We’re expecting the Government to announce a further increase in the price of prescriptions in England any day now. That’s why FMA UK, as a member of the Prescription Charges Coalition, is launching an online petition, calling on the Government to end unfair, outdated and arbitrary prescription charges for everyone with a long-term condition. The petition, hosted by the British Heart Foundation is easy to fill in. Just click here to add your support and please forward to family, friends and colleagues too – www.bhf.org.uk/prescriptions.
This wonderful idea by the Mendip Fibromyalgia Support Group will raise awareness and enable more people to read in more depth about fibromyalgia. Perhaps this is something other groups might consider. It might even be used instead of the group library especially if books have to be carted to and from each meeting. Members will be able to borrow the books in the same way without the group having the hassle.
Another suggestion is to recommend that the library stock particular books themselves that members have found most useful.
Group leader Tanya Climo tells us how it all came about.
"With the help of a donation from a group member in memory of her mother, Ruth 'Sis' Cook, and a grant from the Swans of Wells project, on Monday 2nd December 2013 Mendip Fibromyalgia Support Group donated 31 specialised books to the Somerset Library Service. A grant from UK Fibromyalgia will enable the group to publicise the availability of the donated books to all the support groups, hospitals and doctors surgeries in the area as well as to services such as books on prescription.
Dates for your diaries
- Monday 12th May 2014 - International Fibromyalgia Awareness Day
- Saturday 6th - Sunday 14th September 2014 - UK National Fibromyalgia Awareness Week
Are you doing anything for Awareness Day or Week ??? Let us know and you may be featured on our website or facebook page.
Effects of Music Therapy on Fibromyalgia - research of evidence by Shivani Lalloo
What is Music Therapy?
Music therapy is defined by Munro and Mount (1978) as the controlled use of music and its influence on humans to aid the integration of physiology, emotions, and psychology, during treatment. The combination of using music as a therapy for treating illnesses has been common throughout centuries, especially during the Renaissance era. A music therapist will use music to facilitate behavioral changes, by allowing patients to use a variety of musical instruments. Then, the therapist will engage in discussions about the patient’s musical interaction, allowing the patient to express his or her feelings with the aid of musical interaction. This form of therapy falls under the concept of music psychology, which is the psychology behind pitch perception and performance. Vink (2001) states that, according to music psychology, patients with little knowledge of music theory respond with the same emotional intensity to music as knowledgeable music performers. Therefore, the main aim of music therapy is to determine how patients respond emotionally to music, and improve cognitive functioning and quality of life.
The American Fibromyalgia Association has been involved in producing an online fibromyalgia learning package for professionals and patients. It is free and after testing a certificate can be printed off. While some of it may obviously fit the American system rather than the NHS, it is still a useful resource with much valuable information.
There is an updated copy of the patient Information sheet attached to the end of this article.
The University of Surrey is going to be undertaking a research study into the dietary intake of women with fibromyalgia compared to healthy women. If you should have any questions regarding any aspect of this study, please contact the study organisers with the contact info at the end of the article.
1.1 Aim and objectives
The aim of this research is to investigate the dietary intake of fibromyalgia patients and of healthy controls. The objectives of this study are
- to recruit a sample of fibromyalgia patients and healthy controls,
- to provide a diet diary and a symptom diary to all participants,
- to collect information on nutritional intake, medication taken and the type and frequency of symptoms
- to assess for any nutritional deficiencies or differences in dietary intake in fibromyalgia patients, compared with the control group and
- to see if there is an association between diet and experience of fibromyalgia symptoms.