Many thanks to Dayton & Nicki for sharing their story with us, and for promoting fibromyalgia awareness through the single.
- Are you a parent, carer, family member supporting a child or young person (up to age 25) with a disability or additional need?
- Are you a child or young adult with a disability or additional need?
From Monday 12 September Transport for London are trialling a ‘please offer me a seat’ badge and card. The badge and card are for customers who find it difficult to stand when using public transport, and are particularly targeted at those with hidden disabilities, conditions and illnesses.
Peter Fletcher told us : "We want to recruit 1,000 people for the trial, to help us understand if the badge or card can help people access a seat, as well as assess the reactions of other customers. We would like your assistance in helping us find participants and to spread the message about the trial.
Simon Davies, Chris Clifford-Hirst, Steve Rhodes, Wayne Shaw and Chris Stiendorff completed the national 3 peaks challenge in 23 hours and 31 minutes. That's the highest peaks of Scotland, England and Wales all achieved in less than 24 hours! They raised £1,000 and are still raising fund: to support their efforts, visit Simon’s JustGiving page: https://www.justgiving.com/fundraising/Simon-Davis8
Simon told us: ‘’It was a painful undertaking but my wife Kassy who sufferers with fibro is in pain 80% of the time so 24hrs seemed small in comparison. I hope we have raised awareness along the way along with rising funds. I would like to say a special thank you to Colin Rhodes, the Managing Director of Castle Fire Ltd for not only providing the support vehicle and the fuel but for giving up his own time and being a fantastic driver’’.
We would like to thank all 6 friends too!
Katie Love has run the South Coast Challenge 100K (60 miles) as her auntie lives with fibromyalgia. It was Katie’s first such a great challenge and she has exceeded her own expectations: she has won in the woman’s category and came second in the overall run. We congratulate and say a big thank you to Katie!
Katie shared with us the experience: ‘’Great news is that I finished and not only that I ended up coming 1st in the women's category and 2nd overall in the two-day challenge!!! Don’t ask me how, I’m just as surprised as you are but I can honestly say what an experience!!! It started with an extremely nerve racking 7am start at Princes Park in Eastbourne with the beautiful weather getting hotter and hotter by the minute. Over the Seven Sisters towards Alfriston, Southease and then onto Hove were I would finish day 1. It was a toughie and would be a milestone by running past my furthest distance of 24 miles. I completed the sweat bucket, unrelenting muggy day 1 of 33 miles at 2.30pm. Surprisingly my body was ok (touching every bit of wood I could find), however the test would be later on that day.
Day 2 started very early at 6am from Hove. I was feeling extremely sore and wasn’t feeling 100%.With my mind all over the place on how the day was going to plan out my confidence lacked, however I took a deep breath and focused on the day ahead. I knew I wanted to finish and as the saying goes "Run if I can, Walk if I must, Crawl if I have to, but never give up.