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RT @NCLfibro: I've just written a short blog post on why I'm going to @UKParliament to speak to MP's about #Fibromyalgia and the very real…

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Danielle Thornton and Shelby Ford parachute jump for fibromyalgia awareness

Danielle Thornton and Shelby Ford will do a parachute jump on 24 June to raise awareness of fibromyalgia and raise funds for FMA UK. Danielle has fibromyalgia and Shelby’s mum lives with the condition. A couple of local businesses support their fundraising efforts. Danielle told us: ‘’I have had fibromyalgia since I was 17 years old with NEADS and Chronic Fatigue.

For 17 years I enjoyed life doing horse riding, dog walking, taking part in local shows. I have also started a course in health and social and was looking forward to going to Africa to do some voluntary work. Then my life changed

I started to get pain, pins and needles, with a burning sensation in my legs. I also felt drained and unwell and just thought a virus!!! From that day I developed blackouts which I have 20 a day, pain spread across my body with spasms, chronic fatigue, occasional fits and now going through my body puffing up if I try and do too much or if I do too little. People giving me cuddle or touching me can be so painful. I have to be supervised 24/7. I am 25 years old now missed out on all those crazy things even though I try to do them sometimes.

I do feel very isolated and judged how I would love to be able to have one day where I could go out on my own and walk my dog or go out with girls and even being able to go and work with Dogs would be amazing!!!!!


I am doing a Parachute Jump on 24th June to raise awareness of this condition’’.

 

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