- Fibro Action and FMA UK are now Fibromyalgia Action UK
- What are you doing for awareness week
- You can sign up online wherever convenient for you. It will take just a few minutes without having to print or manually fill out and send us paper forms.
- You will be allocated a ‘Reference Number’ which can be used when contacting us.
- It will ensure that Head Office have the correct information i.e. email address/contact number.
- Our aim is that all fundraising registration forms will be completed online.
Please note that there will be no benefits helpine on Friday 24th February 2017 )
''My name is Ebony Lizanec and I am 20 years old. On the 03/04/2017 I will be starting my hike completely alone on the west highland way. This will include 5 days of solid hiking (96 miles in total) and 4 nights of wild camping.
Please can everyone be generous and sponsor me on my journey, I will be making updates of my whole journey with photos and videos.
I have decided that if I manage to raise over £1000 I will be climbing Ben Nevis at the end if my trip.
Please share this on so we can all help those who suffer, have more knowledge and help with medical research.
Thank you so much, Ebony’’.
To donate visit Ebony’s JustGiving page: https://www.justgiving.com/fundraising/Ebony-Lizanec
Laura has organised two successful fibromyalgia awareness events in her local community. Here Laura shares her story and how to organise a fun and a successful fibromyalgia awareness stall: ''The first time I heard of Fibromyalgia was when my mum received her diagnosis in 2004. The second time I heard of Fibromyalgia was when I received my own diagnosis in 2011. It was only then that I truly understood the full implications and debilitating nature of this illness. Ever since then I’ve wanted to do something to raise awareness about this condition, so when one of our local churches advertised for participants to help hold a summer fete in June last year I asked for a table.
With the help of my mum, sister and girlfriend we spent the weeks leading up to the event making preparations: procuring items to sell (we went for a butterfly theme, given its symbolism within the Fibromyalgia community), obtaining leaflets and posters from FMAUK, and promoting our involvement in the fete and our aims via word of mouth and social media.
The day of the fete was a typical Welsh summer day – misty and wet – so the fete was moved into the small church hall. Despite the lower turnout of people – the weather was a bit of a deterrent – we had constant interest through the afternoon; some from people who have Fibromyalgia, some who knew someone with the illness, and others who had never heard of it and wanted to know more. Not only was it a great way to share experiences with this illness or inform others about this illness, but we got to raise money for and awareness of FMAUK.
Adam Higgins, a racing driver from Chippenham who won multiple championships during over 10 years of racing, will be raising awareness about fibromyalgia during the Michelin Ginetta Supercup. Adam is raising funds to raise awareness about fibromyalgia to over 20 million people during the championships. Adam said: ‘’I am a British Motor Racing Driver and this year I will be competing in the Michelin Ginetta Supercup held in Britain on the British Touring Car Championship Calendar. For 2017 I am moving to a higher level category of racing and see it as a unique opportunity to use the car as a tool to spread awareness to people that are unaware of fibromyalgia.
More than one person close to me have been diagnosed with Fibromyalgia in the last few years. Upon researching it myself, I started to realise just how many people are being affected by this disease.
As it is a fairly new disease to be diagnosed, the symptoms are often misunderstood. One day a sufferer could be absolutely fine, but the next day have a 'flare up' which can render the sufferer bed ridden and in complete agony!
The Championship that I am competing in has a huge following with a combined 20.9 million TV viewers on ITV4 over one year. This combined with a combined 385,000 spectators live at the circuits, means that there is a massive amount of people that see the cars.
My plan is to use the car as a great tool for running an awareness campaign, so that millions of people can become aware of Fibromyalgia.