General Articles
A list of articles involving FM
August FaMily Magazine
Why do people with FM complain of fibrofog, but perform well in cognitive tests? This apparent puzzle has caught the interest of researchers Dr Frank Leavitt PhD, from the department of psychology and Dr Robert Katz M.D, from the department of rheumatology of Rush Medical College, Chicago, Illinois, who have carried out some revealing research into FM and cognitive dysfunction. To discover what they have found check out August’s mag.
Also Linda Horncastle shares her personal experience with the treatment, Alpha-Stim 100, a device that uses microcurrent therapy to naturally and safely stimulate cell repair.
With best wishes,
Kathy Longley (FMA UK Editor)(Subscribe to FaMily Magazine to get more of these articles)
Fibromyalgia on the Plinth
Fibromyalgia has a slot on the Trafalgar Plinth on Wednesday 19th August. Helen Butcher applied and was very surprised to get the opportunity to take part. For the 2400 places there has been over 31,000 applicants. Helen plans to "create 'A Statue's Eye View', a photographic gallery of an hour in the life of a statue -to raise awareness of Fibromyalgia."
Disability benefits at threat! Act quickly to make your voice heard
The information below has been received from Benefits and Works website. Please read it and sign on the website below. There are now over 5000 signatures but please don’t stop from signing up, and in addition if you could contact your MP and voice your concern to them.
Claimants have less than 100 days to prevent their DLA and AA being abolished. A government green paper, entitled 'Shaping the future of care together' has revealed proposals to stop paying ‘disability benefits, for example, attendance allowance’’ and hand the cash over to social services instead. Under the plan, current claimants would have their disability benefits converted to a ‘personal budget’ administered by local authorities and used to pay for services – not to spend as they wish.
Once the green paper consultation period ends, if an almighty row has not been raised, it is likely that both major political parties will see the lack of outrage as a green light to end both DLA and AA. The aim was a minimum of 1,000 (this has already been passed in the first 24 hours but please don't stop), claimants, carers and support workers to join our campaign to save these benefits from being abolished.
Find out how you can take part from this page on the Benefits and Works website.
Northern Ireland Conference
I am writing this from a hotel in Coleraine and thinking back to the conference that was held here on Saturday. There was a tremendous turnout of over 240 people and its a quick visual reminder to anyone that has difficulty in believing in fibromyalgia. The conferences speakers ranged in topics from personal experience of fibromyalgia, a different method of looking at fibromyalgia, the latest pharmacological
approaches and medical evidence as well as recognising and dealing with depression.
FMA UK's Medical Advisory Board member Kim Lawson presented an interesting view of fibromyalgia that encouraged the separation of the symptomatic elements of fibromyalgia from the underlying condition itself. He also expressed a need to not only categorise fibromyalgia in terms of its pain but also give more weight to the other symptoms. He used the analogy that we do not describe diabetes in terms of its symptoms so why should we do this with fibromyalgia.
Northwest Regional Conference
We are pleased to host once again a fibromyalgia conference in the North West. The conference is primarily aimed at both sufferers and medical professionals who want to broaden their knowledge of this condition. Our speakers are all experts in their fields and come from all over the country.
This is a one-day event, which will take place in the New Education Centre of Arrowe Park Hospital, Arrowe Park Road, Upton, Wirral on Saturday 12th September 2009. Ticket prices are:
- Patient tickets are £24.
- Professional tickets are £124.
Hull and East Riding Awareness Day
Liz Barber the secretary of the Hull and East Riding Fibromyalgia Syndrome Support Group writes to let us know how well their awareness day event went... The Hull & East Riding Fibromyalgia Syndrome Support Group held an Awareness Stand on Saturday 9th May at the Civic Hall in Cottingham.
We were alongside 23 other well known Charity Groups for a Spring Fair all aiming for the same thing Awareness of Conditions and to raise funds. We had a very good day lots of interest in the 2 ducks on our table Fred & Daisy. We raised £98.19p which was brilliant and spoke with lots of people.
Eastbourne Fibro Support: Talk by Professor Puri
Eastbourne Support group are extremely proud to announce that Professor Basant Puri will be making a return visit to Eastbourne to speak again.
Professor B.K. Puri, a medical doctor and research scientist based at Hammersmith Hospital and Imperial College London, is a world-leading neuroscience and biochemistry expert. He has carried out pioneering research work in these fields. Indeed, he was the first in the world to treat a patient with depression using a pure fatty acid. Professor Puri's research findings have been described in scientific journals and in lectures at international medical and scientific conferences.
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