This year for the Fibromyalgia Awareness Day on the 12th May we encourage you to participate in a fun and creative art therapy activity together with us! Many thanks to our volunteer and an art therapist, Amanda Mckinlay, who inspired us to share this with you and to do our masks, too.
Amanda explains how this works: ‘’The ‘’two sided mask" idea really struck a chord with me with regards to living with fibromyalgia. The idea is that you decorate the mask with one side showing the face you portray to the world & the other showing how you really feel. This hit me as being perfect for fibro because often, to save trying to explain how you feel to someone who won't understand or because you don't know how to put it into words we just put on a happy mask & say "I'm fine" or on the other side of things often people say to us " you look well" when we don't feel it. I'd also seen quite a few mask themed posts on a few fibro themed social media pages & talked to some friends who agreed it'd be a good idea for an awareness project & that's why I contacted the charity.
The idea is simple:
1) either download a mask template from FMA UK website or the internet (www.freefunfings.com/masks/plainmasks has a choice of shapes & styles) or you can get plastic masks to decorate from either your local £1 shop or craft shop.
2) Decorate it any way you like. You can use pens, pencils, crayons, paints, stickers, fabric...anything & you can make it as glamorous & happy or sad, plain & sore looking as you want. It's up to you what face you want to show. PLEASE don't think it has to be a masterpiece... It's about having fun, getting in touch with your "inner child" & getting our fibro faces out there for the world to see! (you could even have fun & get together with your local support group or family & friends who want to show their support and make your masks together).
3) take a photo & upload it to Facebook, Twitter, Instagram etc.. before or on 12th May using #fibromask in your posts to get fibro trending all over social media. Put them on your own timelines & share them with FMA UK on Facebook (Fibromyalgia Action UK) or Twitter ( @fmauk ) - it gets awareness out there and let's other people with fibro know they're not facing it alone.
Premiere of ''Sonata for Cello'', a moving fiction film about fibromyalgia, London 14th April at 6 pm - only £5, book now!
UK’s Premiere of ‘’Sonata for Cello’’, film about fibromyalgia, at the London Independent Film Festival Opening Night Gala, Thursday 14th April at 6 pm
Sonata for Cello is a must for everyone who needs to understand fibromyalgia. It is a touching and professionally made film by people who have experience of fibromyalgia.
It is a fictional story of a world-renowned cellist, who in her midlife developed fibromyalgia. The condition made impossible for her to continue to play; it is a story of a daily struggle between the physical and emotional pain of not being able to do what she wants to do and a strong will to continue to play regardless of the pain. Playing the cello is for the cellist everything; a mission, a vocation, a passion, a sole purpose of her life. It is her life.
In the film we watch how fibromyalgia takes away everything she loves and cares about. We watch how it takes away her life and we admire her heroic struggle to take her life back and to win with the condition.
This film has captured in a very artistic and moving way the invisible struggle everyone living with fibromyalgia takes up every day. It is also a captivating story about love, passion and sacrifice.
Those living with fibromyalgia will identify with the main character and her struggles. Others, after watching this film, will have a better understanding by the end of the film of the impact fibromyalgia can have on people’s lives.
This is a great opportunity to raise awareness without making people sit through a documentary. FMA UK would encourage as many people as possible to go and see this film.
The film’s director, Anna’s Bofarull mother has fibromyalgia and the film’s producer, Marian Matachana also has fibromyalgia. It took them 5 years to raise funds and to develop the film, which is being screened in other countries and won a number of prestigious awards at film festivals in other countries.
Trisha Richardson, together with friends and artists organised a fun packed event to raise awareness about fibromyalgia. The event raised £459.50 to help FMA UK continue its work.
An evening of live music, auction, and raffle, performances by Hannah Bradbeer, Sarah Corrie, Anna Page and Alan King. Art and other prizes for the raffle donated by Ella Guru, Susan Diamond, Charles of London, Grande Dame, Sexton Ming, Chris Yates, Jason Atomic, Angel of Tarot, Derma Luxe, Hastings Guerrilla Circus, Ingrid Moore, Tom Bartlett and Monkey Paw Tattoo Parlour. The event organisers would like to say special thanks to Auctioneer Emily, Hostess of the Bullet Cafe Vicki, and Louise for all their help and to everyone who came along and supported the event, bought raffle tickets and participated in the auction.
FMA UK would like to join in saying thank you to the organisers and everyone involved.
Here is a video from the evening:
We would like to thank the Lincombe Manor Care Centre, the staff , residents and their families who organised a fun event for FMA UK and raised £200 to help us to continue our work.
Holly Bishop, the initiator of the event, who lives with fibromyalgia said: ‘’We played guess that member of staff by displaying baby photos of them, guess the amount of sweets in the jar, did raffles and ate delicious cupcakes made by the residents. Winners were rewarded with hampers full of Easter chocolate and Smellies.
Many people who attended had never heard of fibromyalgia so I managed to spread the word and hopefully made people understand how debilitating it is’’.
We say well done to Holly and to everyone who helped make this event a success.
We would like to thank St Andrew’s Parish Centre in Springfield in Wigan for organising breakfast coffee morning in aid of FMA UK and raising £200 to help us to continue our work.
Jean Moss, one of the organisers, told us that the morning has been very successful, with the church having on offer, as usual, some delicious food for breakfast: various toasties, cheese & ham, cheese, ham, crumpets, toasted tea cakes, slices of toast or fruit loaf with jam, as well as chocolate tombola, hand crafted cards and a raffle. It sounds delicious and we are sharing some photos from the event.
- URGENT Media opportunity
- Four friends' 110 miles walk challenge for FMA UK
- Chris Bishop will run London marathon for FMA UK and in support of his daughter Holly
- How to do a successful fundraising event - Yasmin Laughlin tells us
- Fancy Dress Beach Walk, Sandfields, Port Talbot, 15th May
- Michelle Birks runs the Edinburgh marathon