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Children and Young People


Education
It may be beneficial to make an appointment with the school to explain the difficulties experienced with the condition. Each school has one person responsible for ensuring children with special needs are catered for and any necessary special arrangements made. Early morning symptoms such as stiffness, pain and fatigue mean that your child may be unable to get ready for school and arrive on time.

It is far better to attend late than non-attendance for the whole day. If your child has a flare up suggest working at home. Teach your child to express physical needs clearly to other care-givers and teachers.

If requests are polite, they will not be regarded as impertinent. You can help with the words to use e.g. “May I have a rest? I am feeling really tired.” Or “May I please finish this tomorrow, as I can’t concentrate today?”

Rest periods during the day can improve stamina. Even ten minutes of rest occasionally, can keep pain and fatigue at manageable levels. You have to make it clear to both the child and the teacher, that such requests are not just excuses and that you will ensure that any missed work is done later. Encourage your child to develop a positive outlook by emphasising ability and not disability.

In exceptional circumstances home tutoring may have to be arranged. Your child’s education is important – take steps to ensure that they can make the most of any support that is available.

 

 

 

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