Please note that the Benefits Helpline will not be availabe from Mon 10/08/15 - Fri 21/08/15. The Helpline will resume as normal from Mon 24/08/15
Alok Sharma MP (Reading West) introduced a Westminster Hall debate on fibromyalgia on 1st July 2015 initiated through contact with the Reading fibromyalgia support group.
The debate was attended by only 7 MPs and a junior minister from the Department for Business, Innovation and Skills George Freeman MP. We are pleased that there were representatives from all over the UK. There were 4 members of the public attending, including two representatives from Fibromyalgia Action UK. The relatively low attendance was in part due to the relative lack of notice that was given for the meeting but we hope that a future event will allow us to increase the attendance
However we know from social media activity that there was a good interest from the fibro community across the country with many people watching the debate on Parliament TV live and afterwards as well. The debate lasted 30 minutes, started by the debate organiser, Alok Sharma MP, who gave a 10 minute opening speech.
Katie Matthews has shaven head together with her little son to raise awareness and funds for FMA’s UK work.
Katie told us: ‘’If you have or know someone with fibromyalgia you'll understand just how nasty the illness is. Unfortunately it's not always agreed with. I have seen a GP only two weeks ago who insisted I couldn't possibly hurt so much..... Let me tell you, this is not a life anyone would choose. I'm 30 next month and feel three times that. I use a crutch and have now got a wheelchair so I can manage days out with my boys.
I don't have a life anymore I'm purely existing fibrosucks’’.
To support Katie’s fundraising efforts please go to:
Pam Stewart the chair of FMA UK has always loved walking as a way of keeping fit and getting out and about. Having done a few events in the past its no surprise that she considered doing this event.
Pam said: Well, I thought walking a marathon can’t be that difficult! The entrance money went towards helping street children and I could raise sponsorship for FMA UK. It would be a lovely day out walking along the Thames from Windsor to Cookham with a lunch provided. A new challenge for me.
I did a trial walk last month of about 20 miles and that showed me where the blisters were going to be. I bought some new heel inserts for my boots and had plasters and Vaseline ready (and some pain killers just in case.)
There was a group of 30 at my start time....