FMA UK - UK's National charity for fibromyalgia

Fundraising Christmas Choir Concert - Rutland

Chater Community Choir with the Beaufort Ensemble Wind Quintet are presenting 'Not Just Christmas' in aid of FMA UK and the ME Association in St Peter's Church, Empingham, Rutland on Friday 7th December at 7:30pm. Tickets are £5 each available from Tracy Steward on 01780 729006

Fibromyalgia & Wellbeing Research

Swinburne University of Technology are looking for participants to complete a questionnaire as part of their study examining fibromyalgia, well-being and psychological processes relating to acceptance, mindfulness and personal values.

Recent research suggests that processes such as acceptance, mindfulness and engaging in activities related to personal values may assist in the management of chronic pain conditions. Less is known about how this might be helpful for individuals with fibromyalgia. A study is currently being conducted by Swinburne University of Technology which examines fibromyalgia severity, wellbeing and psychological flexibility (i.e. acceptance, mindfulness and values-based living).

Your participation will help to gather important information about the impact of fibromyalgia on wellbeing with the aim of enhancing treatment and health outcomes. Participation involves completing an anonymous online questionnaire which takes about 20 minutes. Further information and the questionnaire is available at http://opinio.online.swin.edu.au/s?s=12770

Petition: Improvement of services & resources for chronic pain

The Scottish Cross Party Parliamentary Group on Chronic Pain are petititioning the Scottish Parliament to improve the services and resources for chronic pain management, including establishing a residential pain unit in Scotland.

At present, patients from Scotland are referred to the residential unit in Bath. Having a similar unit in Scotland will not only reduce costs, but will free up the beds used for patients in England & Wales.

Please can everyone use social media and their networks to encourage people to sign this petition and if you have a website perhaps create a space to publish this petition.

Calling on the Scottish Parliament to urge the Scottish Government to (a) hold a debate on the matter with a vote or voting rights (b) transfer more of the management for chronic pain into primary care (c) provide more social model care instead of medical model (d) change its policy to provide direct funding to ensure radical improvements to the service can be made including establishing a residential unit in Scotland to prevent Scottish pain patients being sent to Bath in Somerset for treatment

Petition: Improvement of Services & Resources for Chronic Pain in Scotland

Could your DNA provide a clue to the reason for fibromyalgia?

Could your DNA provide a clue to the reason for fibromyalgia? Be part of the largest genetic study ever conducted into fibromyalgia…

Are you fed up with poor treatment of chronic pain? We will be able to devise better therapies only with improved understanding of the biology of pain. We are exploring the genetics of chronic pain by:-

collecting 2000 samples of DNA from people with fibromyalgia/chronic widespread pain

Volunteers urgently needed! We will ask you simply to

fill in a pain questionnaire about you and your symptoms
donate a blood sample at your surgery (we will send the blood taking kit)

FMA UK Request for More Trustees

Fibromyalgia Association UK is appealing for further trustees to aid the running of the association. Expertise is currently needed in finance, fundraising and publicity. We already have volunteers contributing to these areas, but are seeking trustees to take responsibility for the overarching administration and development.

Trustee meetings are held monthly via Skype and last about 2 hours. There is an annual meeting that coincides with our group leaders’ meeting over a weekend.

Madelainartz presents Signed by Madelaina

Madelaina Artz is holding an exhibition of her 'Signed by Madelaina' Celebrity Collection. A collection of 15 celebrity portraits, all signed by the subject matter themselves. The exhibition was officially opened on 10th November by Julia Baird (John Lennon's sister) and runs until the 24th November.

Madelaina's celebrity collection is going on show to raise much
needed funds for sufferers of Fibromyalgia. Last year, through fundraising, Madelainartz started the Finding Me Project where sufferers lives were greatly enhanced.

2012 Raffle Prize Winners

Raffle 2012 result Thank you to everyone who bought tickets for the FMA UK raffle. This year FMA UK continued its sharing scheme with local support groups so that they could benefit from the sale of the tickets. The total sum from the sale of tickets was almost £1000, which will go towards maintaining our stock of information booklets. While the amount raised was lower than previous years it is still a significant contribution to that charity.

The prize winning tickets were drawn at the group leaders’ meeting on 29th September. Our first prize winner has been notified of her win of the week in Malta and is delighted to have won first prize. And as she and her husband celebrate their 25th Wedding Anniversary this year, makes it extra special.

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