On 7th August Kay Sharpington held a baked bean bath in aid of Fibromyalgia Action UK at the Farmhouse in Kesgrave, Suffolk, raising a grand total of £750 for the charity.
At the event, Kay's family and patrons of the pub helped to pour 11.5 kilograms of beans over her, donated by Tesco Martlesham and a Girlguiding UK leader. As well as raising money for FMA UK, the event also increased awareness of the condition among the pub's customers. Several knew friends or had family members with fibromyalgia and were glad to see its profile being raised.
Kay said "I'm really grateful to everyone who has donated so far. Although fibromyalgia makes daily life difficult, I’m glad that I can do something to increase awareness of the condition, and raise money for research into it. I'm fundraising so that in future people will have heard of the illness they're being diagnosed with, so it becomes a topical issue, and so that eventually effective treatments and a cure can be found."
To donate go to http://uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserProfilePage.action?userUrl=kaysharpington
''Many people in the UK live with pain and fatigue every day as they battle fibromyalgia. The following documentary tells the inspiring stories of how some sufferers are taking back control of their lives''.
The film was recorded and produced by Adelaide Arthur, who kindly share it with us:
Please note that the Benefits Helpline will be closed from 25/07/16 to 01/08/16
Michelle and her husband run the marathon because Michelle’s mother in law and a close friend both live with fibromyalgia. Here Michelle is sharing her experience of running the marathon: ‘’me and my husband who both finished in 5 hours 40 minutes. It was very difficult, the weather was unusually hot so we did struggle to keep going and keep hydrated. We both suffered with a bit of sunstroke and sunburn which wasn't great, but after a few days of stiff legs we soon got over it!! We saw lots of charity runners and many inspirational people throughout the day so a big well done to everyone who took part, it was an honour to join in’’.
To donate text BIRK89 plus your pledge amount to 70070
Visit Michelle’s JustGiving page: https://www.justgiving.com/Michelle-Birks1204
Dan Mann is organsing a charity gig Fibrofest in Northfleet on the 30 September to raise funds for FMA UK and raise awareness about fibromyalgia.
Report on work, best practice and recommendations to address the needs of people living with musculoskeletal conditions
Arthritis Research UK has published a report on work and people living with musculoskeletal conditions; one of them is fibromyalgia. ''This report describes the impact of musculoskeletal conditions on the UK workforce and gives the perspectives of people with musculoskeletal conditions about working life. It considers:
- current health and work policy and programmes
- the health and work research agenda
- relevant employment legislation.
It also highlights some examples of good practice by employers, and sets out a series of recommendations to address the needs of people with musculoskeletal conditions who want to work''.
The report can be found here: http://www.arthritisresearchuk.org/policy-and-public-affairs/reports-and-resources/reports/work-report.aspx
- Hannah Edwards 25 Km Thames Bridges Trek challenge for FMA UK
- Event in Cardiff, 13th August
- Holly Kirby, 16, will sky dive on Saturday 9 July for FMA UK and her mum
- Houghton-Le-Spring community group, Space 4, event in support of FMA UK
- Online forum admin volunteer vacancy
- Louise Maule ''Aloe challenge' for FMA UK