FMA UK - UK's National charity for fibromyalgia
T'was the Pain Before Christmas by Dr Kevin P White
(an ode to those with fibromyalgia)
T'was the night before Christmas, and all through my body
Not a thing isn't hurting. How I need a hot toddy!
The stockings I'd put on my feet with such care...
They now chafe my skin, I feel so raw and rare.
I've spent almost all of this day in my bed
With this merciless migraine pounding my head.
I just feel so tired, energy sapped.
How I wish I could sleep - please - just a half an hour nap!
When down in my gut, I can hear such a clatter.
I'm just not quite sure - is it bowels? Is it bladder?
Away to the bathroom I crawl like a slug
And sigh when I spy in the mirror ... my mug.
Mr Silky Skills presents The Positive Role Models Tour
Mr Silky Skills presents the Positive Role-Models Showcase Tour Christmas Special, in aid of FMA UK and others on Saturday 21st December 2013, 7.00-9.30pm in Liverpool Lighthouse.
New online learning module for GPs - Diagnosing & Managing FM
A new online learning module is available from Pulse Learning for GPs about diagnosing and managing fibromyalgia.
Pulse Learningâs new case-based learning module on Fibromyalgia aims to make sense of both by using typical primary care case histories to update you on the management of fibromyalgia and chronic widespread pain. Perhaps most importantly, it covers recent changes to the diagnostic criteria, which no longer include the 18 tender point examination. (Pulse learning 27/09/13) http://www.pulse-learning.co.uk/clinical-modules/musculoskeletal-medicine/fibromyalgia-case-based-module
Courts carry out review after study reveals GP evidence was factor in only 2.9% of disability benefi
The Government has carried out an assessment of the key factors in deciding appeals against decisions to remove disability benefits from claimants, after a pilot study revealed GP evidence was the deciding factor in only 2.9% of cases, Pulse has learnt.
The Department of Work and Pensions asked judges to provide a written summary explaining their decisions in individualsâ appeals against the removal of the Employment Support Allowance, including the importance of the GP report.
It followed a study last November that showed judges cited GPsâ supporting evidence as the principal factor in only 2.9% of successful appeals when provided with a list of potential reasons from a drop-down menu.
Read the full article HERE
UPDATE on LARGEST Genetic Study of Fibromyalgia in the UK
Kings College Hospital have given us an update on the Genetic study they are currently undertaking. Almost 1000 blood samples have been received - but the study aims to reach 2000. So if you have not yet taken part, please consider doing so.
Update2: We have had an even more terrific response to our request for research volunteers, with another 1000 or so people signing up in the last month. Thank you so much! We now have more than enough to deal with so please could you take the advert off the website, and we will de-activate the URL.
Full details are available below:
'Mr Silky Skills' raises awareness & funds for FMA UK
We are delighted that Mr Silky Skills, Richard Braithwaite, has decided to use his considerable expertise in ball skills to include raising awareness and funds for FMA UK. If you know of anyone who could contribute to the sponsorship of the high profile campaign he is organising, please do contact him at the email address at the end of his information. Click HERE for more information.
Aberdeen FM Support Group - Psychic Night - Friday 13th September
Aberdeen & District Fibromyalgia Support Group are holding a PSYCHIC & MEDIUM night, on Friday 13th September 2013.The night will take place in Aberdeen Bon Accord Spiritualist Church, 37-41 Fraser Place, Aberdeen, starting at 7pm
Tickets are £10 per person and this will include an evening with Psychic and Mediums as well as sandwiches & refreshments. Raffle tickets will be on sale on the night