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Patient Booklet
- Details
- Category: Information Booklets
- Published on Monday, 19 April 2010 11:04
- Hits: 142514
Where To Get More Information
Fibromyalgia Action UK offers a range of support and information including:
- National Helpline
- Benefits Helpline
- Complimentary information booklets for doctors and other professionals
- Books and videos
- Website
- Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
The charity is run largely by volunteers, most of whom have fibromyalgia. Our main aims are:
- To make people aware of fibromyalgia and its affects: to the public at large and to the health professionals that are responsible for diagnosing and treating people with the condition.
- To support people with fibromyalgia through contact with support groups and others with the condition.
- To lobby for more effective, available treatment.
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- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
Trustee meetings are held monthly via Skype and last about 2 hours. There is an annual meeting that coincides with our group leaders’ meeting over a weekend.
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
We are delighted to announce that our recent assessment for The Information Standard has been successful and we continue to fulfil the criteria for using the TIS logo on our publications.
The rigorous process that has to be in place ensures that up to date evidence is used and presented to people in an appropriate way. The process is ongoing and requires much diligence by everyone involved.
We would like to thank everyone who has worked on our publications or sent in their comments and suggestions for improvement
Important Notice‼️ | At the end of March, our JustGiving Text service which allows you to donate using your phone will be ending. Instead, you can now take advantage of our new Text service with Donr. To make a donation, text 'FIBRO' to 70085 to donate a default £10. This costs £10 plus a std rate msg.
Alternatively, you can opt to give any whole amount up to £20, by texting Fibro + the amount you wish to donate, e.g. FIBRO 5 to donate £5.
Please share to make our followers aware of our new text donation arrangement.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
