Sending an E-card this Christmas - use Just Giving and help support FMA UK . Click picture for more info: Merry Christmas
Have you thought of handing out some leaflets to your pharmacy or your doctor. FMA UK has resources that can help spread the word about fibromyalgia. Educate yourself if you are newly diagnosed, or others if you think they would benefit. Our resources form can be found here
Remember that you can call our National Helpline between 10am and 4pm on 0300 999 3333. This line is staffed by volunteers. Please call back later if there is not an volunteer available to take your call.
We read in the Principal’s blog: ‘’Pam Cantrell, FMA UK volunteer was presented with a cheque for £577.50 following a 24 hour Sport-A-Thon held at Rushmoor School. The event was organised by members of the school council and pupils took part in many activities throughout the night and day to complete the challenge and raise some much needed funds for the organisation. Pam came to the school to speak to the boys and highlight how important the funds were in supporting people with the condition which is still very hard to diagnose, let alone live with as she does. Members of the group who raised the money were on hand to present Pam with the money which she gratefully received’’.
FMAUK would like to thank all those who participated in making the Sport-a-thon a success and in raising funds.
Our volunteer, Linda Horncastle, attended the event on FMA UK behalf and raised awareness about fibromyalgia. Here Linda tells us about the event: ‘’I really appreciated the help from Val Derbyshire and her team from the Salford FM Support Group.
We had a productive day talking to about 50 people who came to our table and 15 who attended the workshop of ‘FM and employment’. We set up our table in a large room with 14 other organisations. Highways UK loaned us 2 flip charts that I displayed FM work related posters, I had also prepared an A4 book of my PowerPoint slides which helped with conversations. We gave out a lot of FMA UK leaflets. Val also bought along her group’s fabric banner that helped our table be more visible. A number of contacts expressed keenness to attend the Salford FM Support group.
I presented a PowerPoint display on ‘FM and employment’ in a separate room. There was a lively discussion after my 30 minute presentation as 2 employees had FM and another employee had a friend with FM. It made an interesting point that I got more sympathy that my arm was in a sling on the day, because of tendinitis, than I’ve had with coping with 27 years of ‘invisible’ fibromyalgia’’.
We have written recently about Jill planning to shave her head to raise awareness about fibromyalgia and funds for FMA UK. We are pleased to say that Jill’s head shave went very well and she looks fabulous now! Jill has raised £500 so far to support our work and she has raised a great level of awareness locally via social media and media articles. We would like to say thank you and congratulate to Jill.
To read the story in the Halsted Gazette, where Jill shares the impact her awareness campaign had, go to http://www.halsteadgazette.co.uk/news/14923365.Fibromyalgia_patient_shaves_head_for_charity_which_supported_her/
To donate visit Jill’s JustGiving page:
Online webinar on the 'Work, health and disability' Green Paper organised by the Department of Health
Webinar for patients organised by the Department of Health England - Work Health Unit Green Paper Engagement
To be held Tuesday, 22nd November, 2016, From 12:00-13:00
‘’Building on the current service provisions for people with musculoskeletal (MSK) conditions’’.
The Green Paper - Your chance to help shape the future… Public Consultation Announced
‘Improving Lives – the Work, Health and Disability Green Paper’ was published on the 31 October 2016 by the Department for Work and Pensions and the Department of Health and reflects the Government’s new and ambitious approach to work, health and disability.
- Clinical Trial on Back Pain - Actipatch
- Programme on fibromyalgia in TV, Monday 14th November, 10 am, BEN TV (channel 182)
- Chelsie's bungee jump for her Mum and for FMA UK
- Take part in governmental consultation on Green Paper on Work, Health and Disability
- ESA re-assessments
- Essay: ''My journey through diagnosis of fibro''