This is a great video that brings together thoughts from different people that suffer from a condition that causes them chronic pain. While this is not specific to fibro there will be points in this video that people with fibro can relate to.
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FMA UK had a display at the summit held last weekend and was represented by the chair of the trustees Pam Stewart to ensure fibromyalgia is included
The UK is to host the first MSK World Summit to tackle the impact of musculoskeletal disorders.
On Sunday 12th and Monday 13th of October, London will be hosting the first-ever MSK World Summit, calling on governments across the world to unite in adopting concrete measures to promote musculoskeletal (MSK) health and reduce the enormous impact of MSK disorders nationally and globally.
The event, which is being organised by the Bone and Joint Decade (BJD) – the Global Alliance for Musculoskeletal Health – and the Arthritis and Musculoskeletal Alliance (ARMA) UK, will take place over two days at the Royal College of Surgeons, London, and will bring together experts from across the globe and across the MSK community, including senior representatives from the World Health Organisation and the European Commission as well as the UK Government, NHS England and Public Health England.
Jay is taking on a daring challenge for herself and FMA UK as she explains below. We wish her well in her training and the boxing match itself.
I am able to currently manage my fibromyalgia and I was fortunately already doing the right things to help myself prior to diagnosis despite never even hearing about the condition until I was diagnosed. Despite having fibromyalgia I consider myself lucky, I am able to work and I am also extremely stubborn, this condition is a part of me, the pain is always in the background and I refuse to let it rule what I can and cannot do. There are though fibromyalgia sufferers who are not as fortunate as I am, they have it more severe and cannot work, they have stopped work or are forced into early retirement.
Andrew Tyers not only ran the London Marathon but took part in the Outlaw Triathlon as well, a few weeks later. As you can see from the photo he looks very relaxed completing the marathon section of the triathlon wearing his FMA UK running vest.
Thank you Andrew for supporting us and helping to raise awareness.
(If anyone else is interested in fundraising for FMA UK you can create a page at www.justgiving.com/fmauk)
Video shows a great technique for helping with your medication.
SGFMSG (Stevenage) support group have a couple of fundraising/awareness events. Group leader Pam Cantrell has all the information -
Good luck with both events !!!