Hannah Edwards will do the Thames Bridges 25 Km Trek to raise awareness and funds for FMA UK. Hannah will also organise a cake sale at work. She told us: ‘’I have chosen to support the work of FMA UK because someone close to me was recently diagnosed with Fibromyalgia, which has been an emotional journey. Before this diagnosis I hadn't heard of this condition before, so I wanted to raise awareness and hopefully that goes some way to contribute to the work that FMA UK does in the community.
I have never done anything like this before so it should be fun!''
To sponsor Hannah visit her JustGiving page: https://www.justgiving.com/fundraising/Hannah-Edwards15
Gail Neal and her son, Adam Neal, together with the Cosplay community are organising a fibromyalgia awareness event in Cardiff on the 13th August in the Cardiff City Museum. There will be a street collection across Cardiff city centre for FMA UK.
Gail told us: ‘’Adam and his colleagues are raising money for FMA UK as he has experience of seeing how Fibromyalgia has changed my life and my daily struggle to manage the condition. He has found that there is little or no support in our area for Fibromyalgia and that the local medical profession is ill equipped to effectively support patients with the condition. He also wishes to raise awareness to the general public about this syndrome to enable people to be more tolerant towards people with Fibromyalgia’’.
We hope that you can attend the event and support the fundraising.
‘’I'm Holly Kirkby. I'm 16 years old and live in North Wales. In 2003, my mum's world was turned upside down when she was diagnosed with fibromyalgia.
Fibromyalgia is a chronic condition of widespread pain and profound fatigue throughout the human body. As like most illnesses every individual is targeted through different levels and stages. Unfortunately, my mum suffers severely from Fibro meaning the past 12 years of her life have practically been stolen from her. Fibromyalgia has prevented my mum from doing the most important things for any parent, such as providing for her family, participating in days out however their just the big things.
The past couple of years my mum has lost the ability to do the tasks most of us take for granted everyday, such as getting out of bed and getting changed every morning. Fibromyalgia stole that from my mum.
Walking, Lifting, Bending, EVEN EATING can be a daily struggle for her nowadays.
For mum this is affecting her in every stage of life, physically, intellectually, emotionally and socially.
On the Fibromyalgia Awareness Day, May the 12th, Space 4, a community group in Houghton-Le-Spring, Sunderland, organised an event in aid of fibromyalgia to raise funds and awareness. Jorgie Carmichael, a member of the group, who lives with fibromyalgia, said: ‘’The event was great. We raised over £137. Lots of people from the group and St Michael & All Angel Church Houghton-Le-Spring helped and brought items to sell and for the raffle.
We sold cake & savoury foods and many other items, from cuddly bees to homemade cards. One of the volunteers massaged hands and painted nails of some of the people who came in. We also held a raffle.
About Our Health Unlocked online community
Health Unlocked is FMA UK online Community Forum, where people can get support and information 24 hours a day, 7 days a week. Volunteer Admins support provides a welcoming environment for people affected by fibromyalgia. Volunteer Admins enable us to provide a better, more responsive service.
This role can be based anywhere in the UK, from home, and undertaken when it is convenient to the volunteer. No fixed time commitment is needed, however we will ask you to login and respond to tasks regularly.
What will you be doing?
- Supporting the discussion forum alongside other Volunteer Admins
- Helping to ensure the community forum is a relevant, welcoming and a supportive environment
- Posting messages to welcome new members to the forum and helping the Admin team to ensure that posts are replied to.
- Directing community forum members to useful resources on the FMA UK Community Forum or FMA UK website.
My name is Louise Maule and I am a fibromyalgia sufferer. It took 5 years for the diagnosis with a range of tests and different diets to try to see if it eased my symptoms. Every day is different and if I get flare ups it can completely take me off of my feet, looking after two young children daily it can be a struggle, I want to be able to be the mum I want to be and not have to say no to them as I'm not feeling well enough to play a game with them or run around the park.
I have now had fibromyalgia for 8 years and have learnt what triggers my fibromyalgia so I'm able to minimise flare ups as much as possible. Because of the length of time it took for diagnosis and because there is no treatment available I decided to make it my mission to raise as much funds as possible to aid Fibromyalgia Action UK in their research and support.
- Summary from the Fibromyalgia awareness event in the Parliament, 11 May 2016
- Write to your MP and ask for support for Early Day Motion on Chronic Pain
- Join the #DesignforMSK project for young people
- Tim Daniel will sky-dive for FMA UK
- Gig in Glasgow for FMA UK, 30 June
- Zoe's Andreson Scottish 10K challenge for her Mum and FMA UK