Alison Collins has shown her support for her daughter and FMA UK with this extreme challenge for the summer of 2014. Read her story and admire her courage after the problems with the very first race.
If you are near Chelmsford perhaps you can support Alison and raise awareness by wearing a FMA UK t-shirt as well.
In recognition of Fibromyalgia Awareness Day (May 12th) the FibroMapp app is on sale at a whopping 75% discount! Just 99p/cents instead of 3.99! FibroMapp isn't just for Fibro, but for ALL chronic pain conditions. It helps you track, monitor and gain more control as you can see patterns emerge with your pain, sleep, medication (there are even alarms!), flare ups, other symptoms and more.
There is even a journal section. Equally important is the reports that the app collates from all your information. This is helping many people understand their condition better...it is also helping people gain more help from their doctors (as you can print the reports out). It is also helpful for benefits to show EXACTLY what you are experiencing on a daily basis! FMAUK Fibro Mapp
Stamford & Spalding Fibromyalgia Support Group are hosting a Holistic Fair on the 4th May for people who suffer with chronic pain. The fair is being held to tie in with International Awareness Day on 12th May. Venue is Stamford United Reformed Church hall, 29 Broad Street, Stamford, Lincs PE9 1PJ. The event starts at 12.00pm and entry is free. For more information contact Christine Johnson on 0844 887 2604.
FMA UK would like to wish Charlotte Shaw good luck for her Tandem Skydive, which is taking place tomorrow 26th April - weather permitting. Charlotte told us
The reason for me doing this skydive is to raise funds for FMA UK (a Fibromyalgia charity) because my Godmother & Big Cousin Alison has been diagnosed with this condition. (Charlotte (on left) and Alison.
We are currently looking for additional Helpline Volunteers who are able to man the National Helpline Monday - Friday between 10.00 - 1.00 or 1.00 - 4..00. Full support is given to new volunteers. All we ask is that you have a landline number we can redirect the helpline number to.
If interested please get in touch using this form You may also be interested in the following article: A Day in the life of a FMA UK Helpline volunteer
Please see the newsletter we received from Pete Moore creator of the pain toolkit. This resource has been helpful for people with chronic pain. Follow the links for more info about it and what else he offers.
The Coventry support group have been chosen by ASDA (Abbey Park Store-Coventry) to be one of their token charities for March & April. If you shop in this store please remember to pop your tokens in the box. They are also holding an awareness day & bag pack to raise funds for the group on Saturday 26th April 2014, and any local support would be gratefully received!
- NHS Gloucestershire running "Lets talk" fibromyalgia course
- Survey on services in the home supporting independent living/care for people with long-lasting illnesses/conditions
- Dulwich support group
- Fibromyalgia from a Carer's Perspective
- National Voice Guide to Care & Support Planning
- Campaign Blog from Chair, Royal College of General Practitioners