FMA UK - UK's National charity for fibromyalgia
NHS Approval for FibroMapp Phone App
Congratulations to FibroMapp which has now been approved by the NHS in regards to a healthcare app that they are happy to back. They are in fact the ONLY pain management/tracker app that has been approved so far.
FMAUK FibroMapp is available to purchase at £3.99 from the following link, with 50% of proceeds being donated to FMA UK.
Survey - Prescription Charges & Work
The Prescription Charges Coalition of 29 charities and organisations, of which FMA UK is a member, has today launched a new short survey, to look at the ways in which prescription charges potentially impact the working lives of people in England with long-term conditions such as IBD.
This marks the newest phase in the Coalition’s campaigning work, which will see us call on all of the three main political parties to commit to ending prescription charges for people with long-term conditions in their election manifestoes. It follows the publication of the report 'Paying the Price' executive summary (PDF)in early 2013, following a wide ranging survey on this issue, which had nearly 4,000 responses.
Fibromyalgia & Pregnancy Study - volunteers needed
Fibromyalgia & Pregnancy Study: Volunteer participants are required to take part in a study on fibromyalgia and pregnancy
This research project aims to explore the subjective experiences of women with fibromyalgia within the context of transition to motherhood.
We are looking for women diagnosed with fibromyalgia who are reaching their third trimester of pregnancies or have completed their pregnancies no more than 2 years ago, to participate in an interview and share their personal experiences on how is like living with this condition during pregnancy.
E-Petition - Parliamentary Debate to Prioritise Pain in the NHS
Jean Gaffin, this year's Pain UK Pain Champion, has created an e-petititon to attempt to trigger a parliamentary debate to prioritise pain in the NHS. Jean's "Championship pledge" asks for pain to be discussed, measured, treated and recorded at every appropriate patient contact. She has been working on this for over the year attempting to raise the profile of pain within the Health Care system.
Mr Silky Skills presents The Positive Role Models Tour
Mr Silky Skills presents the Positive Role-Models Showcase Tour Christmas Special, in aid of FMA UK and others on Saturday 21st December 2013, 7.00-9.30pm in Liverpool Lighthouse.
T'was the Pain Before Christmas by Dr Kevin P White
(an ode to those with fibromyalgia)
T'was the night before Christmas, and all through my body
Not a thing isn't hurting. How I need a hot toddy!
The stockings I'd put on my feet with such care...
They now chafe my skin, I feel so raw and rare.
I've spent almost all of this day in my bed
With this merciless migraine pounding my head.
I just feel so tired, energy sapped.
How I wish I could sleep - please - just a half an hour nap!
When down in my gut, I can hear such a clatter.
I'm just not quite sure - is it bowels? Is it bladder?
Away to the bathroom I crawl like a slug
And sigh when I spy in the mirror ... my mug.
New online learning module for GPs - Diagnosing & Managing FM
A new online learning module is available from Pulse Learning for GPs about diagnosing and managing fibromyalgia.
Pulse Learningâs new case-based learning module on Fibromyalgia aims to make sense of both by using typical primary care case histories to update you on the management of fibromyalgia and chronic widespread pain. Perhaps most importantly, it covers recent changes to the diagnostic criteria, which no longer include the 18 tender point examination. (Pulse learning 27/09/13) http://www.pulse-learning.co.uk/clinical-modules/musculoskeletal-medicine/fibromyalgia-case-based-module
- Courts carry out review after study reveals GP evidence was factor in only 2.9% of disability benefi
- 'Mr Silky Skills' raises awareness & funds for FMA UK
- UPDATE on LARGEST Genetic Study of Fibromyalgia in the UK
- Aberdeen FM Support Group - Psychic Night - Friday 13th September
- Mitochondrial Dysfunction - A Biomarker for FM & ME/CFS?
- Fundraising For FMA UK