I am in my third year studying for my degree in Interior Design in Newcastle, and I'm also a coach for a competitive cheerleading squad. For 3 years I have been in an acoustic duo, signing and playing guitar around the North East. I use these gigs to spread awareness and raise funds if I can for Fibromyalgia.
On Saturday 8th September, I'll be doing the Great North Run 5K for Fibromyalgia Action UK. Unfortunately, due to my fibromyalgia and a recent back injury, I'll be walking the 5K, but I really hope that this doesn't discourage anyone from donating! This charity is amazing and has helped me immensely since my diagnosis. This is a thank you to all of the selfless people who are involved. Hopefully I can raise enough to make a difference, but simply raising awareness would be an achievement.
Let's show Fibro who's boss!
Amanda x"
To donate visit Amanda’s JustGiving page: https://www.justgiving.com/fundraising/amandakeddiefibro
Fibro on BBC Radio Nottinghamshire today
Dawn Hartley participated on BBC Radio Nottinghamshire today. They have been talking about the symptoms and how it can affect you.
The show can be found here and the audio about fibro starts around 10.10: https://www.bbc.co.uk/programmes/p06hb4w1
Des Quinn appeared on the show at around 10:45 to chat about the condition as well.
A Tribute to Dr Peter Fisher
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Highlights
FMA on Facebook
- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed, and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
Trustee meetings are held monthly via Skype and last about 2 hours. There is an annual meeting that coincides with our group leaders’ meeting over a weekend.
If your Medical Professional needs some education in fibromyalgia you can request that an FMA UK Medical Professionals Pack is sent out to them. All we need is the name of the Medical Professional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
We are delighted to announce that our recent assessment for The Information Standard has been successful and we continue to fulfil the criteria for using the TIS logo on our publications.
The rigorous process that has to be in place ensures that up to date evidence is used and presented to people in an appropriate way. The process is ongoing and requires much diligence by everyone involved.
We would like to thank everyone who has worked on our publications or sent in their comments and suggestions for improvement
FMA UK is now able to receive text donations from your mobile. With our partners you are now able to send a text from your mobile to 70070 with the code of FMUK01 and your amount that you would like to donate to us. For example if you would like to donate £5 to FMA UK* you would text FMUK01 £5 to 70070. You would then be given the opportunity to add Gift Aid - meaning FMA UK benefits from an extra 25% on top of your original donation.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
