Shared Decision Making
Shared Decision Making (SDM) is a process in which patients choice is encouraged by their health professional to participate in selecting their appropriate health treatments or care management options. This site explains how this should work and helps the patient get the most form their health provider.
http://www.advancingqualityalliance.nhs.uk/sdm
Improvement through exercise (especially in males) in Gloucester
Please see the article below for a study relating to excercise and fibromyalgia:
The aim of this project is to see how exercise can help fibromyalgia. In particular we are interested in male sufferers. Research to date suggests that there is a real lack of evidence based interventions especially using strength and conditioning exercises and in male subjects.
A large group of males and females is needed.
We are also seeking self-funded students wishing to research for a MSc/MPhil/PhD in the area of FM/ME/Exercise Biochemistry
https://sites.google.com/site/fibromyalgiaexerciseresearch/
Solicitors win record breaking settlement for fibromyalgia sufferer
“Brian Barr Solicitors have won a record breaking £1.5milion settlement for a fibromyalgia sufferer. Further details will follow.”
FMA UK Head office to move to Scotland
We are pleased to announce that the Head Office of FMA UK will be moving from Cradley Heath to Scotland during early December 2012 with an aim to be fully operational once more after the Christmas holidays. We have the opportunity at this time to benefit from sharing high quality office space and facilities with some companies that share our belief in the Fibromyalgia cause.
After careful consideration of all options open to the trustees it was decided that for efficient use of funding and effective use of human resources, this was the best option.
In Paisley, FMA UK will benefit from the office having a trustee being able to oversee its operation once more but it was also the benefit of the volunteer pool that is available in the local area and we have already had some positive feedback from local volunteer organisations and the local fibromyalgia support group.
Fundraising Christmas Choir Concert - Rutland
Chater Community Choir with the Beaufort Ensemble Wind Quintet are presenting 'Not Just Christmas' in aid of FMA UK and the ME Association in St Peter's Church, Empingham, Rutland on Friday 7th December at 7:30pm. Tickets are £5 each available from Tracy Steward on 01780 729006
Fibromyalgia & Wellbeing Research
Recent research suggests that processes such as acceptance, mindfulness and engaging in activities related to personal values may assist in the management of chronic pain conditions. Less is known about how this might be helpful for individuals with fibromyalgia. A study is currently being conducted by Swinburne University of Technology which examines fibromyalgia severity, wellbeing and psychological flexibility (i.e. acceptance, mindfulness and values-based living).
Your participation will help to gather important information about the impact of fibromyalgia on wellbeing with the aim of enhancing treatment and health outcomes. Participation involves completing an anonymous online questionnaire which takes about 20 minutes. Further information and the questionnaire is available at http://opinio.online.swin.edu.au/s?s=12770
Petition: Improvement of services & resources for chronic pain
The Scottish Cross Party Parliamentary Group on Chronic Pain are petititioning the Scottish Parliament to improve the services and resources for chronic pain management, including establishing a residential pain unit in Scotland.
At present, patients from Scotland are referred to the residential unit in Bath. Having a similar unit in Scotland will not only reduce costs, but will free up the beds used for patients in England & Wales.
Please can everyone use social media and their networks to encourage people to sign this petition and if you have a website perhaps create a space to publish this petition.
Calling on the Scottish Parliament to urge the Scottish Government to (a) hold a debate on the matter with a vote or voting rights (b) transfer more of the management for chronic pain into primary care (c) provide more social model care instead of medical model (d) change its policy to provide direct funding to ensure radical improvements to the service can be made including establishing a residential unit in Scotland to prevent Scottish pain patients being sent to Bath in Somerset for treatment
More Articles...
- Could your DNA provide a clue to the reason for fibromyalgia?
- FMA UK Request for More Trustees
- Madelainartz presents Signed by Madelaina
- 2012 Raffle Prize Winners
- Office Update Oct 2012
- Eastbourne Support Group - Helpline
- New FM Support Group - Dulwich, London
- Arma calls for action on World Arthritis Day 2012
- Benefits & Works Newsletter - Oct 12
- Over 500 Completes in PIP Health survey on Fibromyalgia
- Dr Andrew Holman - Kings College Hosp 21 Jul 12
- Pain Toolkit e_newsletter Summer 2012
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