Carers UK - State of Caring Survey
Each year Carers UK carry out our State of Caring survey to show just what it is like to be carer. You can help us expose how hard it can be to care and what needs to change to make carers’ lives better.
You can fill the survey in here. We’ve shortened it compared to previous years and focused on how caring affects finances, health and the ability to live your own life.
Fibromyalgia & Pregnancy Study - more volunteers needed
“This study has not yet attracted enough participants from its original advertisement so the criteria has been changed in the hope that more eligible people can be recruited. Please support this study if you can as each step forward in understanding how fibromyalgia affects people helps.”
- are approaching your third trimester of pregnancy, are new mums or mums with young children,
- have been diagnosed with fibromyalgia prior to the onset of your pregnancy,
- speak English fluently,
Petition to end prescription charges in England for people with Long Term Conditions
We’re expecting the Government to announce a further increase in the price of prescriptions in England any day now. That’s why FMA UK, as a member of the Prescription Charges Coalition, is launching an online petition, calling on the Government to end unfair, outdated and arbitrary prescription charges for everyone with a long-term condition. The petition, hosted by the British Heart Foundation is easy to fill in. Just click here to add your support and please forward to family, friends and colleagues too – www.bhf.org.uk/prescriptions.
Mendip Fibromyalgia Support donate books to local Library service
This wonderful idea by the Mendip Fibromyalgia Support Group will raise awareness and enable more people to read in more depth about fibromyalgia. Perhaps this is something other groups might consider. It might even be used instead of the group library especially if books have to be carted to and from each meeting. Members will be able to borrow the books in the same way without the group having the hassle.
Another suggestion is to recommend that the library stock particular books themselves that members have found most useful.
Group leader Tanya Climo tells us how it all came about.
"With the help of a donation from a group member in memory of her mother, Ruth 'Sis' Cook, and a grant from the Swans of Wells project, on Monday 2nd December 2013 Mendip Fibromyalgia Support Group donated 31 specialised books to the Somerset Library Service. A grant from UK Fibromyalgia will enable the group to publicise the availability of the donated books to all the support groups, hospitals and doctors surgeries in the area as well as to services such as books on prescription.
Effects of Music Therapy on Fibromyalgia
Effects of Music Therapy on Fibromyalgia - research of evidence by Shivani Lalloo
What is Music Therapy?
Music therapy is defined by Munro and Mount (1978) as the controlled use of music and its influence on humans to aid the integration of physiology, emotions, and psychology, during treatment. The combination of using music as a therapy for treating illnesses has been common throughout centuries, especially during the Renaissance era. A music therapist will use music to facilitate behavioral changes, by allowing patients to use a variety of musical instruments. Then, the therapist will engage in discussions about the patient’s musical interaction, allowing the patient to express his or her feelings with the aid of musical interaction. This form of therapy falls under the concept of music psychology, which is the psychology behind pitch perception and performance. Vink (2001) states that, according to music psychology, patients with little knowledge of music theory respond with the same emotional intensity to music as knowledgeable music performers. Therefore, the main aim of music therapy is to determine how patients respond emotionally to music, and improve cognitive functioning and quality of life.
Fibromyalgia Awareness Dates 2014
Dates for your diaries
- Monday 12th May 2014 - International Fibromyalgia Awareness Day
- Saturday 6th - Sunday 14th September 2014 - UK National Fibromyalgia Awareness Week
Are you doing anything for Awareness Day or Week ??? Let us know and you may be featured on our website or facebook page.
Online fibromyalgia learning package
The American Fibromyalgia Association has been involved in producing an online fibromyalgia learning package for professionals and patients. It is free and after testing a certificate can be printed off. While some of it may obviously fit the American system rather than the NHS, it is still a useful resource with much valuable information.