Please see the newsletter we received from Pete Moore creator of the pain toolkit. This resource has been helpful for people with chronic pain. Follow the links for more info about it and what else he offers.
We are currently looking for additional Helpline Volunteers who are able to man the National Helpline Monday - Friday between 10.00 - 1.00 or 1.00 - 4..00. Full support is given to new volunteers. All we ask is that you have a landline number we can redirect the helpline number to.
If interested please get in touch using this form You may also be interested in the following article: A Day in the life of a FMA UK Helpline volunteer
The Coventry support group have been chosen by ASDA (Abbey Park Store-Coventry) to be one of their token charities for March & April. If you shop in this store please remember to pop your tokens in the box. They are also holding an awareness day & bag pack to raise funds for the group on Saturday 26th April 2014, and any local support would be gratefully received!
NHS Gloucestershire are running the "Lets talk" Managing Fibromyalgia and Chronic Fatigue course. It’s a new Course that will be running in Cheltenham (as a pilot) then it will go to different areas of Gloucestershire. Please see the attached pdf for more information and contact details.
Survey on services in the home supporting independent living/care for people with long-lasting illnesses/conditions
The European Survey about the use of technology in the home to aid people with long term conditions needs as much input as possible. Please take a little time to complete it
The European Commission—through its unit supporting research and innovation in technologies for ageing and integrated care—is undertaking a short survey. It aims to find out how people who are living with long-lasting illnesses or conditions think that services in the home (like mobile phones, the internet, or personal health monitors) which communicate with the doctor, nurse or other care professional could help enhance independent living and care. The views of patients and carers have been often overlooked in this subject area. This survey is your opportunity to make your voice heard.
This is not your usual post about fibromyalgia for the simple reason, I don’t have it but that doesn’t mean I’m not aware of it or that I don’t care about it, I do. The reason for this post is that my partner suffers from fibromyalgia and I would like to give you a medical definition of this illness but if truth be told I don’t have one. Yes I’ve read about it on various web sites and I’ve seen the list of symptoms but I want to tell you what I know about the illness because I see it every day.