Please note that the Benefits Helpline will be closed from 25/07/16 to 01/08/16
Michelle and her husband run the marathon because Michelle’s mother in law and a close friend both live with fibromyalgia. Here Michelle is sharing her experience of running the marathon: ‘’me and my husband who both finished in 5 hours 40 minutes. It was very difficult, the weather was unusually hot so we did struggle to keep going and keep hydrated. We both suffered with a bit of sunstroke and sunburn which wasn't great, but after a few days of stiff legs we soon got over it!! We saw lots of charity runners and many inspirational people throughout the day so a big well done to everyone who took part, it was an honour to join in’’.
To donate text BIRK89 plus your pledge amount to 70070
Visit Michelle’s JustGiving page: https://www.justgiving.com/Michelle-Birks1204
Dan Mann is organsing a charity gig Fibrofest in Northfleet on the 30 September to raise funds for FMA UK and raise awareness about fibromyalgia.
Report on work, best practice and recommendations to address the needs of people living with musculoskeletal conditions
Arthritis Research UK has published a report on work and people living with musculoskeletal conditions; one of them is fibromyalgia. ''This report describes the impact of musculoskeletal conditions on the UK workforce and gives the perspectives of people with musculoskeletal conditions about working life. It considers:
- current health and work policy and programmes
- the health and work research agenda
- relevant employment legislation.
It also highlights some examples of good practice by employers, and sets out a series of recommendations to address the needs of people with musculoskeletal conditions who want to work''.
The report can be found here: http://www.arthritisresearchuk.org/policy-and-public-affairs/reports-and-resources/reports/work-report.aspx
Hannah Edwards will do the Thames Bridges 25 Km Trek to raise awareness and funds for FMA UK. Hannah will also organise a cake sale at work. She told us: ‘’I have chosen to support the work of FMA UK because someone close to me was recently diagnosed with Fibromyalgia, which has been an emotional journey. Before this diagnosis I hadn't heard of this condition before, so I wanted to raise awareness and hopefully that goes some way to contribute to the work that FMA UK does in the community.
I have never done anything like this before so it should be fun!''
To sponsor Hannah visit her JustGiving page: https://www.justgiving.com/fundraising/Hannah-Edwards15
Gail Neal and her son, Adam Neal, together with the Cosplay community are organising a fibromyalgia awareness event in Cardiff on the 13th August in the Cardiff City Museum. There will be a street collection across Cardiff city centre for FMA UK.
Gail told us: ‘’Adam and his colleagues are raising money for FMA UK as he has experience of seeing how Fibromyalgia has changed my life and my daily struggle to manage the condition. He has found that there is little or no support in our area for Fibromyalgia and that the local medical profession is ill equipped to effectively support patients with the condition. He also wishes to raise awareness to the general public about this syndrome to enable people to be more tolerant towards people with Fibromyalgia’’.
We hope that you can attend the event and support the fundraising.
- Holly Kirby, 16, will sky dive on Saturday 9 July for FMA UK and her mum
- Houghton-Le-Spring community group, Space 4, event in support of FMA UK
- Online forum admin volunteer vacancy
- Louise Maule ''Aloe challenge' for FMA UK
- Summary from the Fibromyalgia awareness event in the Parliament, 11 May 2016
- Write to your MP and ask for support for Early Day Motion on Chronic Pain