We are delighted to announce that this year’s conference, in aid of World Scleroderma Day, will be a joint event held by The Scleroderma Society and the RSA on Saturday 20th June, in Manchester.
This year’s theme, UNVEILED, aims to reveal treatments and topics to help those with the conditions, share information, hear about the latest news and research into the conditions, learn some self management tips and techniques and experience some treatments whilst enjoying yourselves by catching up with old friends …and making new ones.
Please see the press release from the European Medicines Agency on Ibuprofen. The full press release is available here.
The CMDh1 has endorsed by consensus updated advice on the use of high-dose ibuprofen. This follows a review carried out by EMA’s Pharmacovigilance Risk Assessment Committee (PRAC), which confirmed a small increased risk of cardiovascular problems, such as heart attacks and strokes, in patients taking high doses of ibuprofen (at or above 2,400 mg per day).
The review clarifies that the risk with high-dose ibuprofen is similar to the risk seen with some other non-steroidal anti-inflammatory drugs (NSAIDs), including COX-2 inhibitors and diclofenac.
What follows is a day in the life of a FMA UK Helpline volunteer. These are the people on the other end of the phone when you perhaps need some help on the phone. They all suffer FM as well and get a lot out of providing this service.
Working on the FMA UK helpline is certainly a varied and rewarding experience. For me, I am glad to play my part in helping other people with FM by simply listening to them and letting them know that I understand what they are going through.
The calls can be very varied from people simply phoning to find out if there is a group near them or to place an order when the office is closed, to people who are newly diagnosed and scared because they have been told they have a chronic illness, with no cure and don't know anything about it.
'Carers Allowance can be claimed by the Carer of someone who is in receipt of DLA middle/high rate care or PIP standard/enhanced daily living component or AA either rate. There are limitations in how much the Carer can earn and still get the Allowance and the Carer usually has to be under 65 - for details please look on line or contact Janet Horton on the Benefits Helpline between 10am and 12 noon on Monday and Friday on 0844 887 2450'
Claiming Carer’s Allowance or reporting a change is Simpler, Clearer and Faster at https://www.gov.uk/apply-carers-allowance