Well done to Alex Bantick who took part in a Tough Mudder event on Sunday 13th July and for anyone who knows him well will know that this was big thing for as he says, ”Basically I am a sloth.”
But the main reason he did this was to raise awareness of Fibromyalgia. This is something that his girlfriend has been suffering with for the last 2 years. She puts on a very brave face 24/7 and hides it well, but I know deep down she is hurting.
Alex ran with his brother and the picture shows them after their 4 hour challenge.(Alex is on right)
The Ipswich Group recently held a summer party where they made £100 pounds on the prize draw ,also shared with another group. Carol Gormer tells us "it was hard work but at least it will help with hall costs and photocopying etc. Was a good night and enjoyed by all."
PatientView and Health 2.0 are undertaking a short survey. It aims to find out what patients and carers REALLY WANT from health apps.
This survey is an opportunity for patients and carers to tell app developers how health apps can be improved to better meet the needs of patients and carers.
In the light of the Work and Benefit Select Committee’s publication of their views on benefit assessments, it is even more vital that we provide data to support changes. The response generally to the surveys have been poor so far. This is not something we as an organisation can do, we need as many people as possible to tell them what their experience has been like. Without this we cannot expect change.
The Disability Benefits Consortium (DBC) have produced a surveyon the PIP assessments. This survey has had minimal responses from people with MSK conditions. The DBC are also producing a wider survey, ‘The Big Benefits Survey’, to understand more on disabled people’s experience of the benefits system. This survey does not cover PIP assessments. Closes midnight on 3rd August.
Congratulations to M Stevenson, number 02114 who won our first prize of a week's accommodation in Malta.
The winning tickets were drawn by Glen McGregor, Treasurer, FMA UK at the Fibro PaIN meeting on Monday 21st July 2014.
All other winning numbers are detailed below, together with who they were donated by where applicable. All prizes will be despatched from the office within the next two weeks.
When 14 year old Luke Tandy had to raise awareness for a charity for a school project over the Easter holiday he decided to do a 24hr live stream on Xbox to raise funds for Fibromyalgia . Luke's mum Maria was diagnosed with fibromyalgia last year. He raised a total of £65 & his target was £40. His mum Maria says the family are so proud of him - well done Luke from all at FMA UK.