- Fibro Action and FMA UK are now Fibromyalgia Action UK
- What are you doing for awareness week
Lesley Bratty will ride a spin bike in her local gym for 8 hours to raise funds for FMA UK. Lesley told us her inspiring story: ‘’I was diagnosed with fibromyalgia just over 2 years ago, after several years searching for a diagnosis to explain all my weird and wonderful symptoms. Adjusting to the diagnosis has been tough in many ways, but finding the Fibromyalgia UK webpage, as well as various Facebook groups, has been fantastic. I’ve been able to view a wealth of information and tips on coping with the illness.
I’ve been lucky in a lot of ways, to have the support of my husband and friends, to have 20 years of yoga practise and a yoga teaching qualification under my belt to help me manage my pain, stiffness, and down days. Unfortunately, others aren’t so lucky, and I have seen how the work done by Fibromyalgia UK has helped those not as blessed as I am.
I try to do something for charity every year, and I usually raise money for a charity that has helped a friend or family member in some way, such as Marie Curie or Chest Heart and Stroke. This year my husband suggested that since I’m in a lot more pain than previous years I skip the charity event. I really didn’t want to skip doing some good, so compromised by deciding to raise money for a charity that benefits me!
I ran through a lot of ideas, trying to find something my body could cope with, and eventually decided on 8 hours on a spin bike, on 8th April at a local gym. I figured I can put the resistance as low as possible, and pedal extremely slowly if necessary to get through it. I also have an encouraging playlist setup and lots of people are planning to pop in and cheer me on.
Georgie Montgomery and Ellis Stewart will be sky diving on the 29th April to raise awareness and funds for FMA UK. Ellis told us: ‘’We will be diving through the sky to raise money for a cause close to both of our hearts. We're supporting Fibromyalgia Action UK as both of our mothers suffer from the disease, which causes agonising pain on a daily basis - so the least we can do is jump out of a plane!’’.
Georgie and Ellis have already raised £260 and you can support their effort by visiting their JustGiving page:
The 12th May is recognised as the international fibromyalgia awareness day. Charities and groups around the world will be organising events to increase awareness of the condition. Why not celebrate with us and raise awareness by organising a coffee and cake event? This could be with your family and friends in your home, in your workplace, in a local cafe or even a picnic in the park.
We would encourage local fibromyalgia support groups and our supporters to organise coffee and cake mornings up and down the country. If it is your local support group meeting, then why not ask partners and friends to come along, extending the reach of the support group on International awareness day.
Requesting resources for your event
If you wish to order resources such as leaflets, booklets and posters about fibromyalgia, please ensure you place your order (free of charge) prior to Friday 28th April 2017, so that we can get them out to you in time. Orders must be completed via the resources form at www.fmauk.org/resources. Orders received after Friday 28th April 2017 cannot be guaranteed to reach you in time for your event.
FMA UK will be participating on a piece that BBC Radio Sheffield are doing on the 15th March. They will be talking about the petition started by Adrienne Lakin and the situation with awareness of fibromyalgia in the UK. Des Quinn, our chair will be participating in the discussion. Please check their website on the link provided so you can listen at the time. If you can’t make it at the time, then you will be able to listen later on their website. Time: 15th March 2017 around 7.50am
Link: http://www.bbc.co.uk/programmes/p04tl81w (Click on Toby's face and the show will start to play. Forward the programme to 52mins 30 and you will be able to hear the segment)
Alex has finished the half-marathon on 12th March with a great result: time of 1:39:06 and raising £340. Congratulations to Alex! He told us: ‘’ I'm a second year computer science student at the University of Essex. I have always wanted to run in a long-distance event and I felt that this was a good time to take part in the Colchester half marathon. I chose to run for FMA UK because two relatives of mine are affected by fibromyalgia’’.
Alex is still accepting donations for FMA UK through his JustGiving page:
there is also the following facebook site for the study: