Citadel Stamps is helping FMA UK by organising a stamp appeal. It’s easy to get involved, just save your used
stamps and ask your family, friends, work colleagues, employer and local schools to help by saving their stamps too.
Stamps should be clipped leaving a 5-10mm border around the stamp - this increases the value.
You can help increase the value of the stamps you send by using current high value commemoratives to post them to:
FMA UK Stamp Appeal
PO BOX 6107
A MEMORABLE APRIL WEEKEND WITH FUN, LAUGHTER & FM NEWS
Thank you to Jeanne Hambleton for updating us on the Conference weekend:
If you have not booked for our 6th international Fibromyalgia Conference on April 24/27 2015, it is not too late. Once again the cost is as low as we can make it to enable folks to enjoy the education, research news, make new friends, as well as entertainment, fun and laughter. You will have a chance to talk to the speakers personally 1-2-1 - almost a private consultation as part of the conference weekend and you will be among folk who understand your aches and pains. It has been said, “Conference is a great educational and social experience”. We aim to please.
FibroAction and Fibromyalgia Association UK (FMA UK) will be working together more closely in the future. The trustees of each charity decided it would be in the best interests of both the charities and the people they serve to combine their expertise, experiences and resources. The trustees are now in talks regarding how to proceed with this process, which may take some time.
Ella Vine, Chief Executive of FibroAction said: ‘This is a very exciting time for the charities and for all of us in the wider fibromyalgia field. This is a very positive step in the right direction. We are all delighted about it. The charities have a national scope, undertake very similar work, serve the same population, have the same group of supporters and the same aims. It will therefore be good to combine our resources to ensure that people affected by fibromyalgia in the UK receive the best possible support and that our voice is stronger and heard by policy makers. We are thrilled about it.”
Pam Stewart, Chair of FMA UK said: “The trustees of FMA UK are delighted for FibroAction to be joining with the trustees of FMA UK to be able to move forward together with their support for people with fibromyalgia. This should allow for an even more proactive role in ensuring the best treatment options for fibromyalgia.”
Please find below information regarding a survey being carried out by ENFA (European Network of Fibromyalgia Associations).
Please share this message, asking as many people with fibromyalgia to complete the survey and help provide the essential evidence required.
Collecting information for Fibromyalgia international Awareness Day 14thMay 2015
ENFAhas produced a survey to discover how fibromyalgia is treated throughout Europe. This will enable us to give evidence to the decision makers about any differences, expenses incurred and the widespread nature of the condition.
To do this we need as many people from as many different countries in Europe as possible. It will not be affective with only a few hundred responses, we need thousands!!!
Survey closes 14thApril 2015
Volunteers are required for a questionnaire study comparing the symptoms of people with fibromyalgia, chronic fatigue syndrome and irritable bowel syndrome. The study is being carried out by researchers at Plymouth University.
A comprehensive survey into the symptoms of people with ME/CFS, fibromyalgia and irritable bowel syndrome is the first study to exam a wide range of symptoms of people with these conditions. The aim of the study is to find out to what extent there is an overlap in symptoms and to what extent symptoms are different between different diagnoses. Anyone with these conditions can take part, and the study is also being advertised on ME/CFS and IBS websites.
The questionnaire is completed online and is anonymous. The questionnaire asks you to rate the frequency of 62 symptoms. It takes about 4 minutes to complete, but some might take more and some less time. We need as large a sample as possible, so if you can spare the time, we would be very grateful if you could take part.
FMA UK will be provided with the results once they have been analysed.
To complete the questionnaire, please go to
Margaret Probin is organising a Masquerade Ball to take place in Manchester on the 4th April 2015. She tells us why she is holding this fantastic fundraiser
"My Name is Margaret Probin. I am 34-years-old and I live in Manchester, England. I suffer from a condition called fibromyalgia. I am planning a fundraising Charity Ball which will take place on the 4th of April 2015 at the new glamorous Irish Centre in Cheetam Hill, Manchester. The charity event is called, Behind the Mask. The idea behind the name is because when someone suffers from fibromyalgia no one can tell how they are feeling inside or out. Therefore it feels like you are wearing a mask, making it difficult for anyone to see how you are feeling. This event is to highlight this misunderstood condition, raising awareness and raising funds which will go towards fibromyalgia research. The organisations I am working with are Fibromyalgia Association UK and Fibroduck Foundation.
Reduced volume in the hippocampus is just the latest of many brain finding in fibronyalgia
Read more: The Pain Brain: Hippocampal Atrophy Found in Fibromyalgia http://www.cortjohnson.org/blog/2015/02/16/pain-brain-hippocampal-atrophy-found-fibromyalgia/
- Study to assess impact of gluten-free diet on fibromyalgia
- Prescription Charges Coalition statement on the proposed reintroduction of prescription charges in Northern Ireland
- Pain in the Brain Study - Volunteers needed (London Area)
- Behind Perception - Photographic Exhibition, Bristol
- FMA UK registers as a company limited by guarantee
- Guiness World Record Attempt - Skydive for FMA UK