Loving Someone with Fibro - kindle book release for 12th May
Loving Those With Fibro by Michael R Holien is being released on 12/05/14 to coincide with International Awareness Day. The book is aimed at the family & friends of people with fibromyalgia. Allan Borland, who is carer for his wife and daughter who both have fibromyalgia, kindly agreed to do a review of the book for us, together with another similar book that is available. Both books are available to purchase through Amazon using the links below.
Mum Runs 8 Races in 5 Months
Alison Collins has shown her support for her daughter and FMA UK with this extreme challenge for the summer of 2014. Read her story and admire her courage after the problems with the very first race.
If you are near Chelmsford perhaps you can support Alison and raise awareness by wearing a FMA UK t-shirt as well.
FMAUK FibroMapp Reduced to 99p for May 2014
There is even a journal section. Equally important is the reports that the app collates from all your information. This is helping many people understand their condition better...it is also helping people gain more help from their doctors (as you can print the reports out). It is also helpful for benefits to show EXACTLY what you are experiencing on a daily basis! FMAUK Fibro Mapp
Stamford & Spalding - Holistic Fair
Stamford & Spalding Fibromyalgia Support Group are hosting a Holistic Fair on the 4th May for people who suffer with chronic pain. The fair is being held to tie in with International Awareness Day on 12th May. Venue is Stamford United Reformed Church hall, 29 Broad Street, Stamford, Lincs PE9 1PJ. The event starts at 12.00pm and entry is free. For more information contact Christine Johnson on 0844 887 2604.
Pain Toolkit Newsletter - Spring 2014
Please see the newsletter we received from Pete Moore creator of the pain toolkit. This resource has been helpful for people with chronic pain. Follow the links for more info about it and what else he offers.
Sky Dive for FMA UK
FMA UK would like to wish Charlotte Shaw good luck for her Tandem Skydive, which is taking place tomorrow 26th April - weather permitting. Charlotte told us
The reason for me doing this skydive is to raise funds for FMA UK (a Fibromyalgia charity) because my Godmother & Big Cousin Alison has been diagnosed with this condition. (Charlotte (on left) and Alison.
National Helpline & Benefits Helpline
We are currently looking for additional Helpline Volunteers who are able to man the National Helpline Monday - Friday between 10.00 - 1.00 or 1.00 - 4..00. Full support is given to new volunteers. All we ask is that you have a landline number we can redirect the helpline number to.
If interested please get in touch using this form You may also be interested in the following article: A Day in the life of a FMA UK Helpline volunteer
More Articles...
- Coventry Support Group - Awareness & Fundraising
- NHS Gloucestershire running "Lets talk" fibromyalgia course
- Survey on services in the home supporting independent living/care for people with long-lasting illnesses/conditions
- Dulwich support group
- Fibromyalgia from a Carer's Perspective
- National Voice Guide to Care & Support Planning
FMA on Facebook
Fibromyalgia Association UK calls for greater awareness
and education to help thousands of diagnosed patients in the UK
London, May 12th – Fibromyalgia Association UK (FMA UK) today calls upon MPs at a closed session at the House of Commons to request for greater research into the level of fibromyalgia suffering in the UK. Campaigners for the charity, predominately run by volunteers, demand a clearer assessment on the extent of the condition ahead of an official review by NICE in 2016.
Trustee meetings are held monthly via Skype and last about 2 hours. There is an annual meeting that coincides with our group leaders’ meeting over a weekend.
If your Medical Professional needs some education in fibromyalgia you can request that an FMA UK Medical Professionals Pack is sent out to them. All we need is the name of the Medical Professional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack below.
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We are delighted to announce that our recent assessment for The Information Standard has been successful and we continue to fulfil the criteria for using the TIS logo on our publications.
The rigorous process that has to be in place ensures that up to date evidence is used and presented to people in an appropriate way. The process is ongoing and requires much diligence by everyone involved.
We would like to thank everyone who has worked on our publications or sent in their comments and suggestions for improvement
FMA UK is now able to receive text donations from your mobile. With our partners you are now able to send a text from your mobile to 70070 with the code of FMUK01 and your amount that you would like to donate to us. For example if you would like to donate £5 to FMA UK* you would text FMUK01 £5 to 70070. You would then be given the opportunity to add Gift Aid - meaning FMA UK benefits from an extra 25% on top of your original donation.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
