Fibromyalgia Association UK calls for greater awareness
and education to help thousands of diagnosed patients in the UK
London, May 12th – Fibromyalgia Association UK (FMA UK) today calls upon MPs at a closed session at the House of Commons to request for greater research into the level of fibromyalgia suffering in the UK. Campaigners for the charity, predominately run by volunteers, demand a clearer assessment on the extent of the condition ahead of an official review by NICE in 2016.
Firstly ...it's to do with the color of yellow rubber ducks.
In 2009, an FMAUK trustee saw a pic of ducks in a duck race in the Thames. The ducks in the water reminded him of the FMAUK colours (yellow and black). At a trustees meeting in easter of that year the use of the colours and the ducks was discussed.
This then led to the thinking that majority of people with fibromyalgia were independent, hard working people before taking ill. Having fibromyalgia has slowed down the pace of their lives.
Loving Those With Fibro by Michael R Holien is being released on 12/05/14 to coincide with International Awareness Day. The book is aimed at the family & friends of people with fibromyalgia. Allan Borland, who is carer for his wife and daughter who both have fibromyalgia, kindly agreed to do a review of the book for us, together with another similar book that is available. Both books are available to purchase through Amazon using the links below.
Alison Collins has shown her support for her daughter and FMA UK with this extreme challenge for the summer of 2014. Read her story and admire her courage after the problems with the very first race.
If you are near Chelmsford perhaps you can support Alison and raise awareness by wearing a FMA UK t-shirt as well.
Stamford & Spalding Fibromyalgia Support Group are hosting a Holistic Fair on the 4th May for people who suffer with chronic pain. The fair is being held to tie in with International Awareness Day on 12th May. Venue is Stamford United Reformed Church hall, 29 Broad Street, Stamford, Lincs PE9 1PJ. The event starts at 12.00pm and entry is free. For more information contact Christine Johnson on 0844 887 2604.
In recognition of Fibromyalgia Awareness Day (May 12th) the FibroMapp app is on sale at a whopping 75% discount! Just 99p/cents instead of 3.99! FibroMapp isn't just for Fibro, but for ALL chronic pain conditions. It helps you track, monitor and gain more control as you can see patterns emerge with your pain, sleep, medication (there are even alarms!), flare ups, other symptoms and more.
There is even a journal section. Equally important is the reports that the app collates from all your information. This is helping many people understand their condition better...it is also helping people gain more help from their doctors (as you can print the reports out). It is also helpful for benefits to show EXACTLY what you are experiencing on a daily basis! FMAUK Fibro Mapp
FMA UK would like to wish Charlotte Shaw good luck for her Tandem Skydive, which is taking place tomorrow 26th April - weather permitting. Charlotte told us
The reason for me doing this skydive is to raise funds for FMA UK (a Fibromyalgia charity) because my Godmother & Big Cousin Alison has been diagnosed with this condition. (Charlotte (on left) and Alison.
- Pain Toolkit Newsletter - Spring 2014
- National Helpline & Benefits Helpline
- Coventry Support Group - Awareness & Fundraising
- NHS Gloucestershire running "Lets talk" fibromyalgia course
- Survey on services in the home supporting independent living/care for people with long-lasting illnesses/conditions
- Dulwich support group