Tuesday 24th May 2016
10.30 am to 2.30 pm
Sharston Community Centre, Weeland Road, Wakefield, WF4 1DB
A little bit of admin to show the layout of the charity. Our last organisation chart was in 2011 so an update was long overdue. It shows our new trustees including Helen our newest member.
It also shows our current office staff.
You can see the new chart in PDF form here: http://www.fmauk.org/dmdocuments/org%20chart.pdf
On Sunday the 10th July one of the most iconic British charity runs will take place in the most picturesque places in London. FMA UK still have a few charity places, which will be filled on first come, first serve basis.
By running with us you save £50 on entry fee. We offer runners our charity place in exchange of sponsorship pledge. Once you will be registered we will support you in your fundraising, deliver FMA UK t-shirt or a running vest, sponsorship forms, leaflets and other items, as well as help you in setting up a JustGiving account and with publicity. Additionally to FMA UK t-shirt or vest, all runners will receive t-shirts from the run organiser on the finish line. There also will be a possibility of purchasing photos from the run from the organiser.
To see the running route and more details visit:
Help us to promote our #fibromask campaign on social media. Have you created your own #fibromask.
Go over to our facebook (www.facebook.com/ukfibro) or twitter (@fmauk) and get sharing your own #fibromask or our image
don't forget to share the link to what we are doing #Fibromask Selfie Campaign
*Awareness day Special, 20% off code for the shop**Shipping world wide*
With Awareness Day quickly approaching, I would like to offer everyone a 20% of code for the shop!!
So if you still haven't pre-ordered the Invisible Monster documentary or would like the exercise DVD or even a fog jogger, then enter code FIBRODAY20 at checkouthttp://www.thefibroguy.com/shop/
All proceeds from the shop go towards bringing my dream of the first chronic pain wellness centres to fruition; fitted with hydrotherapy pools, a resident massage therapist, infa-red and sauna rooms, and weekly chronic pain support groups using my joint stability and chronic pain programmes.
This will allow me to train some more fibro guys and girls in my programmes so more people can benefit!
Code expires at midnight on the 13th of May.
Kim Lawson, a Sheffield Hallam University lecturer and the Chair of the Medical Advisory Board at FMA UK will address the Health Secretary and other MPs on Wednesday 11 May at a parliamentary event that aims to raise awareness of the incurable chronic pain condition, fibromyalgia.
Dr Kim Lawson, a pharmacologist in Sheffield Hallam's Biomolecular Sciences Research Centre will be discussing research into the cause of fibromyalgia and the potential treatments with Jeremy Hunt and Andrea Jenkyns MP of the Health Select Committee as well as other key stakeholders from across the health sector.
The condition causes pain all over the body and effects up to 2.7 million people in the UK. Other symptoms can include fatigue, muscle stiffness, difficulty sleeping, problems with mental processes and headaches.
It is a long-term condition that is thought to be related to abnormal levels of certain chemicals in the brain and changes in the way in which the central nervous system processes pain messages.
Tomorrow's event in the Houses of Parliament will mark International Fibromyalgia Awareness Day and has been organised by Fibromyalgia Action UK (FMAUK). It is hoped it will encourage MPs to become ambassadors for the charity in order to help the public to have a better understanding of the condition.
"Quite often, one of the toughest things for a fibromyalgia patient to deal with is the lack of understanding," said Kim, who chairs the Medical Advisory Board at FMAUK. People don't appreciate the severity of it and it can be quite severe to the point of even the lightest touch can cause excruciating pain. Only 20% of people are diagnosed with the disease in the UK and that is partly down to the complexity of the symptoms, and because there are no simple tests. But I also think it is down to the lack of awareness of the condition and that's what this event is about today."