The 12th May is recognised as the international fibromyalgia awareness day. Charities and groups around the world will be organising events to increase awareness of the condition. Why not celebrate with us and raise awareness by organising a coffee and cake event? This could be with your family and friends in your home, in your workplace, in a local cafe or even a picnic in the park.
We would encourage local fibromyalgia support groups and our supporters to organise coffee and cake mornings up and down the country. If it is your local support group meeting, then why not ask partners and friends to come along, extending the reach of the support group on International awareness day.
Requesting resources for your event
If you wish to order resources such as leaflets, booklets and posters about fibromyalgia, please ensure you place your order (free of charge) prior to Friday 28th April 2017, so that we can get them out to you in time. Orders must be completed via the resources form at www.fmauk.org/resources. Orders received after Friday 28th April 2017 cannot be guaranteed to reach you in time for your event.
FMA UK will be participating on a piece that BBC Radio Sheffield are doing on the 15th March. They will be talking about the petition started by Adrienne Lakin and the situation with awareness of fibromyalgia in the UK. Des Quinn, our chair will be participating in the discussion. Please check their website on the link provided so you can listen at the time. If you can’t make it at the time, then you will be able to listen later on their website. Time: 15th March 2017 around 7.50am
Link: http://www.bbc.co.uk/programmes/p04tl81w (Click on Toby's face and the show will start to play. Forward the programme to 52mins 30 and you will be able to hear the segment)
Alex has finished the half-marathon on 12th March with a great result: time of 1:39:06 and raising £340. Congratulations to Alex! He told us: ‘’ I'm a second year computer science student at the University of Essex. I have always wanted to run in a long-distance event and I felt that this was a good time to take part in the Colchester half marathon. I chose to run for FMA UK because two relatives of mine are affected by fibromyalgia’’.
Alex is still accepting donations for FMA UK through his JustGiving page:
there is also the following facebook site for the study:
Lara Brown from Can You Escape? explains to us why and how the company is supporting FMA UK this March. ‘’We pick which charity to support based on suggestions from our staff, and Fibromyalgia Action UK was a popular choice. One of our Games Masters mentioned that a family member suffers from the condition and not enough research is being done to discover a cure, making it an obvious choice for one of our charities to support! Can You Escape? provides an escape room experience for teams of 2-16 people. Teams are locked in a room for 60 minutes and are faced with a series of clues, puzzles and challenges they must solve in order to beat the clock!
Stephen Williams and three of his family members will embark on this challenge to raise funds and awareness of fibromyalgia because Stephen’s wife, Amanda, suffers from this condition. Stephen said: ‘’To support FMA UK, myself and some of Amanda's cousins (Emma White, Ben White, Hannah Bown) are doing a long distance cycle from Exmouth to Chester, that's 220 to 250 miles depending on how bad our map readings skills are or how big the hills are (we might have to go around them). This may seem an odd route to pick, but it has significance. Every year Amanda and I would go to Exmouth to visit Amanda's family, indeed Amanda has been going there all her life. However she can no longer make the journey due to the pain she is in. When pondering what to do to raise money for FMA UK, it seemed appropriate to ride this route.