If you require resources or an enquiry pack please use the Resource Request form here. To have a medical pack sent to your GP use this form.
Requests for support groups or contacts must include a post code. A landline would also be helpful in case we cannot contact you by email. Please check groups below to ensure your enquiry is going to the correct area!
If someone does not get back to you after a week, please contact the office.
Des Quinn
Contact
Chair
Paisley
Renfrewshire
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Other information
As chair of FMA UK I am responsible for ensuring that we set long term goals while ensuring that the day to day operations of the charity keep getting done. With my previous role of keeping the IT operations like the website and social media running properly, I am still involved with these and step in as required to help out.
I became a trustee in August 2008 after a short time of helping out as an advisor to the board. In this time, I have concentrated on promoting communication and using any methods available to increase awareness of fibromyalgia.
Personally, I run a small IT company that helps businesses with their technical requirements from websites to networking their computers. I also have the day to day challenge of dealing with my own fibro and try my best to achieve the best work life balance that I can. With my partner Fiona, I have a lovely son Lewis who often drives me to distraction
One of the positives that I have had from being involved with FMA UK is the opportunity to be there when people meet at a support group, or get that first bit of information that changes their life when they get that affirmation moment of not being alone and adrift with this chronic condition. We have had much more awareness in the time I have been involved but there is still much more work to be done.
Regards
Des Quinn
Highlights
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- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
