FMA UK are delighted that Daniel, Jorge and Hector ran the Edinburgh Marathon on our behalf. This is what Daniel had to say about the run.
"We all made it, but some of us suffered more than others, but we finished it. Jorge finished first with a time of 3h 41min. He felt pretty good a part of some stomach problems.
just a reminder that there is only a couple of days left to purchase FMAUK FibroMapp at the special offer price of £0.99. As of 1st June the price returns to £3.99
Purchase FMAUK FibroMapp here
How would you like to win a week away in Malta in an apartment where you can decide how relaxed or how busy you want to be? Previous winners Susan and Roy, certainly had a wonderful time. “My husband, who has FM, and I loved the whole experience and found it relaxing, we came home feeling completely chilled out. Thanks again for the opportunity of being your raffle winners,” said Susan.
We have added our tickets to our sales page and you can buy these online and if you can persuade friends and family to purchase any that would be a great way to help us increase our funds. Your tickets will be put into the draw and your numbers emailed to you.
Madelainartz are presenting a Fibromyalgia Music Festival on Saturday 17th May 2014 in Wallasey.
The event runs from 11.30am - 4.00pm in Madelainartz, The Cherry Tree Centre, Wallasey CH44 5XU. Entry is free.
Firstly ...it's to do with the color of yellow rubber ducks.
In 2009, an FMAUK trustee saw a pic of ducks in a duck race in the Thames. The ducks in the water reminded him of the FMAUK colours (yellow and black). At a trustees meeting in easter of that year the use of the colours and the ducks was discussed.
This then led to the thinking that majority of people with fibromyalgia were independent, hard working people before taking ill. Having fibromyalgia has slowed down the pace of their lives.
Fibromyalgia Association UK calls for greater awareness
and education to help thousands of diagnosed patients in the UK
London, May 12th – Fibromyalgia Association UK (FMA UK) today calls upon MPs at a closed session at the House of Commons to request for greater research into the level of fibromyalgia suffering in the UK. Campaigners for the charity, predominately run by volunteers, demand a clearer assessment on the extent of the condition ahead of an official review by NICE in 2016.
Loving Those With Fibro by Michael R Holien is being released on 12/05/14 to coincide with International Awareness Day. The book is aimed at the family & friends of people with fibromyalgia. Allan Borland, who is carer for his wife and daughter who both have fibromyalgia, kindly agreed to do a review of the book for us, together with another similar book that is available. Both books are available to purchase through Amazon using the links below.