Just a reminder that the 6th Annual conference is happening in Chichester betweeb April 24th and 27th. This is organised by Polly Fogs and you can find out more info on the event from our article here.
Please contact Polly Fogs for availability information as FMA UK are not involved with the organisation of this event.
The European Network of Fibromyalgia Associations (ENFA) held their general assembly in London on the 23rd March. They discussed the achievement of 2014 and made plans for the rest of 2015. Pam Stewart was elected president.
Although Charlotte’s essay concerns rheumatoid arthritis it could just have easily been a diagnosis of fibromyalgia she was writing about. Many people with FM will relate to her experiences. ENFA, along with others is determined that professionals will all understand and their patients will feel all the better for their understanding
Stene Prize Winner 2015 – official announcement
On behalf of the 2015 Stene Prize Jury under the leadership of Nele Caeyers, ReumaNet, Belgium and PARE Board member, we are delighted to share the final results of the 2015 Stene Prize competition with you.
A big thank you goes out to Terry Hoare and the Openreach JRM team in Exeter, who recently held a charity car wash and cake sale in aid of FMA UK.
Terry had this to say about the event:
Bob my Openreach boss wanted to us to organise a charity event to raise money for a worthy charity. He knew my son Simon suffers from Fibromyalgia and he suggested a sponsored car wash and cake sale day to raise money for the FMA UK.
This has been forwarded to us from someone who received it from Benefits and Work. If you have any questions or comments please contact Benefits and Work. www.benefitsandwork.co.uk
New reclaim rules
In just 18 days’ time the rule which allows you to reclaim ESA at the assessment phase rate 6 months after a refusal will be abolished for most claimants, though there are some important exceptions. For example, if your condition has got worse or you have developed a new condition, then you may be able to get the assessment rate again - provided the DWP accept that this is the case.
The change is particularly likely to hit people who are too ill or unsupported when they first make a claim to make a proper job of it and who try to claim again later.
We’ve included details of the new rules in our claiming ESA guides, updated yesterday.
Lauren is organising this race night in Huddersfield to raise awareness and funds for to support FMA UK. If you are in the area, why not go along and enjoy an exciting evening and support FMA UK
Race Night will take place on Sat 13th June 2015 and will be held at Siddal Ex-Servicemens Club
'Gates' open 7pm. First race 7.45pm £5 a ticket which includes a hot supper (kids free)