Volunteers are required for the Brain in Pain study which is being carried out by The Centre for Psychiatry, Barts and The London School of Medicine and Dentistry, Queen Mary University of London.
Please contact Dr Bourke directly if you are interested in participating.
If you are in the Bristol area, why not pop along to Hamilton House to view the Behind Perception photographic exhibition. Sufferers with ME/CFS have participated in turning their ME/CFS by focusing on two contrasting portraits of a person with ME/CFS we hope to show the difference in how someone can look as opposed to how they feel.
15th-28th Jan, 9am-9pm, Stokes Croft, Bristol, BS1 3QY FREE ADMISSION
FMA UK is proud to announce that it has registered as a company limited by guarantee (SC492045). This move is to help the charity with its future plans and charitable activities. While this is an administrative change and does not affect how we operate in any way you will see our company number appear on documentation and our website going forward. This is just a part of a number of changes that will help the charity.
For more information on why charities become companies you can look here: http://www.volresource.org.uk/briefing/register.htm but the extract below is the main point as to why it is beneficial for charities..
“There are a variety of reasons for getting limited liability via registering as a company. It limits the liability of company directors, which usually equates to those on the management committee (who will also be the charity trustees if it is a charity). Employing staff, taking up a lease or owning property are common prompts to get limited liability.”
Raise money and be a record breaker!
8 spaces are being held exclusively for FMA UK. if you want to Sky Dive and take part you must book the skydive directly with Skydive UK Ltd by the 1st February 2015. Booking is easy, do it online at http://www.skydiveukltd.com/home/ or give them a call 7 days a week on 01404 890 222/244. £50 deposit is taken on the booking.
After the 1st February 2015 the event will be released to the general public. Bookings will be taken on first come first serve basis.
333 fundraisers will jump from 15000 feet to break the Guinness World Record in June 2015. Skydive UK Ltd is one of the biggest skydiving schools in the UK. They have started a search for over 300 brave fundraisers who will skydive for charity and attempt to break the existing record.
The current Guinness World Record for the most tandem skydives within 24 hours is 281 and is also held by Skydive UK. “We know we can do more. We will prove this by breaking our own record, aiming for 333” said Jason Farrant, managing director of Skydive UK. Many other skydiving centres across the whole world have tried to beat Skydive UK, but they must find it difficult as the bar has been set very high. “15000 feet is the highest skydive you can do without the oxygen supply. Many other places settle for much less height, which we don’t think is the ultimate experience.”
Janan (aka Pocket Rocket) was brave to take part in a charity boxing match to raise funds for FMA UK. It took place on Saturday 1/11/14 at Saturday at Preston North End Stadium,
Janan said after the match:
Just to update you in my charity boxing match, I raised £375 for FMAUK, the bonus was I won my charity boxing match. It will rank as one of the toughest things I have done, it was one heck of a fight, very close on points with us both exchanging punches. Opponent and I both rocked in the ring,both of us raising money for different charities, we both won on the night. It was an experience that still hasn't quite sunk in.
Our thanks goto Janan for the fundraising effort, the awareness that has been raised and the dedication to take part in this sort of event on behalf of FMA UK.
Single can be purchased for £1:00 with .95p going to charity from https://dexeter.bandcamp.com/
FMA UK is represented with EULAR and PARE through our membership of ARMA and ENFA. To be entered into this competition you will need to get your entry into FMA UK by 21st December so that we can ensure it is with ARMA by the deadline.
This is another opportunity to ensure fibromyalgia has a voice as essays will be read by many professionals and if someone with FM actually wins they will receive their prize at the EULAR conference which is attended by thousands of rheumatologists.