- Fibro Action and FMA UK are now Fibromyalgia Action UK
- Welcome to FMA UK
Gemma and Lauren are organising a fundraising table top sale on Saturday the 28th November in Horsham in aid of FMA UK.
Gemma told us: ‘’This is our first event which was initially a business idea of my best friend Lauren. We were both fed up of the cold 6am car boot starts and being haggled down to 50p for expensive clothes we had only worn a handful of times if at all plus with both of us being just 23 years old we are self confessed shopping addicts but we love a bargain! So Lauren came up with the initial idea of a ladies only event where everyone could enjoy a leisurely shopping experience at low prices but still fair to the stallholders and with Christmas creeping up on us fast everyone needs to raise some extra pocket money! We also wanted to make sure there was better refreshments available then the usual car boot truck selling hot dogs, so we will be having a beautiful spread of freshly baked scones and cakes to enjoy with a hot or cold beverage.
I then put to Lauren that I would love to raise some money for FMAUK, I had been officially diagnosed with fibromyalgia in August 2015 and just like so many fibro sufferers went through the exhausting process of diagnoses it took almost a year from my last back injury to be diagnosed although myself and my family are sure it has been around a lot longer it just hit its peak in Oct 2014.
The Carers Rights Day is on Friday the 20th November. When you're caring, getting the right information at the right time can make all the difference.
FMA UK joins Carers UK in calling on all carers to get the support they're entitled to, wherever they are in their caring journey.
Carers UK are launching a range of new resources to help carers get the information they need. To find out more and to stay up-to-date on the latest news affecting carers visit https://www.carersuk.org/news-and-campa…/…/carers-rights-day
HealthUnlocked Online Community Volunteer Admin role description
About Our HealthUnlocked online community
Health Unlocked is an FMA UK online Community provided by HealthUnlocked, where people can get support and information 24 hours a day, 7 days a week. Volunteer Admins support provides a welcoming environment for people affected by fibromyalgia. These Admins enable us to provide a better, more responsive service.
This role can be based anywhere in the UK, from home, and undertaken when it is convenient to the volunteer. No fixed time commitment is needed, however we will ask you to login and respond to tasks regularly.
Fibromyalgia Action UK (FMA UK) has a pleasure to announce that Pam Stewart, Trustee and a former long-standing Chair of the charity has received an international Distinguished Services Award from the Bone and Joint Decade, a Global Alliance for Musculoskeletal Health. This is an international Alliance of organisations working in the musculoskeletal conditions field.
Pam received the Award ‘’for promotion of the goals of the Bone and Joint Decade and in recognition of distinguished professional excellence and service to colleagues and people affected by musculoskeletal disorders.’’ Everyone at FMA UK would like to congratulate Pam as she wholeheartedly deserves the award for her outstanding contribution, commitment and achievements in raising awareness about fibromyalgia nationally and internationally and for her advocacy work in this field.
Have you ever dreamed about doing something unforgettable but have always found difficult to find the time and the opportunity to do so? Why not signing up for the once in a lifetime tandem Santa skydive while raising funds for FMA UK? This memorable and extraordinary experience is proven both to challenge the sky-diver and to raise excellent amount of awareness and funding for a charity.
FMA UK Santa Skydive takes place on the 5th December at 12 noon in Dunkeswell, near Honiton in the picturesque East Devon. Every year more and more people sky dive for FMA UK and bring exceptional memories from the experience. A tandem is an easy and enjoyable way to experience the thrills of skydiving without having to learn how. The exhilarating freefall combined with the peace and tranquillity of the parachute ride, makes tandem skydiving a unique and eye-opening way to raise money for a worthy cause.
I am raising money for Fibromyalgia as I am in the process of being diagnosed with this horrible illness. Fibromyalgia can be similar to Multiple Sclerosis, Lyme disease, Lupus and rheumatoid arthritis. Often, fibromyalgia will run alongside these debilitating illnesses making It very hard to diagnose. As it stands I am not fully aware of the extent of what I have but none the less I feel the need to raise awareness for fibromyalgia.
Fibro can vary. Some can be wheelchair bound; others feel constant pain in their bodies, like fire running through the veins and nerves. Constant headaches, nerve twitching and tremors only scratch the surface with what this illness does. There is no cure to date. Medications help control the pain, but, there is always pain and a lot of it. A fibro sufferer is ill and so tired every single day, insomnia keeps us up at night. Loneliness and sadness is often with us as people find us hard to relate to. We may constantly speak about our pain, struggles and confusion. Trying to reach for a little bit of normality, but, this is a struggle to us.
I want to raise awareness so friends and families will understand more our struggles.
FMA UK and FMSupport South East Essex teamed up with all Thurrock libraries to take part in the national Fibromyalgia Awareness Week last month. A joint information stall was held in Grays library and information leaflets about fibromyalgia and about support services available from FMA UK are available from all Thurrock libraries.
Ella Vine, Executive Officer at Fibromyalgia Action UK said: ‘’The event was a success. It has been widely promoted in the local media and as a result many people came to see us. For those who were unable to come to talk to us at the library, we made leaflets available in all Thurrock’s libraries. We would like to thank Thurrock Libraries for supporting the Awareness Week’’.
- Rebecca's modelling to raise awareness about fibromyalgia
- Article in the Guardian: ''I am in constant pain''.
- Katie's hair cut to raise funds and awareness about fibro
- Sally's Thames Bridges 20 km walk
- An inspirational story about friendship and support
- Abbeymill Fitness Club doing Loch Ness Festival of Running