In the light of the Work and Benefit Select Committee’s publication of their views on benefit assessments, it is even more vital that we provide data to support changes. The response generally to the surveys have been poor so far. This is not something we as an organisation can do, we need as many people as possible to tell them what their experience has been like. Without this we cannot expect change.
The Disability Benefits Consortium (DBC) have produced a surveyon the PIP assessments. This survey has had minimal responses from people with MSK conditions. The DBC are also producing a wider survey, ‘The Big Benefits Survey’, to understand more on disabled people’s experience of the benefits system. This survey does not cover PIP assessments. Closes midnight on 3rd August.
When 14 year old Luke Tandy had to raise awareness for a charity for a school project over the Easter holiday he decided to do a 24hr live stream on Xbox to raise funds for Fibromyalgia . Luke's mum Maria was diagnosed with fibromyalgia last year. He raised a total of £65 & his target was £40. His mum Maria says the family are so proud of him - well done Luke from all at FMA UK.
Charlotte's Tandems are a charity who lend tandems and tag-alongs to people with disabilities or special needs for free, who are unable to ride a bike safely on their own, so that they can enjoy the wonders of cycling. The charity operates throughout the UK. Visit their website for full details. www.charlottestandems.co.uk
Alison Collins is running the Essex 10k Cross Country Series which are five 10k runs, one a month, from May toSeptember. She is also going to be taking part in the Westminster Mile in May, the Chelmsford Race for Business in June (5k) and the Anniversary Run in the Olympic Park (5 mile) in July. Alison's daughter Emma has Fibromyalgia since she was 18, and because of this Alison chose to run and raise funds for FMA UK.
The Put Patients First Campaign is asking for our help to reach their goal of 1 million signatures by 15th August.
Put patients first: Back general practice petition!
The petition, which has been sent to every practice in the UK and can also be signed online, is generating great support for the campaign by giving patients and GPs the opportunity to stand together to fight for general practice.
We still, however, have a long way to go before we reach one million signatures by 15 August. Please click on this link to see more about the campaign and sign the petition.
The rigorous process that has to be in place ensures that up to date evidence is used and presented to people in an appropriate way. The process is ongoing and requires much diligence by everyone involved.
We would like to thank everyone who has worked on our publications or sent in their comments and suggestions for improvement