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Fatigue is something which impacts sufferers of fibromyalgia on a daily basis. Sleep is often poor and little, and… https://t.co/utgUhrnwYu

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Edgar Stene Prize competition 2017 for patients

The prestigious annual international Edgar Stene Prize is a competition for patients who live with rheumatic and musculoskeletal (RMDs) conditions, that includes fibromyalgia and we encourage our supporters to submit their entry to share with other people how they manage their condition. The 2016 Prize was won by Simon Stones, now trustee of FMA UK, who inspired the judges by sharing how his life was affected by fibromyalgia and rheumatoid arthritis and how he had conquered both conditions to live his life to the full and to fulfil his dreams of helping others with the same conditions.

The launch of the 2017 Edgar Stene Prize Competition will take place at the Opening Plenary Session of the forthcoming European Congress of Rheumatology in Madrid, Spain, on 14 June 2017. The Prize will be awarded to the winning essay on the topic “Time is joint - Joints over time”. Early diagnosis and access to care in rheumatic and musculoskeletal diseases (RMDs) - the ideal world and the reality - my personal story”.

For many people with RMDs it can be an odyssey from doctor to doctor until they finally receive their diagnosis. For several RMDs valuable time is lost and damage to the body can be irreversible. For those who live in daily pain over a long time the situation can become unbearable. Early diagnosis and access to optimal care and treatment are therefore vital for people affected by RMDs.

We invite people who live with fibromyalgia to write about their personal experience - how long did you wait until your diagnosis was confirmed and how did you cope with the uncertainty, pain and fear during that period? Would an early diagnosis have made a difference from how you are feeling now? Do you have access to care and optimal treatment and management of your disease? What would an ideal situation look like and what is your reality?

All entries must be submitted to the organiser, EULAR (European league Against Rheumatism), by a national eligible organisation. In this case, it is ARMA (Arthritis and Musculoskeletal Alliance UK) who will forward the entries to EULAR.  The essay can be forwarded to FMA UK to Ella This email address is being protected from spambots. You need JavaScript enabled to view it. by December 2016. FMA UK will then forward all entries to ARMA, as we are a member of ARMA. If you have any questions, please email Ella This email address is being protected from spambots. You need JavaScript enabled to view it.

A EULAR Jury will select the 2017 overall Stene Prize winner, to be announced by 15 March 2017. The jury’s decision is incontestable. Information about the 2017 EULAR Jury will also be posted in the following months on www.eular.org

The Stene Prize winner will be invited to attend the Opening Plenary Session of the EULAR Congress in Madrid and is awarded a prize of € 1 000. EULAR provides the winner with travel to Madrid and hotel accommodation in Madrid for up to 4 nights as well as an invitation to the Congress Dinner. In addition the second ranking essay will be awarded with € 700 and the third ranking essay with € 300.

To read entries from 2016 visit: http://www.eular.org/pare_stene_prize.cfm

 

 

 

 

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