Kelly's Thompson Wolf Run 10K for her mum and for FMA UK
Kelly Thompson is taking part in this year’s Summer Wolf Run 10K in Stamford Hall in Leicestershire on 3rd June. Kelly told us: ‘’For those of you that don't know it's a 10k essentially muddy bog with hills , obstacles and lots of water and some sections I will be conquering my own fears but in comparison to people suffering with fibromyalga it's nothing.
I’d like to raise as much money for FMA to help increase awareness of this invisible disease.
This is a charity close to my heart as my mum suffers with this condition. Fibromyalgia affects the body in so many ways and not many people are aware or even heard of it. Chronic pain all over the body and extreme fatigue, short and long term memory loss, muscle spasms and nerve pain are just a few of the symptoms people with it have to deal with every single hour of every single day. Supporting this charity will aid people to learn methods to try and deal with these symptoms and make their lives more manageable.’’
To donate to Kelly’s JustGiving page visit:
https://www.justgiving.com/fundraising/Kelly-Thompson26
Stephen William - Epic 250 mile Cycle Challenge
Stephen Williams' wife Amanda suffers with the debilitating condition fibromyalgia
A devoted Chester husband is planning a sponsored cycle ride from Exmouth to Chester to raise funds to tackle fibromyalgia, a condition from which his wife suffers.
“To support this charity, me and some of Amanda’s cousins - Emma White, Ben White, Hannah Bown - are doing a long distance cycle from Exmouth to Chester, that’s 220 to 250 miles depending on how bad our map readings skills are or how big the hills are!” said Stephen.
International Awareness Day
12th May is celebrated annually throughout the world as International Fibromyalgia Awareness Day - awareness events are taking place run by support groups and individuals; and many more are raising awareness via social media. Whatever you are doing today - try and pass on some awareness.
FMA UK's suggested theme for the day is Coffee & Cake ... so we hope that plenty of you are enjoying a nice cake today.
FM Support South East Essex are holding a Coffee Morning in Stanford le Hope Methodist church hall
The local group to the office, Fibro PaIN are holding an afternoon event in Fairfulls, a local cafe and much more is going on.
Together we can raise awareness and continue to #fightfibro
Awareness event and free swimming pool in Stoke-on-Trent
Nuffield Health in Stoke-on-Trent will organise a fibromyalgia awareness event on Friday the 12th May in the Nuffield Gym in Stoke. Learn about fibromyalgia, brings fiends and use the swimming pool for free for the day! More information in the poster.
Glen Reed runs London marathon for FMA UK
Glen Reed has raised over £1,000 for FMA UK running the London marathon this year for his wife, Charlene, who lives with fibromyalgia. Glen shared his experience with us: ‘’I would like to begin by saying a massive thank you to all who supported me and sponsored me to run this year’s London Marathon. As of writing this the total received is £1,026.58 and I can honestly say it was a huge help knowing I was raising so much money for Fibromyalgia Action UK (FMAUK). Thank you to all my friends, family, friends of friends and also the Bournemouth One Stop Stores who allowed collections within their shops as well as a raffle and their amazing customers who donated so generously.
I am not a natural endurance runner and I knew right from the start that this was going to be a very tough challenge. When I discovered I was actually in, my initial thought was “oh my god, I’ve actually got to do this now!” My training began around the end of November but unfortunately just before Christmas I injured my right calf muscle, forcing me to rest it and allow the muscle to recover. This meant I couldn’t go back to training until near the end of January and even then the injury was playing on my mind and the runs were relatively short.
Fibrofest concert in Gravesend, Kent, Saturday 3rd June
Fibrofest is an annual concert with proceeds donated to FMA UK. This year's concert will take place on Saturday 3rd June at 4 pm in Leo's Red Lion in Gravesend. More details and how to order tickets can be found on the attached poster.
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- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed, and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
Trustee meetings are held monthly via Skype and last about 2 hours. There is an annual meeting that coincides with our group leaders’ meeting over a weekend.
If your Medical Professional needs some education in fibromyalgia you can request that an FMA UK Medical Professionals Pack is sent out to them. All we need is the name of the Medical Professional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
We are delighted to announce that our recent assessment for The Information Standard has been successful and we continue to fulfil the criteria for using the TIS logo on our publications.
The rigorous process that has to be in place ensures that up to date evidence is used and presented to people in an appropriate way. The process is ongoing and requires much diligence by everyone involved.
We would like to thank everyone who has worked on our publications or sent in their comments and suggestions for improvement
FMA UK is now able to receive text donations from your mobile. With our partners you are now able to send a text from your mobile to 70070 with the code of FMUK01 and your amount that you would like to donate to us. For example if you would like to donate £5 to FMA UK* you would text FMUK01 £5 to 70070. You would then be given the opportunity to add Gift Aid - meaning FMA UK benefits from an extra 25% on top of your original donation.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
