Our volunteer, Linda Horncastle, attended the event on FMA UK behalf and raised awareness about fibromyalgia. Here Linda tells us about the event: ‘’I really appreciated the help from Val Derbyshire and her team from the Salford FM Support Group.
We had a productive day talking to about 50 people who came to our table and 15 who attended the workshop of ‘FM and employment’. We set up our table in a large room with 14 other organisations. Highways UK loaned us 2 flip charts that I displayed FM work related posters, I had also prepared an A4 book of my PowerPoint slides which helped with conversations. We gave out a lot of FMA UK leaflets. Val also bought along her group’s fabric banner that helped our table be more visible. A number of contacts expressed keenness to attend the Salford FM Support group.
I presented a PowerPoint display on ‘FM and employment’ in a separate room. There was a lively discussion after my 30 minute presentation as 2 employees had FM and another employee had a friend with FM. It made an interesting point that I got more sympathy that my arm was in a sling on the day, because of tendinitis, than I’ve had with coping with 27 years of ‘invisible’ fibromyalgia’’.
We have written recently about Jill planning to shave her head to raise awareness about fibromyalgia and funds for FMA UK. We are pleased to say that Jill’s head shave went very well and she looks fabulous now! Jill has raised £500 so far to support our work and she has raised a great level of awareness locally via social media and media articles. We would like to say thank you and congratulate to Jill.
To read the story in the Halsted Gazette, where Jill shares the impact her awareness campaign had, go to http://www.halsteadgazette.co.uk/news/14923365.Fibromyalgia_patient_shaves_head_for_charity_which_supported_her/
To donate visit Jill’s JustGiving page:
Online webinar on the 'Work, health and disability' Green Paper organised by the Department of Health
Webinar for patients organised by the Department of Health England - Work Health Unit Green Paper Engagement
To be held Tuesday, 22nd November, 2016, From 12:00-13:00
‘’Building on the current service provisions for people with musculoskeletal (MSK) conditions’’.
The Green Paper - Your chance to help shape the future… Public Consultation Announced
‘Improving Lives – the Work, Health and Disability Green Paper’ was published on the 31 October 2016 by the Department for Work and Pensions and the Department of Health and reflects the Government’s new and ambitious approach to work, health and disability.
THE UNIVERSITY OF OXFORD is recruiting for clinical trials for lower chronic back pain. The study could benefit so many and if you think you might meet the requirements, please contact them directly using the details below.
The purpose of the trials is to determine the effectiveness of Actipatch.
The ActiPatch is a cutaneous device which is CE marked approved for relief of pain. It is taped over the affected area and stimulation at a high frequency is reported to alleviate pain with no sensation. However there is no class 1 evidence for this on back pain. By randomising patients between application of an active device or a dummy device and assessment of disability and pain scores at two weeks, the efficacy or otherwise can be established. Low back pain is a major health problem and if effective this has major economic implications as the device is cheap and safe.
On Monday the 14th November at 10 am on BEN TV ( channel 182) there will be a 30 minute programme about fibromyalgia. The guest speaker will be Ella Vine, Executive Officer at FMA UK. She will be asked about various things, from what is fibromyalgia, the treatment options currently available, what FMA UK does to help patients, what the government is doing and what else needs to be done. We hope it will be an interesting conversation!
Edited: Watch Ella's interview here
Chelsie and her friend will jump from a bungee on Sunday the 13th November to support FMA UK work and raise awareness about fibromyalgia because Chelsie’s mum lives with this condition. Chelsie told us: ‘’My mum is one of the bravest people I know, and has always done everything within her power to help and support me whenever I've needed it. She's wiped my nose and tucked me in bed when I'm poorly and she's taken my 3am teary phone calls when I'm down and need someone to talk to. I love my mum with all my heart, and watching her suffering with fibromyalgia breaks my heart because there's little I can do to help, and the worst part is so few people have heard of fibromyalgia let alone understand it, so they don't realise what she goes through on a day to day basis.
I chose to support FMA UK because I feel the work it carries out can directly affect my mum in a positive way, and it can do this more so with more support and recognition.