- Welcome to FMA UK
- Donate Clothes for FMA UK
- FMA UK offers many awareness resources
Although Charlotte’s essay concerns rheumatoid arthritis it could just have easily been a diagnosis of fibromyalgia she was writing about. Many people with FM will relate to her experiences. ENFA, along with others is determined that professionals will all understand and their patients will feel all the better for their understanding
Stene Prize Winner 2015 – official announcement
On behalf of the 2015 Stene Prize Jury under the leadership of Nele Caeyers, ReumaNet, Belgium and PARE Board member, we are delighted to share the final results of the 2015 Stene Prize competition with you.
A big thank you goes out to Terry Hoare and the Openreach JRM team in Exeter, who recently held a charity car wash and cake sale in aid of FMA UK.
Terry had this to say about the event:
Bob my Openreach boss wanted to us to organise a charity event to raise money for a worthy charity. He knew my son Simon suffers from Fibromyalgia and he suggested a sponsored car wash and cake sale day to raise money for the FMA UK.
This has been forwarded to us from someone who received it from Benefits and Work. If you have any questions or comments please contact Benefits and Work. www.benefitsandwork.co.uk
New reclaim rules
In just 18 days’ time the rule which allows you to reclaim ESA at the assessment phase rate 6 months after a refusal will be abolished for most claimants, though there are some important exceptions. For example, if your condition has got worse or you have developed a new condition, then you may be able to get the assessment rate again - provided the DWP accept that this is the case.
The change is particularly likely to hit people who are too ill or unsupported when they first make a claim to make a proper job of it and who try to claim again later.
We’ve included details of the new rules in our claiming ESA guides, updated yesterday.
New ESA50 form
Our updated guides also take into account the new ESA50 claim form issued at the end of February. The new form coincides with Maximus taking over the work capability assessment from Atos.
The main changes to the form are questions being arranged in a different order. But many of the boxes for claimants to give information in have also been made much smaller. It is also no longer possible to reduce the font size in the .pdf version to get more evidence text into the boxes.
It almost looks like Maximus are being paid twice as much money to process half as much information.
Christine Johnson, founder of Support Groups in Stamford, Spalding and Corby appeared on Corby FM Radio on Tuesday 17/03/15 to promote awareness of the condition and to notify people of the support group meeting that afternoon.
The British 10k London Run is staged on the worlds greatest road race route through the heart of central London passing many of the capitals truly world class historic landmarks.
Starting on Piccadilly outside The Guards & Calvary Club, runners will pass the new WW2 Bomber Command Memorial which was unveiled by HM Queen Elizabeth 11 in June 2012, with Wellington Arch at Hyde Park Corner forming the backdrop to the start.
FMA UK has 6 places in this 10k race. Make this your challenge for the summer and enjoy the thrill of being part of 20,000 runners through central London in one of our t-shirts or running vests and help raise awareness for fibromyalgia.
There is nothing to pay up front but we do expect you to raise at least £150 in sponsor money.
All entries must be with us by 23 June 2015 to allow time for official entry.
Lauren is organising this race night in Huddersfield to raise awareness and funds for to support FMA UK. If you are in the area, why not go along and enjoy an exciting evening and support FMA UK
Race Night will take place on Sat 13th June 2015 and will be held at Siddal Ex-Servicemens Club
'Gates' open 7pm. First race 7.45pm £5 a ticket which includes a hot supper (kids free)
Citadel Stamps is helping FMA UK by organising a stamp appeal. It’s easy to get involved, just save your used
stamps and ask your family, friends, work colleagues, employer and local schools to help by saving their stamps too.
Stamps should be clipped leaving a 5-10mm border around the stamp - this increases the value.
You can help increase the value of the stamps you send by using current high value commemoratives to post them to:
FMA UK Stamp Appeal
PO BOX 6107
- 6th International FM Conference, Chichester April 2015
- FibroAction and FMA UK working closer together
- ENFA Survey - Collecting Information for International Awareness Day
- Behind the Mask - Masquerade Ball, Manchester 04th April 2015
- Survey into symptoms of people with FM, CFS and IBS
- Article: The Pain Brain: Hippocampal Atrophy found in Fibromyalgia