FMA UK and FMSupport South East Essex teamed up with all Thurrock libraries to take part in the national Fibromyalgia Awareness Week last month. A joint information stall was held in Grays library and information leaflets about fibromyalgia and about support services available from FMA UK are available from all Thurrock libraries.
Ella Vine, Executive Officer at Fibromyalgia Action UK said: ‘’The event was a success. It has been widely promoted in the local media and as a result many people came to see us. For those who were unable to come to talk to us at the library, we made leaflets available in all Thurrock’s libraries. We would like to thank Thurrock Libraries for supporting the Awareness Week’’.
Rebecca Redmond, 24, took part in The Very Big Catwalk in Liverpool - an attempt to break the Guinness World Record for the most models on a catwalk at one time.
Rebecca who has fibromyalgia shared her incredible story why she is taking part in this modelling event. She tells us why she is not giving up to fibromyalgia but challenging it and doing what she wanted to do before fibromyalgia stroke - modelling.
The Guardian featured a touching and heartbreaking article, where fibromyalgia sufferer gave an account on how it is to live with fibromyalgia, the pain and the struggle she has to endure every day. Her words ‘’ ‘I have to accept I will be in pain every day of my life’’ are striking.
This article will also be printed on Saturday the 10th October in the Guardian Magazine on ‘’The Experience’’ page. To read the online article visit:
If you would like to raise awareness about fibromyalgia in your local media and would like support with it, contact us.
Katie Sturgeon will cut her amazing long hair to raise funds and awareness about fibromyalgia. Katie said: ‘’My mum was diagnosed with Fibromyalgia after having persistent pain with no obvious cause. Luckily she saw a GP with experience of the condition and she was diagnosed relatively quickly. She has gone from a very active person to someone who struggles to get out of bed in the morning and who relies on a wheelchair to get around. My mum can no longer drive, walk our dog or sit and play with her granddaughter. It has been a huge adjustment for our family to make and even now we are still trying find ways to manage.
Gillian Smith and Linda Dunn are good friends. Gillian suffers from fibromyalgia and Linda will run the Loch Ness Marathon for FMA UK, while Gillian supports Linda with her fundraising efforts. Gillian tells us about their inspirational story of friendship and support:
Sally Sprigg together with friend Kate completed 18 miles and 16 bridges in 5 hours, raising funds and awareness about fibromyalgia. Sally told us her story: ‘’I've suffered with myofascial pain syndrome for over 13 years as well as fibromyalgia and recently diagnosed with chronic fatigue syndrome too. 13 years ago I got hit by a car and knocked off my bike and suffered damage to my lower back and left leg.
Several members of Abbey Mill Fitness Club, based in the same building as FMA UK head office are taking part in the Loch Ness Festival of Running Sunday 27/09/15 on behalf of FMA UK. They will be participating in the marathon, 10K and 5K races.