INVITATION

To Fibromyalgia Action UK event in the Parliament

Marking the International Fibromyalgia Awareness Day

Hosted by Andrea Jenkyns MP

11 May, 3 pm – 5 pm

Portcullis House, Boothroyd Room

Come along to this event to mark with us the International Fibromyalgia Awareness Day and to hear from interesting speakers and experts in the field:

Andrea Jenkyns MP, member of the Health Select Committee,

Dr Kim Lawson, a research pharmacologist with an international reputation in Drug Discovery Research, leading the Fibromyalgia Research Team at the Sheffield Hallam University, Chair of the Medical Advisory Board at Fibromyalgia Action UK

Ella Vine, Executive Officer at Fibromyalgia Action UK

patients, clinicians, MPs and others.  

During the event there will be a photo opportunity with ‘’I’m Fibromyalgia Ambassador’’ poster and networking opportunity with the speakers and representatives of Fibromyalgia Action UK.

Please note that to be able to attend this event you must be on the guest list.

Please email Ella Vine This email address is being protected from spambots. You need JavaScript enabled to view it. by Monday 9^th May to reserve a place and include your full name and surname. 

You are advised to arrive minimum 30 minutes before the event to clear the security. 

Opioids Aware - guide for patients

The Faculty of Pain Medicine has recently launched an easy guide for patients about using opioids in long term pain conditions. It includes good practice in prescribing opioids, its usage, dosing, risks and more. 

To read it please visit: 

http://www.rcoa.ac.uk/faculty-of-pain-medicine/opioids-aware

BSR Conference 2016

FMA UK will be attending the BSR conference in Glasgow next week. As a result our office will be operating in a reduced capacity with staff and volunteers helping out at the conference. We are looking forward to the conversations that we will be having with medical professionals and spreading the message about fibromyalgia.  This is the single biggest event in terms of the distubution of booklets and material targetted at professionals.

With it being on the offices doorstep we dont have boxes of literature being posted around the country which makes organisation a lot simpler :) I am sure we will have some material to share after the conference and will post anything relevant on our facebook page during the event.

Sally Richardson will walk from London to Brighton for FMA UK

Sally Richardson will walk from London to Brighton to raise funds and awareness about fibromyalgia. Sally told us her story: ‘’I've suffered with myofascial pain syndrome for over 13 years as well as fibromyalgia and recently diagnosed with chronic fatigue syndrome too. 13 years ago I got hit by a car and knocked off my bike and suffered damage to my lower back and left leg.

I recovered slowly over few months but was never the same. The doctors believed my brain never recovered from the shock of the accident. My diagnosis was slow and took 3 years. I tried everything possible as well as many different medications. I became so depressed and like a hermit thinking I couldn't stand it any longer. I lost my nan suddenly in 2011 and it made me wake up.
I realised that there was more to life and I was certain there were people with bigger problems than me.
I had good days and bad and decided I needed to work part time as full time was too much and I couldn't stand not working. I went to fibro clinic and pain clinic and got the help and support I needed to understand the condition and to learn to understand it and live with it and get the correct medication and treatments to control it.

Read more...

Anna Baines runs the Great Manchester Run in memory of her auntie Dawn

‘’I and my partner James Sanderson are doing the Great Manchester Run on Sunday 22nd of May for fibromyalgia for my auntie Dawn who we sadly lost back in October 2015 to this illness...I am doing this for Fibromyalgia Action UK as I feel this is a very close illness that has touched me and my family's hearts an seen my auntie loose her life to it...I have also come to realise that not a lot of people have heard of this illness and there needs to be more information out there, more treatments and medication as there isn't a lot out there for suffers...Anyway, I'd love for you all, family and friends to help me bring this illness to light by helping me raise the money for Fibromyalgia Action UK. Thank you so much for taking your time to read this, love loads Anna xxx’’.

To donate to Anna's JustGiving page please visit: https://www.justgiving.com/anna-baines3

BSR Patient Event - Glasgow

For the first time the British Society for Rheumatology (BSR) will be holding a one day event on Tuesday 26  April 2016 for patients. The event runs alongside the BSR rheumatology conference and gives you, the patient, an opportunity to hear from world class experts in sessions tailored to the patient experience at the Scottish Exhibition and Conference Centre, Glasgow.

This event aims to be interactive with question-and-answer sessions with physicians and healthcare professionals, supported by NRAS, NASS and Arthritis Care.  You will learn about the latest information on medication and new treatments that can improve the quality of your daily life.

Sessions include:

• The future of Biosimiliars
• Self-management
• What patients want from a rheumatology service
• Sleep and fatigue problems in rheumatic disease
• Foot health education 

Whether you are recently diagnosed or were diagnosed many years ago, this event is a great way to connect with people with similar diseases and gain confidence from learning how others manage their disease and hear from world class experts in the field of rheumatology. View the programme online

Register online for £10 + vat

To include: Registration is from 10.00. Lunch is provided and access to the BSR charity village stand / patient area and full day event. Delegates also receive a ScotRail Conference Rover ticket which gives 5 days travel by rail within the Conference Zone between the SECC, the hotel district and the city centre and also allows 50% off rail fares throughout Scotland.