‘’The Future in Your Hands’’ campaign asks you to share your story for the World Arthritis Day, which is on the 12 October 2016. The international common understanding of ‘’arthritis’’ is ‘musculoskeletal’’ and it encompasses over 200 musculoskeletal conditions, including fibromyalgia. To share your story, what living with fibromyalgia is like and how you manage your condition, to inspire others use the hashtag #WADStory
People with fibromyalgia and other musculoskeletal conditions are taking actions every day to live their lives to the fullest. Join the campaign and help inspire and educate others around the world. To take part, share your story alongside a photo or an Instagram video that includes your hands.
To upload your story go to: http://www.worldarthritisday.org/our-campaign
To find out more about the World Arthritis Day, events that are taking place and to find out more resources go to : http://www.worldarthritisday.org/
About Our Health Unlocked online community
Health Unlocked is FMA UK online Community Forum, where people can get support and information 24 hours a day, 7 days a week. Volunteer Admins support provides a welcoming environment for people affected by fibromyalgia. Volunteer Admins enable us to provide a better, more responsive service.
This role can be based anywhere in the UK, from home, and undertaken when it is convenient to the volunteer. No fixed time commitment is needed, however we will ask you to login and respond to tasks regularly.
Andrea shares with us her inspirational journey from getting diagnosed with fibromyalgia to conquering the symptoms and living life to the full: ‘’We need more positivity surrounding this condition. I've found that there is lots of negativity and I found it hard to find sources that will help me to cope in a positive way.
I've come so far from being stuck in the bed and only being able to go to work to now working full time again and going regularly to the gym. I walk to and from work, I can even play with my dog again and I now I even do a bit of modelling as a 1940-50s model.
It will be at least next year that I will be ready for the tough mudder and my personal trainer will actually be joining me. He has done a tough mudder before and is very willing to help raise money and awareness with me. I encouraged in total 5 people who will be running with me. Even my dad has agreed to do it and one of the wonderful ladies I work with has also agreed to just trying to rope my twin sister into running it. The tough mudder will take place in May 2017 in the Midlands, but here is lots of preparation I need to do from now on!
When the fatigue sets in when I am in the gym people are very surprised. Then I explain I have a chronic pain condition and people look shocked how well am able to cope. My colleagues I work with say it is so amazing how I cope with my fibro as I also look after my mum who has fibro and other conditions as well and has had to retire when she was only 50.
Fibro is an awful condition and it’s life changing but I believe that it cannot control our lives; we just have to get into the zone and find what works for us.
I'm trying to live life to the fullest again. It's a slow process but I fight fibro everyday and I kick its butt with every workout.
Jayne Hammond will sky dive to support FMA UK work because her daughter, Hayley Hammond, lives with fibromyalgia. Hayley told us: ‘’I am raising funds for FMA UK through a number of events, including a Raffle and Bake Sale. This is leading up to a charity skydive which is being done by my AMAZING mother Jayne (and at almost 60 years of age!!).
I was diagnosed with Fibromyalgia in 2014, after having symptoms since 2009. We want to help raise awareness for this condition as few people know what it is and the effect is has on people who have it. Hoping this leads to better understanding and better treatment of people with the condition.’’
To donate to Hayley’s and Jayne’s JustGiving page visit:
The Great North Run is Britain’s biggest half-marathon and Craig finished it with great results. Here, he shares with us the details: ‘’ Well, it hurt a lot and it took me places that I have physically never been before but I completed the Great North Run in 3 hours 25 minutes and 12 seconds! My JustGiving page raised £257 and I have yet to count my collection tins but they're both pretty full! I shall give you a total amount when I've counted but I'm guessing close to the £300 mark!’’
We would like to say well done and a big thank you to Craig.
Craig run for his mother: ‘’My mother suffers badly with Fibromyalgia so I thought this would be a great charity to help raise money for and complete what is a very personal and significant challenge for myself.
On Sunday 25th September a charity concert in Romford in aid of Fibromyalgia Action UK will take place. The concert is organised by local residents who are affected by the incurable widespread pain condition, fibromyalgia. The concert will feature Essex stars, Melanie Masson, the X Factor contender, Jordan Gray from the Voice, Johnny Mack from Loose Lads Essex, Shanna Taylor Ex-Towie, Gary Coughlan Essex S-Factor winner and The Haverettes.
The concert will take place in the R.U.S.S.C. Club 28 Mawney Road, RM7 7HB, Romford. Doors will be open from 7 am. Tickets £10 can be purchased by calling 01708762743 or 07901229271.