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Fundraising Stories

Alice's 120 Miles in June

photograph of fundraiser Alice in FMA UK t-shirt

Alice will be walking 120 miles in June to raise awareness of fibromyalgia and fundraise for FMA UK

If you would like to donate to her fundraising campaign, click here.

Alice shares why she is walking '120 Miles in June'.

“I have had fibromyalgia for some time now, since I was very young I have always had strange symptoms which I now know were fibromyalgia! It started off with pain in my knees, tiredness like actual exhaustion after not doing much at all. I found it hard to come home from school and not take a nap, I was just so tired to the point where I would throw up. I for some reason thought it was normal to feel like that and I didnt want to make a fuss. Anyway, the pain started to spread and eventually it sneaked into every part of my body. The pain levels increased and I decided it would be wise to visit the doctors. They said it was growing pains and they would go when I'd finished growing.

I then started to realise I was getting all these strange symptoms with the pain and fatigue. I had had them for ages but hadn't really put them together. They were things like itchiness, headaches, feeling too hot or too cold, burning pains, being tender to touch, brain fog, finding it hard to think clearly, trouble with loud noise, clumsiness, dropping things, dizziness, sleeping all the time, pain in eyes, IBS - the list could go on for pages! I still get these now, with a lot more added to the list as well. I finally got my diagnosis of fibromyalgia and chronic fatigue syndrome when I was 17 - I am now 23.

Fibromyalgia affects me daily, I struggle with things people would normally find easy, I often find myself having to rest after a small activity. I haven't had a day without pain or some of the symptoms for years. It makes it hard to study, I am currently a university student so this isn't very helpful as you can imagine. University is hard at the best of times without being chronically ill! It's very hard to manage fibromyalgia at times, I sometimes think of it as small people inside my body who often get angry. It helps me sometimes when I picture that, its like oh my little fibro people are angry again today and they want me to rest!

So, I am raising money for FMA UK because they are a fantastic charity who help many people like me with fibromyalgia. It can be a scary place to be on your own, but FMA UK are there for you when you need them. They have all sorts of advice on their website, there's guidance on different things you can do to help manage fibromyalgia. There's lots of important information to look through and it does help so much! They give so much support to fibro sufferers and their families to help them through what can be the hardest time of their life. Chronic illness diagnosis is really something that tears your world apart, but having charities like FMA UK there to help really does make that crucial difference. This charity is run by volunteers and many of them have fibromyalgia too, this is why it is so important to me to raise money and awareness!

Finally, I'm going to be walking 120 miles in June to raise money. This is a big challenge for me, but I am doing it because I kind of want to show fibro who is boss, I feel like it has taken a lot from me and I want to start getting those things back. I have always loved walking and I thought why not do this challenge and I can explore my beautiful county at the same time, whilst raising money for this fantastic charity. I think this is going to be one of the hardest things I have ever done, but I am one of those people who love a challenge and thrive off the sense of achievement it can bring.”

Please click here to donate to Alice's campaign.


SME Midlands and Wales Real Estate Team – Lloyds Bank Walk for FMA UK

UPDATE! - Molly's employer, Lloyds Bank have matched donations to Molly and her team's fundraising campaign bringing their total to just over £9500.

Molly and her Team from Lloyds Bank Midlands & South Wales Real Estate Team recently took part in a fundraising walk for Fibromyalgia Action UK. They have already raised over £4700 in donations, so far.

To donate to Molly and her Team's campaign, please click here. Read on to find out why Molly and her Team were motivated to fundraise for Fibromyalgia Action UK.

“My colleague's father, Michael Hall, who sadly passed away this year, suffered from this debilitating disease for 25 years. It had a huge impact on his day to day life and that of his family.

Over time he learnt to live with this chronic condition and made the most of what he could do whilst managing the pain and fatigue caused by it. In memory of him, the Lloyds Bank Midlands & South Wales Real Estate Team chose to raise funds in aid of the Fibromyalgia Action Group in support of all the good work this smaller and less well-known charity carries out.

The Team took part in a 17-mile charity walk from Monmouth to Chepstow, with clients, professionals, and colleagues sponsoring us for this great cause.

We hope that our fundraising efforts have been able to heighten peoples awareness of this awful condition and the impact it has on the lives of those who suffer from it.”

If you would like to donate to Molly and her Team's campaign, please click here


Emma's 350k Steps for FMA UK

photo of Emma in FMA UK t-shirt

“My name is Emma. I am doing 350,000 steps in November to raise awareness and money for everyone affected by Fibromyalgia. You can donate to my 350k Step Campaign here.

My fiancée Stephanie was diagnosed five years ago with Fibromyalgia after years of severe body pain, weakness, fatigue and numbness in hands and fingers.

Before I met Steph, she struggled as a single mum with her condition. Her flare-ups cause Steph to be unable to do everyday things, like housework or lifting our daughter. Waking hurts, sitting down hurts, laying down hurts. No matter how much sleep Steph gets, she is constantly tired. On a good day, she will do as much as she can, knowing that she will suffer for it, either way, the next day. Her memory is affected, and sometimes she forgets her own age.

FMA UK is important to me because it raises awareness about a little-known condition.”

Click here to donate to Emma's 350k Step Campaign


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