Volunteers are required for a questionnaire study comparing the symptoms of people with fibromyalgia, chronic fatigue syndrome and irritable bowel syndrome. The study is being carried out by researchers at Plymouth University.
A comprehensive survey into the symptoms of people with ME/CFS, fibromyalgia and irritable bowel syndrome is the first study to exam a wide range of symptoms of people with these conditions. The aim of the study is to find out to what extent there is an overlap in symptoms and to what extent symptoms are different between different diagnoses. Anyone with these conditions can take part, and the study is also being advertised on ME/CFS and IBS websites.
The questionnaire is completed online and is anonymous. The questionnaire asks you to rate the frequency of 62 symptoms. It takes about 4 minutes to complete, but some might take more and some less time. We need as large a sample as possible, so if you can spare the time, we would be very grateful if you could take part.
FMA UK will be provided with the results once they have been analysed.
To complete the questionnaire, please go to
Reduced volume in the hippocampus is just the latest of many brain finding in fibronyalgia
Read more: The Pain Brain: Hippocampal Atrophy Found in Fibromyalgia http://www.cortjohnson.org/blog/2015/02/16/pain-brain-hippocampal-atrophy-found-fibromyalgia/
Thank you to everyone who has volunteered to take part in this study. There are now enough for the research.
Do you think diet could help with the symptoms of FM? Then consider taking part in this study as a step to proving this.
Are you diagnosed with fibromyalgia? Are you interested in taking part in a diet study?
A team at the University of Surrey are conducting a study to assess the impact of following a gluten-free diet in symptoms of Fibromyalgia. The study will take 6 weeks to complete. It will involve completing 3 four day food diaries and a weekly symptom questionnaire.
We are recruiting females who have a diagnosis of fibromyalgia and would consider following a gluten-free diet for 4 weeks, along with their normal diet for 2.
All data will be kept confidential. This study has received a favourable opinion from the Faculty of Health and Medical Sciences Ethics committee at the University of Surrey.
If you would be willing to take part, please contact:
Prescription Charges Coalition statement on the proposed reintroduction of prescription charges in Northern Ireland
FMA UK are a member of the Prescription Charges Coalition
The Prescription Charges Coalition of nearly 40 charities and organisations believes that everyone with a long-term condition should be exempt from prescription charges wherever they live in the UK. Currently, people with long-term conditions do not pay prescription charges in Wales, Scotland and Northern Ireland. However, the majority of those who are of working age in England are charged.
Medication is extremely important to help people with long-term conditions to manage their symptoms and lead independent lives. There is a strong evidence base which demonstrates that prescription charges act as a barrier to people with long-term conditions obtaining the medication they require. This can lead to poor management of the condition and complications that may result in greater cost to health and social services.
People with long-term conditions in Northern Ireland would be disadvantaged by the reintroduction of charges and some may be unable to afford their medicines, potentially leading to poor health, increased hospital admissions and lower productivity.
Governments can choose how to raise revenue and support the availability of specialist medicines. The Prescription Charges Coalition do not believe it is appropriate, reasonable or fair to do this at the expense of those with long-term conditions and will be responding accordingly to the consultation.
If you are in the Bristol area, why not pop along to Hamilton House to view the Behind Perception photographic exhibition. Sufferers with ME/CFS have participated in turning their ME/CFS by focusing on two contrasting portraits of a person with ME/CFS we hope to show the difference in how someone can look as opposed to how they feel.
15th-28th Jan, 9am-9pm, Stokes Croft, Bristol, BS1 3QY FREE ADMISSION
Volunteers are required for the Brain in Pain study which is being carried out by The Centre for Psychiatry, Barts and The London School of Medicine and Dentistry, Queen Mary University of London.
Please contact Dr Bourke directly if you are interested in participating.
FMA UK is proud to announce that it has registered as a company limited by guarantee (SC492045). This move is to help the charity with its future plans and charitable activities. While this is an administrative change and does not affect how we operate in any way you will see our company number appear on documentation and our website going forward. This is just a part of a number of changes that will help the charity.
For more information on why charities become companies you can look here: http://www.volresource.org.uk/briefing/register.htm but the extract below is the main point as to why it is beneficial for charities..
“There are a variety of reasons for getting limited liability via registering as a company. It limits the liability of company directors, which usually equates to those on the management committee (who will also be the charity trustees if it is a charity). Employing staff, taking up a lease or owning property are common prompts to get limited liability.”