Charlotte Snares has embarked on a number of difficult challenges for FMA UK. The first one was a ‘’rainbow hair’’ challenge when she has coloured her hair in many rainbow colours, as seen on the picture. Fundraising is tough but she doesn’t give up. She told us: ‘’Fundraising has been quite challenging. People sadly have not been that forthcoming with donations. I think the problem is that there is still a major lack of awareness about Fibromyalgia.
I am not giving up though. I am working on a new challenge for the new year. I am aiming to do a two hour gym session on the 27th of February 201: an hour on the cross trainer and an hour on the bike. This for me is a major challenge with both M.E and Fibromyalgia and a slipped disc in my back. I struggle on a daily basis to get about and sometimes even breathing hurts.
I am raising funds as I was diagnosed with M.E several years ago and have been recently diagnosed with Fibromyalgia...although I think I have suffered a lot longer. I have had the symptoms since I was about 11 (now 35) but have struggled with getting diagnosed and supported. I decided to fund raise as I wanted to do something positive and channel some of how I have been feeling into creative projects as a part of healing for me and also helping to raise awareness and funds to help others who are struggling. I will also be offering reiki treatments to raise funds. I will be fundraising for as long as possible’’.
Support Charlotte’s fundraising efforts by donating to her JustGiving page:
Therefore, it will come as no surprise that if we were to look at what google records as popular for health related searches that fibromyalgia appears in the list. However, when Dr Morton’s medical help line was conducting research as part of its market research they were keen to find out what people were searching for online about medical conditions. Expectations were that common complaints like the cold and flu would feature as well as the bigger concerns like cancer.
The FMA UK head office will be closed from 24th Dec 2015 until 04th Jan 2016. The National & Benefits Helpline will also be closed over the same dates.
FMA UK Trustees would like to wish you all a very merry Christmas and best wishes for 2016
Read Michael's story: ''I am running the Reading Half Marathon in April 2016 to raise money for Fibromyalgia and increase awareness of the condition, so more people understand the struggles that those with Fibromyalgia go through on a daily basis. I became involved with the Reading Fibromyalgia support group through my business. I own Floating Point Float Centre in Reading, the only dedicated Float Centre in Berkshire where a number of Fibromyalgia patients have come to float for pain relief.
In 2011 there was a study undertaken in the US that highlighted the great benefits Float Therapy can offer Fibromyalgia patients. The results showed that patients reported an average 30% drop in stress levels after each float session, with an average of 2.5 days of pain relief.
Today is the UN International Day of Persons with Disabilities. One of the three key themes for 2015 is: ''Including persons with invisible disabilities in society and development''.
We read on the UN Enable website: ''Persons with invisible disabilities, are also at risk of exclusion from mainstream activities, education or social activities.
The International Day can be used to draw attention on the situation of persons with invisible disabilities, such as mental health and psychosocial disabilities, intellectual disabilities, as well as hearing impairments. The Day can be used to identify good practices of integrative and inclusive education, to organize social activities and awareness raising initiatives, as well as highlight good practices and make recommendations.''
‘’Hello, I'm Holly Kirkby. I'm 16 years old and live in North Wales. In 2003, my mum's world was turned upside down when she was diagnosed with fibromyalgia.
Fibromyalgia is a chronic condition of widespread pain and profound fatigue throughout the human body. As like most illnesses every individual is targeted through different levels and stages. Unfortunately, my mum suffers severely from Fibro meaning the past 12 years of her life have practically been stolen from her. Fibromyalgia has prevented my mum from doing the most important things for any parent, such as providing for her family, participating in days out however their just the big things.
The past couple of years my mum has lost the ability to do the tasks most of us take for granted everyday, such as getting out of bed and getting changed every morning. Fibromyalgia stole that from my mum.
Walking, Lifting, Bending, EVEN EATING can be a daily struggle for her nowadays.
Lauren Chance is challenging herself to do a 1,000 mile walk over a 6 month period to raise funds for FMA UK. Lauren told us: ‘’My mom suffers from fibromyalgia and is an invisible disability. Others close to me also suffer from this disability which is incurable and causes widespread pain all over the body. I'm doing '1000 chances for charity' to raise money for Fibromyalgia Action UK to support the great work they do but my main aim is to raise awareness of fibromyalgia as it is a less known disability which isn't known by many people.
The idea came from a thought in my head whilst thinking about my New Year’s resolution which will ‘make a difference' and initially I was struggling to find a charity to do my fundraiser for. It was only when my mom mentioned about doing it for a fibromyalgia charity when the passion really kicked in. As my mom is a recently diagnosed sufferer of fibromyalgia, I have supported her as much as I can both emotionally and physically. It took medical professionals over 2 years to diagnose her and since diagnosis I have been to some sessions of her fibromyalgia support group. This gave me a much better insight as to what herself and others go through. This then opened my eyes and it showed that very little people actually know what this invisible disability is!
- Please fill in a short survey on access to healthcare
- FMA UK policy work: submission of proposals to Jeremy Hunt and partnership with ARMA
- Announcement for FMA UK fitness DVD with Adam Foster
- Volunteer vacancies: HealthUnlocked Forum Admins
- Pam Stewart receives international recognition award for promoting awareness about fibromyalgia
- Dana's story: Why I am fundraising for FMA UK