Patients sharing their experiences of their local NHS services - good or bad - are essential and really valuable in helping to improve the NHS. We know this because health services tell us how they have improved services as a direct result of feedback from their patient.
So FMA UK has teamed up with the online patient experience website Patient Opinion to give you the chance to share your own stories and suggestions on how your local services could be made better for fibromyalgia patients. If you’re a patient, carer, family member or friend, we’d like to hear from you. Whether you feel there could be vital improvements at your local hospital or you want to say thank you to the staff that treated you, this is your opportunity to share your thoughts with the people that can make a difference to how your local services are delivered.
You can tell your story on the website by filling in this online form below. If you've experienced health care recently, either as a patient yourself or as a carer or friend of someone else, please tell us how it was. What was good? What could have been better?
Earlier this year, Richard Burnham took part in this year’s Virgin London Marathon. He wanted to make a difference with his fundraising and chose to raise money for a cause close to home, Fibromyalgia, a condition which affects his older sister.
Being brought up as part of a very close family he has watched his once very sporty sister, who was once a county gymnast for Suffolk and Essex and long distance runner herself, struggle through her teenage years with the physical and mental effects of fibromyalgia and has seen the effect it has had on her everyday life and is beginning to see how it may affect her future. Inspired by her positive attitude and her determination to not let her body and mind succumb to the Fibromyalgia she currently works full time, volunteers at her local police station and has recently obtained a distance learning diploma in Criminology. Inspired by her positive attitude and her ‘can do’ approach he wanted to raise money for the awareness of Fibromyalgia so that others may be able to find some positives in this gruelling condition as she has which may in turn help them to achieve something which they thought may never be possible.
Susanne from the Witney group is going to be talking about her fibromyalgia on BBC Oxford Radio on the Malcolm Boyden show on Wednesday from 10.00. http://www.bbc.co.uk/programmes/p001d7jv
Fibromyalgia is known as a condition that is not life threatening but the suicide potential is not considered.
How many lives have to be taken? How many families destroyed before the necessary attention is paid to this life-changing condition?
In the UK, information about how many people with fibromyalgia have been diagnosed is not collected and a recent question by an MP about how many were receiving benefits was deemed too expensive to collate.
Dr Raj Lal Sharma MD
Specialist in Hypnosis & Cognitive Behavioural Psychotherapy
Dr Raj Lal Sharma qualified in medicine from Charles University, Prague in 2003. After practising medicine, he pursued his main interests in Integrative and Complementary Medicine, with a focus on Hypnosis and Cognitive Behavioural Psychotherapy.
He was awarded an MSc in Hypnosis from the Psychology Department, University College London, and whilst training at the Royal London Hospital for Integrated Medicine (RLHIM), he founded the first and only Medical and Clinical Hypnosis service within the National Health Service in 2007.
We regret having to announce that Nikki Southwell has resigned from her duties as regional coordinator liaison and regional coordinator for the South West and Yorkshire and Humberside.
She has always put heart and soul into every role she has undertaken and will be very difficult to replace.
I am sure all those who have met her or been in contact will appreciate her understanding and supportive attitude.
She is still going to be on our helpline rota providing her knowledge and expertise and a vital listening ear.
We hope with the lessening of duties she will be able to spend more time concentrating on her own health and family.
We would also like to take this opportunity to thank her husband Merlin, who has supported Nikki at all the events she has attended on our behalf and been a great help to everyone.
The FMA UK community wish them all the best.