We are currently looking for additional Helpline Volunteers who are able to man the National Helpline Monday - Friday between 10.00 - 1.00 or 1.00 - 4..00. Full support is given to new volunteers. All we ask is that you have a landline number we can redirect the helpline number to.
If interested please get in touch using this form You may also be interested in the following article: A Day in the life of a FMA UK Helpline volunteer
The Coventry support group have been chosen by ASDA (Abbey Park Store-Coventry) to be one of their token charities for March & April. If you shop in this store please remember to pop your tokens in the box. They are also holding an awareness day & bag pack to raise funds for the group on Saturday 26th April 2014, and any local support would be gratefully received!
NHS Gloucestershire are running the "Lets talk" Managing Fibromyalgia and Chronic Fatigue course. It’s a new Course that will be running in Cheltenham (as a pilot) then it will go to different areas of Gloucestershire. Please see the attached pdf for more information and contact details.
Survey on services in the home supporting independent living/care for people with long-lasting illnesses/conditions
The European Survey about the use of technology in the home to aid people with long term conditions needs as much input as possible. Please take a little time to complete it
The European Commission—through its unit supporting research and innovation in technologies for ageing and integrated care—is undertaking a short survey. It aims to find out how people who are living with long-lasting illnesses or conditions think that services in the home (like mobile phones, the internet, or personal health monitors) which communicate with the doctor, nurse or other care professional could help enhance independent living and care. The views of patients and carers have been often overlooked in this subject area. This survey is your opportunity to make your voice heard.
This is not your usual post about fibromyalgia for the simple reason, I don’t have it but that doesn’t mean I’m not aware of it or that I don’t care about it, I do. The reason for this post is that my partner suffers from fibromyalgia and I would like to give you a medical definition of this illness but if truth be told I don’t have one. Yes I’ve read about it on various web sites and I’ve seen the list of symptoms but I want to tell you what I know about the illness because I see it every day.
Due to the arrival of Lindsay’s beautiful baby boy, the Dulwich Group has had a break. Please see the link to details of their (Re)opening meeting. Awareness Poster
Earlier this month National Voice launched their Guide to Care and Support Planning.
It is a fantastic guide designed for and by people who use services, and carers, with National Voices members and partners.
Why do we need care and support planning?
You live with your condition and/or disability every day and make decisions about how to manage it. Over time, you learn what works best for you, what information, care and support you need and how it fits into your life.
The professional or supporter you work with has skills and knowledge to help you understand their condition or disability and the choices for monitoring, treatment and available support.
Care and support planning makes the best use of you and your professional or supporter's expertise and the time you spend together.
- Campaign Blog from Chair, Royal College of General Practitioners
- Arthritis Watch England survey launched!
- Prescription charges to go up by 20p
- Carers UK - State of Caring Survey
- Fibromyalgia & Pregnancy Study - more volunteers needed
- Petition to end prescription charges in England for people with Long Term Conditions