Following on from the success of achieving the recent written declaration at the European Parliament, FMA UK has the pleasure in sharing with you a video from ENFA. This short film shows some of what was involved in achieving the declaration as well as a little background on ENFA.
If you have not yet signed the petition, can you please take a short moment to do so. And remember to encourage your freinds and family to do so also.
Media Appearances for after Awareness Week
This week we have a couple of radio appearances that you may want to listen into.We have already had 2 appearances on BBC local radio on Monday 15th and you can find details of others below. We will add more information when we can.
BBC Radio Suffolk Wednesday 17th at 9.30am James Hazell Show
Dr Kim Lawson will be phoning in to speak to the program. Penny King, a sufferer from the local support group in Ispwich will be taking part as well.
Support Groups around the country are working with FMA UK to raise awareness through various means. Anything from broadcasting on community radio to organising a coffee morning and inviting the local MP along, as well as tombola's and having awareness stands in a shopping mall.
Awareness Week 2008 is between the 8th and 14th of September and in the following section you can check what's going on around the country. If you know of anything that should be added here then please let us know using this form.
Fibromyalgia Friends Scotland(FFS) will have an information
display stand at Braehead Shopping Centre after Fibromyalgia Awareness Week
on Tuesday the 16th September
and everyone is welcome to come along.
Blackpool Group raise money
Well done to My Blackpool Group. Yesterday I was invited to Blackpool
Town Hall, I met the Mayor Councillor Mary Smith and the Mayoress Julia
Massey. Local MP Joan Humble came and presented the group with a cheque
for £150.00. It was an informal gathering in wonderful surroundings and
I really enjoyed meeting all the committee, members and visitors who
supported the Awareness Day.
We all know what hard work raising
both Awareness and money but this is an excellent team who made me feel very welcome. The sun shone and there were plenty of yellow and black
ribbons in Blackpool. These sorts of events make my job worthwhile.
On Sunday 14th September, Kathryn Smith and her sister in law Jess McManus will be running the Bristol half marathon in aid of FMA UK. North Somerset Group members will be in Bristol city centre displaying a banner for fibromylagia, and will be distributing leaflets.
Sue Strafford-Binks Released for Fibromyalgia National Awareness Week (8th – 14th September 2008)
Sue Strafford-Binks has suffered with Fibromyalgia for over 17 years. She waited nearly three years for a diagnosis after the trauma of an ectopic pregnancy, followed closely by a tumour on her thyroid gland, left her feeling chronically tired all of the time and her body muscles constantly aching like she had the ‘flu.
Bianca Embley will be appearing on 5 News Sept 10th
This event has passed. If the clip becomes available on the 5 website we will add a link here.
Bianca Embley of PolkaDotGals will be appearing on Five news this evening on the 5pm show. She will be promoting awareness of fibromyalgia so please tune in and watch. This will be a user submitted clip that will feature towards the end of the news programme.
FMA UK and PolkaDotGals are working together to help promote awareness of fibromyalgia and we hope to making another announcement very shortly.
Lisa Knowles has found that there are people willing to give their all in a bid to raise funds and awareness. Her husbands manager at Knowlesy Council Licensing section is about to run a 10K race on October 5th in aid of FMA UK. Ian Rushton has run marathons before and, after being contacted by Lisa, agreed to run the Liverpool 10K ASICS race.
Lisa has placed collection tins around the area with local businesses and plans to contact her local paper to drum up a bit of extra publicity and is doing her all to bring fibromyalgia to the fore.
FMA UK would like to wish Lisa and Ian luck and thank them for their valiant efforts.
BBC Radio Suffolk Wednesday 17th at 9.30am 
Fibromyalgia Friends Scotland(FFS) will have an information
display stand at Braehead Shopping Centre after Fibromyalgia Awareness Week
on Tuesday the 16th September
and everyone is welcome to come along.
