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A list of articles involving FM

Fibro 1st timers for RBS Call

What is fibro?

Fibromyalgia is a chronic condition of widespread pain and profound fatigue. The pain tends to be felt as diffuse aching or burning, often described as head to toe. It may be worse at some times than at others. It may also change location, usually becoming more severe in parts of the body that are used the most. The fatigue ranges from feeling tired, to the exhaustion of a flu-like illness. It may come and go and people can suddenly feel drained of all energy - as if someone just "pulled the plug".

There are treatments available which can alleviate some of the symptoms but the majority of these are in the private sector and as most sufferers are forced into early retirement, or cannot work at all, the cost of such treatment is prohibitive. More info on fibromyalgia can be found here.

Who Are FMA UK

Fibromyalgia Action UK is a registered charity run primarily by unpaid volunteers. The majority of volunteers are also fibromyalgia sufferers who work extremely hard, despite their condition, in order to forward the cause of fibromyalgia.  FMA UK was established in order to provide information and support to sufferers and their families. In addition, the Association provides medical information for professionals and operates a national helpline.

What does FMA UK do?

FMA UK operates as a signpost to information and resource for people who are affected by fibromyalgia. From our initial beginnings, we have seen the range of services and resources increase. What we can offer is closely tied to the level of donations we receive and other funding sources.

Below is a short list of some of the services or resources that we offer:

  • National Helplines on fibromyalgia and benefits issues
  • An online support forum that is available 24/7 with office bearers of the charity being available to help e.g. our benefits advisor helps with benefits queries and sends information regularly.
  • UK wide system of support groups
  • Only fibro charity that helps create and provides resources to support UK Support Groups at creation and through their operation
  • Providing the insurance cover required for registered fibromyalgia support groups to operate
  • Email support system where Regional Coordinators answer questions and refer people to local support
  • Signposting to legal support
  • Awareness event support including awareness items including posters, leaflets, tshirts and many more items with many being offered free or at cost
  • Fundraising support
  • Sending of free patient information packs from head office

Contact Details

 

National & Benefits Helpline Closures

Please note the the National Helpline number will be closed on Monday 29th May 2017 and the Benefits Helpline will be closed from Friday 26th May until Friday 2nd June 2017(inclusive)

Fibromyalgia Exercise DVD Reviews

The Fibro Guy Graded Exercise DVD sales are going well, and is receiving good reviews. Our admin Hazel has been trying out the DVD as well, and has this to say : The exercise programme is well laid out, with a warm up section, exercise section then finish off with cool down. I already exercise on a regular basis, so I was able to work through the warm up and level 1 exercise plan without too many problems. But if you are just starting out, you can work at your own pace and slowly increase. And if you can't do the full time for each exercise, you can do less and rest for longer in between. The DVD is a great way to increase your fitness and mobility at home. 

Read more...

Christmas closures

 The FMA UK head office  will be closed from 24th Dec 2015  until 04th Jan 2016.  The National & Benefits Helpline will also be closed over the same dates.

FMA UK Trustees would like to wish you all a very merry Christmas and best wishes for 2016

 

 

6th Chichester Conference

Just a reminder that the 6th Annual conference is happening in Chichester betweeb April 24th and 27th.  This is organised by Polly Fogs and you can find out more info on the event from our article here.

Please contact Polly Fogs for availability information as FMA UK are not involved with the organisation of this event.

 

International Awareness Day 2015

Today is May 12th which is the birthday of Florence Nightingale who has been thought to have fibromyalgia and / or  ME. This was one of the main reasons for today becoming International Fibromyalgia Awareness day. It is a day that support groups and people with fibromyalgia around the globe come together to raise awareness of fibromyalia. Working together like this does and will make a difference for our tomorrow's. Raise awareness today by talking to people about your fibromyalgia. Friends, workmates and strangers on the street are all people that could learn more about how we cope with this debilitating condition from day to day. If you are on Facebook or Twitter you could join others by using #fibro, #fibromyalgia or #askmeaboutfibromyalgia hashtags or changing your status to tell people that it is International Fibromyalgia Awareness day.

Pam Stewart elected President of ENFA

The European Network of Fibromyalgia Associations (ENFA) held their general assembly in London on the 23rd March.  They discussed the achievement of 2014 and made plans for the rest of 2015.  Pam Stewart was elected president.

 
 

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