Please see below, recent blog from the Royal College of General Practitioners
We have been actively gaining support and raising awareness of the Put patients first: Back general practice campaign on social media, within the health community and with our politicians.
Our first campaign Twitter chat
I recently hosted my first Twitter chat for this campaign. Thanks to everyone who got involved – you asked some great questions and sent hundreds of tweets. This enabled us to reach nearly two million twitter accounts in the week alone with #putpatientsfirst. I would particularly like to thank David Nicholson for getting involved, it is wonderful that our campaign message is getting through to NHS England. The media also picked up on it – GP Online wrote about it beforehand and joined in the discussion, and we had support from the Guardian Health Network. If you missed out on the Twitter chat, you can watch it on our Storify.
Please see the message below from Arthritis Research
People with arthritis have been telling Arthritis Care that services are being cut, waiting times are going up and they are finding it harder to access services. We think it is vital to find out how widespread these problems are.
Arthritis Watch is our new project to gather evidence from people across England of arthritis services in their localities, (i.e. their local Clinical Commissioning Group areas). This will be collated to build up a national picture of the state of arthritis services, including shortfalls in provision and examples of good practice.
David Barker, Leader of the Prescription Charges Coalition of organisations and Chief Executive of Crohn’s and Colitis UK said today:
“Millions of people with long-term conditions will be bitterly disappointed by the Government’s short-sighted decision to put up the cost of their essential medicines by 40p over the next two years.
“Already, over one third of people in work with a long-term condition find it hard to pay for their prescriptions and are rationing or stopping taking their medicines, compromising their health. These unfair, outdated and inequitable charges are forcing more people with long term heath conditions into medicine poverty and we continue to call for the government to follow the strong example set by the other UK countries and abolish prescription charges for people with long term chronic health conditions”.
Prescription charges to rise 20p. Sign our petition bit.ly/1kgbHyF
Each year Carers UK carry out our State of Caring survey to show just what it is like to be carer. You can help us expose how hard it can be to care and what needs to change to make carers’ lives better.
You can fill the survey in here. We’ve shortened it compared to previous years and focused on how caring affects finances, health and the ability to live your own life.
We’re expecting the Government to announce a further increase in the price of prescriptions in England any day now. That’s why FMA UK, as a member of the Prescription Charges Coalition, is launching an online petition, calling on the Government to end unfair, outdated and arbitrary prescription charges for everyone with a long-term condition. The petition, hosted by the British Heart Foundation is easy to fill in. Just click here to add your support and please forward to family, friends and colleagues too – www.bhf.org.uk/prescriptions.
“This study has not yet attracted enough participants from its original advertisement so the criteria has been changed in the hope that more eligible people can be recruited. Please support this study if you can as each step forward in understanding how fibromyalgia affects people helps.”
- are approaching your third trimester of pregnancy, are new mums or mums with young children,
- have been diagnosed with fibromyalgia prior to the onset of your pregnancy,
- speak English fluently,
This wonderful idea by the Mendip Fibromyalgia Support Group will raise awareness and enable more people to read in more depth about fibromyalgia. Perhaps this is something other groups might consider. It might even be used instead of the group library especially if books have to be carted to and from each meeting. Members will be able to borrow the books in the same way without the group having the hassle.
Another suggestion is to recommend that the library stock particular books themselves that members have found most useful.
Group leader Tanya Climo tells us how it all came about.
"With the help of a donation from a group member in memory of her mother, Ruth 'Sis' Cook, and a grant from the Swans of Wells project, on Monday 2nd December 2013 Mendip Fibromyalgia Support Group donated 31 specialised books to the Somerset Library Service. A grant from UK Fibromyalgia will enable the group to publicise the availability of the donated books to all the support groups, hospitals and doctors surgeries in the area as well as to services such as books on prescription.